Vpliv vaskulitisa na kakovost življenja pacienta : diplomsko delo

Rančnik, Marina (avtor), Pajnič, Manca (mentor), Birk Tot, Karin (komentor), Matić, Lucija (recenzent)

Uvod: Vaskulitis je redka kronična avtoimunska bolezen, za katero je značilno vnetje krvnih žil, ki lahko prizadene različne organske sisteme. Zaradi svoje kompleksnosti, nepredvidljivega poteka in dolgotrajnega zdravljenja vaskulitis pomembno vpliva na kakovost življenja pacientov, saj povzroča številne telesne, psihološke, socialne in finančne posledice. Namen: Namen diplomskega dela je predstaviti vpliv vaskulitisa na kakovost življenja pacientov, njihovih družinskih članov in drugih bližnjih s poudarkom na razumevanju telesnih, psiholoških, socialnih in finančnih posledic ter izzivih, s katerimi se pacienti srečujejo v vsakdanjem življenju. Metode dela: Uporabljena je bila deskriptivna metoda dela s pregledom domače ter tuje znanstvene in strokovne literature. Literaturo smo iskali s pomočjo Digitalne knjižnice Univerze v Ljubljani v podatkovnih bazah PubMed, CINAHL Ultimate, COBISS in Google Scholar. Vključeni so bili članki, objavljeni med letoma 2016 in 2026. Rezultati: Ugotovitve kažejo, da vaskulitis pomembno vpliva na kakovost življenja pacientov. Najpogostejši vplivi vključujejo telesne simptome, kot sta bolečina in utrujenost, psihološke težave, kot sta anksioznost in depresija, ter socialne in finančne posledice, kot sta socialna izolacija in zmanjšana delovna sposobnost. Dodatno breme za paciente predstavljajo številni neželeni učinki zdravljenja, ki so lahko psihološki (poleg anksioznosti ter depresije tudi razdražljivost, nespečnost, evforija, manično razpoloženje in nihanje razpoloženja), telesni (npr. zabuhlost obraza, povečanje telesne mase, mišična oslabelost, povečan apetit, krhkost kože in povečana nagnjenost k nastajanju modric) ter dolgoročni zapleti, kot so sladkorna bolezen, osteoporoza, glavkom ter neplodnost. Razprava in zaključek: Kakovost življenja pacientov z vaskulitisom zahteva celostno obravnavo, ki presega zgolj farmakološko zdravljenje. Ključno je vključevanje psihološke podpore, socialne pomoči ter zdravstvene vzgoje pacientov. Pomembna je multidisciplinarna obravnava in individualiziran pristop, ki upošteva potrebe posameznika.

• Jezik: Slovenski jezik
• Ključne besede: diplomska dela, zdravstvena nega, kronične bolezni, psihološki dejavniki, socialni dejavniki, zdravljenje
• Vrsta gradiva: Diplomsko delo/naloga
• Tipologija: 2.11 - Diplomsko delo
• Organizacija: ZF - Zdravstvena fakulteta
• Kraj izida: Ljubljana
• Založnik: [M. Rančnik]
• Leto izida: 2026
• Št. strani: 44 str.
• PID: 20.500.12556/RUL-187091
• UDK: 616-083
• COBISS.SI-ID: 290473219
• Datum objave v RUL: 09.09.2026

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: The impact of vasculitis on patient's quality of life : diploma work

Izvleček

Introduction: Vasculitis is a rare chronic autoimmune disease characterized by inflammation of blood vessels and may affect various organ systems. Due to its complexity, unpredictable course, and long-term treatment, it significantly impacts patients’ quality of life in physical, psychological, social, and financial aspects. Purpose: The purpose of this diploma thesis is to present the impact of vasculitis on the quality of life of patients, their family members, and significant others, with an emphasis on understanding the physical, psychological, social, and financial consequences, as well as the challenges patients face in everyday life. Methods: A descriptive research method based on a review of Slovenian and international scientific and professional literature was used. Literature was searched through the Digital Library of the University of Ljubljana using the databases PubMed, CINAHL Ultimate, COBISS, and Google Scholar. Articles published between 2016 and 2026 were included. Results: The findings indicate that vasculitis has a significant impact on patients’ quality of life. The most common effects include physical symptoms such as pain and fatigue, psychological difficulties such as anxiety and depression, and social and economic consequences such as social isolation and reduced work ability. An additional burden for patients is represented by numerous adverse effects of treatment, which may be psychological (in addition to anxiety and depression, also irritability, insomnia, euphoria, manic mood, and mood swings), physical (e.g., facial swelling, weight gain, muscle weakness, increased appetite, skin fragility, and increased susceptibility to bruising), as well as long-term complications such as diabetes mellitus, osteoporosis, glaucoma, and infertility. Discussion and Conclusion: The quality of life of patients with vasculitis requires a holistic approach that goes beyond pharmacological treatment alone. The inclusion of psychological support, social assistance, and patient health education is essential. A multidisciplinary approach and individualized care that consider the needs of each individual are of key importance.

• Ključne besede: diploma theses, nursing care, chronic diseases, psychological factors, social factors, treatment