Kakovost obravnave mater mrtvorojenih otrok v Sloveniji : diplomsko delo

Vinci, Sophie (avtor), Skubic, Metka (mentor), Šerjak, Lucija (komentor), Levec, Tina (recenzent)

Uvod: Mrtvorojenost predstavlja za ženske eno najhujših izgub, kar jih lahko v življenju doživijo in nosi s seboj širok spekter kognitivnih, duševnih, duhovnih in fizičnih pretresov. Namen: Namen diplomskega dela je preučiti zdravstveno obravnavo žensk z izkušnjo perinatalne izgube ter ugotoviti, kaj jim je pomagalo pri procesu žalovanja. Metode dela: Diplomsko delo je razdeljeno na teoretični in empirični del. V prvem delu je bil opravljen pregled znanstvene in strokovne literature po metodi PRISMA. Literatura je bila raziskana s pomočjo podatkovnih baz PubMed in DiKul. V drugem, empiričnem delu, je bila uporabljena kombinacija kvantitativne in kvalitativne metode raziskovanja z uporabo validiranega vprašalnika, prevedenega v slovenski jezik. Rezultati: Več kot 25 % žensk je poročalo o nespoštljivi obravnavi v času nosečnosti pred porodom mrtvega otroka, pri čemer so se ti deleži v naslednji nosečnosti ponovno zmanjšali. Kakovost nadaljnje obravnave je 50 % žensk ocenilo kot dobro ali zelo dobro, medtem ko jo je nekaj več kot 25 % ocenilo kot slabo ali zelo slabo. Približno 25 % udeleženk je ocenilo postopke ugotavljanja vzroka smrti kot nezadostne, prav tako je bil delež nezadovoljstva pri obdukciji okoli 25 %. 56 % žensk je navedlo, da zaradi mrtvorojenosti niso imele dodatnih finančnih stroškov. Dodatno obravnavo je prejelo približno 70 % žensk, medtem ko je 30 % ni prejelo, kar kaže, da je večina bila deležna vsaj ene oblike podpore. Analiza odprtih vprašanj je pokazala, da so bila doživljanja zdravstvene obravnave močno povezana z načinom komunikacije, odnosom zdravstvenega osebja ter možnostjo aktivnega vključevanja v odločanje. Razprava in zaključek: Raziskava je poudarila, da obstaja veliko možnosti za izboljšave, predvsem na področju empatične in sočutne komunikacije, uporabe primerne terminologije ter vključevanja staršev v proces odločanja glede diagnostičnih in drugih postopkov. Pomembno vlogo ima tudi omogočanje ustvarjanja spominov na otroka in zagotavljanje ustrezne podpore po odpustu iz porodnišnice. Pri tem bi lahko pomembno vlogo imele babice, katerih kompetence bi bilo smiselno nadgraditi s ciljno usmerjenimi izobraževanji s področja perinatalne izgube.

• Jezik: Slovenski jezik
• Ključne besede: diplomska dela, babištvo, kakovost, žalovanje, ustvarjanje spominov, mrtvorojenost, spoštljiva obravnava
• Vrsta gradiva: Diplomsko delo/naloga
• Tipologija: 2.11 - Diplomsko delo
• Organizacija: ZF - Zdravstvena fakulteta
• Kraj izida: Ljubljana
• Založnik: [S. Vinci]
• Leto izida: 2026
• Št. strani: IX, 62 str.
• PID: 20.500.12556/RUL-182947
• UDK: 618.2/.7
• COBISS.SI-ID: 279775235
• Datum objave v RUL: 29.05.2026

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: Care quality of mothers following stillbirth in Slovenia : diploma work

Izvleček

Introduction: Stillbirth represents one of the most devastating losses a woman can experience in her lifetime and is associated with a wide range of cognitive, emotional, spiritual, and physical distress. Purpose: The purpose of this thesis is to examine the medical care provided to women who have experienced perinatal loss and to determine what helped them in the grieving process. Methods: The diploma work is divided into a theoretical and an empirical part. In the first part, a review of scientific and professional literature was conducted using the PRISMA method. The literature was researched using the PubMed and DiKul databases. In the second, empirical part, a combination of quantitative and qualitative research methods was used, employing a validated questionnaire translated into Slovenian. Results: More than 25% of women reported disrespectful treatment during the pregnancy preceding the stillbirth, although these proportions decreased again in subsequent pregnancies. Fifty percent of women rated the quality of follow-up care as good or very good, while just over 25% rated it as poor or very poor. Approximately 25% of participants rated the procedures for determining the cause of death as inadequate; similarly, the rate of dissatisfaction with the autopsy was around 25%. 56% of women reported that they did not incur additional financial costs due to the stillbirth. Approximately 70% of women received additional care, while 30% did not, indicating that the majority received at least one form of support. Analysis of the open-ended questions revealed that experiences with medical care were strongly linked to the manner of communication, the attitude of healthcare staff, and the opportunity for active involvement in decision-making. Discussion and conclusion: The study highlighted that there is significant room for improvement, particularly in the areas of empathetic and compassionate communication, the use of appropriate terminology, and the involvement of parents in decision-making regarding diagnostic and other procedures. Enabling the creation of memories of the child and providing adequate support after discharge from the maternity ward also play an important role. Midwives could play a significant role in this regard, and it would be beneficial to enhance their competencies through targeted training in the field of perinatal loss.

• Ključne besede: diploma theses, midwifery, quality, bereavement, creating memories, stillbirth, respectful care