Informal carers of people with dementia : how to respond to their need for support and help on different levels?

Rihter, Liljana (avtor), Hurtado Monarres, Miriam (avtor)

Social work is constantly evolving and theoretically enriched to meet people's needs in new social situations. Informal carers must balance care with other demands while facing a range of obstacles. Despite research on what informal carers require, a specific typology of their needs has yet to be formulated. The research question considered is "What are the (groups of) needs of individuals who provide informal care for people with dementia?". As part of the research project Long-term Care for People with Dementia in Social Work Theory and Practice, we interviewed a non-random convenience sample of 20 relatives acting as informal carers of people with dementia. The results are presented as a typology of needs on the micro level (personal health—emotional health, physical health), mezzo level (care tasks—support from formal care, planning—information, counselling) and macro level (legislation, system changes). Most obstacles and needs identified were on the micro and mezzo levels. More than on the system (macro level), informal carers see the responsibility and burden of care as lying on the individual (micro level) and institutions and the community (mezzo level).

• Jezik: Angleški jezik
• Ključne besede: long-term care, social work, informal care, caregiving task, personal health
• Vrsta gradiva: Članek v reviji
• Tipologija: 1.01 - Izvirni znanstveni članek
• Organizacija: FSD - Fakulteta za socialno delo
• Status publikacije: Objavljeno
• Različica publikacije: Objavljena publikacija
• Leto izida: 2023
• Št. strani: Str. 93-107
• Številčenje: [Vol.] 20, [no.] 2
• PID: 20.500.12556/RUL-167323
• UDK: 364.4
• ISSN pri članku: 1854-0031
• DOI: 10.51936/ztrc8377
• COBISS.SI-ID: 200534019

Avtorske pravice

Licenca Creative Commons je navedena na pristajalni strani članka: "This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.(https://creativecommons.org/licenses/by-nc-nd/4.0/)". (Datum opombe 14. 2. 2024)

• Datum objave v RUL: 14.02.2025

Gradivo je del revije

• Naslov: Metodološki zvezki
• Založnik: Fakulteta za družbene vede
• ISSN: 1854-0031
• COBISS.SI-ID: 215796992

Licence

• Licenca: CC BY-NC-ND 4.0, Creative Commons Priznanje avtorstva-Nekomercialno-Brez predelav 4.0 Mednarodna
• Povezava: http://creativecommons.org/licenses/by-nc-nd/4.0/deed.sl
• Opis: Najbolj omejujoča licenca Creative Commons. Uporabniki lahko prenesejo in delijo delo v nekomercialne namene in ga ne smejo uporabiti za nobene druge namene.

Sekundarni jezik

• Jezik: Slovenski jezik
• Ključne besede: dolgotrajna oskrba, socialno delo, neformalna pomoč, osebno zdravje

Projekti

• Financer: ARIS - Javna agencija za znanstvenoraziskovalno in inovacijsko dejavnost Republike Slovenije
• Številka projekta: J5-2567
• Naslov: Dolgotrajna oskrba ljudi z demenco v teoriji in praksi socialnega dela