Doživljanje prostovoljnega dela s hudo bolnimi in umirajočimi osebami

Jenšterle, Zarja (avtor), Žvelc, Gregor (mentor)

Z magistrsko raziskavo sem želela raziskati doživljanje in izkušnje prostovoljnih delavcev, ki delajo s hudo bolnimi in umirajočimi osebami. Namen raziskave je bil pridobiti neposreden vpogled v motivacijo prostovoljcev in njihovo dojemanje svoje vloge pri delu s hudo bolnimi in umirajočimi ljudmi. Proučiti sem želela prednosti in izzive dela, ki jih zaznavajo prostovoljci, ter ugotoviti, kako dojemajo psihološki in čustven vpliv dela ter kako se z njim spoprijemajo. V raziskavi je sodelovalo 11 udeležencev, od tega 1 moški in 10 žensk. 5 prostovoljk je delo opravljalo v okviru bolnišnične oskrbe, 6 udeležencev pa v okviru društva, kjer bolnike in umirajoče najpogosteje spremljajo na domu. Z vsemi udeleženci sem opravila polstrukturirane intervjuje in jih analizirala po metodi tematske analize. Ugotovila sem, da prostovoljce k delu na tem področju pogosto nagovori lastna izkušnja izgube, zanj pa se odločajo tudi zaradi altruističnih motivov in želje po osmišljanju lastnega življenja in prostega časa. Prostovoljci svojo vlogo v kontekstu oskrbe bolnikov oziroma uporabnikov dojemajo predvsem kot socialno in čustveno podporo, ki je usmerjena na skrb za njihovo psihološko blagostanje in dopolnjuje ostale vidike zdravljenja. V splošnem je prostovoljno delo s hudo bolnimi in umirajočimi za prostovoljce zelo pozitivna izkušnja, za katero zaznavajo, da je imela pomemben vpliv na njihovo življenje. Delo s hudo bolnimi in umirajočimi prostovoljcem omogoča osebnostno rast in poveča njihovo strpnost, sprejemanje drugačnosti in občutek hvaležnosti. Negativne vidike dela bolniki zaznavajo veliko manj kot pozitivne, o njih pa večinoma poročajo v kontekstu občutkov negotovosti ali neprijetnih občutkov ob izgubi bolnikov. Za spoprijemanje z neprijetnimi vplivi dela je pomemben preplet osebnih dejavnikov prostovoljca ter zunanjih in organizacijskih dejavnikov. Ugotovitve raziskave lahko služijo kot temelj za oblikovanje novih raziskav na tem področju ter kot smernica za oblikovanje učinkovitih načrtov uvajanja in izobraževanja prostovoljcev.

• Jezik: Slovenski jezik
• Ključne besede: prostovoljstvo, paliativna oskrba, hospic oskrba, bolnišnična oskrba, doživljanje, izkušnje, tematska analiza
• Vrsta gradiva: Magistrsko delo/naloga
• Tipologija: 2.09 - Magistrsko delo
• Organizacija: FF - Filozofska fakulteta
• Kraj izida: Ljubljana
• Založnik: Z. Jenšterle
• Leto izida: 2025
• Št. strani: 59 str.
• PID: 20.500.12556/RUL-168762
• UDK: 159.9:616-036.8-083(043.2)
• COBISS.SI-ID: 234258947
• Datum objave v RUL: 24.04.2025

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: Volunteers' experience of working with seriously ill and dying people

Izvleček

My master's thesis aimed to explore the experiences of volunteer workers who work with the seriously ill and dying. The aim of the research was to gain direct insight into the motivation of volunteers and their perceptions of their role in working with seriously ill and dying people. I wanted to explore the main perceived benefits and challenges of the work, how volunteers perceive the psychological and emotional impact of the work and how they cope with it. The study involved 11 participants, one male and 10 female. 5 volunteers worked in hospital care and 6 within an association, where patients are most often accompanied at home. I conducted semi-structured interviews with all participants and analysed them using thematic analysis. I found that volunteers are often motivated to work in this field by their own experience of loss, but also as a result of altruistic motives and the desire to make meaning of their own lives and leisure time. Volunteers perceive their role in the context of patient/user care primarily as social and emotional support, focused on the psychological well-being of the patient/user and complementary to other aspects of treatment. Overall, volunteering with the seriously ill and dying is a very positive experience for volunteers, which they perceive to have had a significant impact on their lives. Working with the seriously ill and dying gives volunteers the opportunity to grow as individuals and increases their tolerance, acceptance of difference and sense of gratitude. The negative aspects of the work are perceived by patients much less than the positive ones, and are mostly reported in the context of feelings of insecurity or unpleasant feelings after the loss of a patient. The interplay between the volunteer's personal factors, external factors and organisational factors is crucial for coping with the unpleasant effects of work. The findings of this study can serve as a basis for the design of new research in this area and as a guideline for the design of effective volunteer training and onboarding.

• Ključne besede: volunteering, palliative care, hospice care, hospital care, experience, thematic analysis