Ethical considerations when conducting pan-European research with and for adolescent young carers

Hanson, Elizabeth (avtor), Lewis, Feylyn Mercedies (avtor), Barbabella, Francesco (avtor), Hoefman, Renske (avtor), Casu, Giulia (avtor), Boccaletti, Licia (avtor), Leu, Agnes (avtor), Hlebec, Valentina (avtor), Bolko, Irena (avtor), Santini, Sara (avtor), Svensson, Miriam (avtor), Becker, Saul (avtor), Magnusson, Lennart (avtor)

Adolescent young carers (AYCs) are a sub-group of young carers who carry out significant or substantial caring tasks and assume a level of responsibility which would usually be associated with an adult. They are a potentially vulnerable group of minors because of the risk factors associated with their caring role. AYCs face a critical transition phase from adolescence to adulthood often with a lack of tailored support from service providers. The recently completed European funded ‘ME-WE’project, which forms the focus of this paper, aimed to change the‘status quo’ by advancing the situation of AYCs in Europe, via responsive research and knowledge translation actions. This paper outlines the participatory, co-creation approach employed in the project to optimise AYC’s involvement. It describes the ethical framework adopted by the project consortium to ensure the wellbeing of AYCs within all project activities. Ethical issues that arose in the field study work in all six countries are presented, followed by a discussion of the level of success or otherwise of the consortium to address these issues. The paper concludes with lessons learned regarding ethically responsible research with and for AYCs that are likely transferable to other vulnerable research groups and pan-European projects.

• Jezik: Angleški jezik
• Ključne besede: adolescent young carers, ethical issues, European project, participatory research methods, field research
• Vrsta gradiva: Članek v reviji
• Tipologija: 1.01 - Izvirni znanstveni članek
• Organizacija: FDV - Fakulteta za družbene vede
• Status publikacije: Objavljeno
• Različica publikacije: Objavljena publikacija
• Leto izida: 2023
• Št. strani: Str. 125-158
• Številčenje: Vol. 17, no. 2
• PID: 20.500.12556/RUL-145682
• UDK: 17:303
• ISSN pri članku: 1749-6535
• DOI: 10.1080/17496535.2023.2205654
• COBISS.SI-ID: 151249411
• Datum objave v RUL: 08.05.2023

Gradivo je del revije

• Naslov: Ethics & social welfare
• Založnik: Taylor & Francis
• ISSN: 1749-6535
• COBISS.SI-ID: 3166565

Licence

• Licenca: CC BY-NC-ND 4.0, Creative Commons Priznanje avtorstva-Nekomercialno-Brez predelav 4.0 Mednarodna
• Povezava: http://creativecommons.org/licenses/by-nc-nd/4.0/deed.sl
• Opis: Najbolj omejujoča licenca Creative Commons. Uporabniki lahko prenesejo in delijo delo v nekomercialne namene in ga ne smejo uporabiti za nobene druge namene.

Sekundarni jezik

• Jezik: Slovenski jezik
• Ključne besede: etika, raziskovanje, družboslovna metodologija, dolgotrajna oskrba, najstniki

Projekti

• Financer: EC - European Commission
• Številka projekta: 754702
• Naslov: Psychosocial Support for Promoting Mental Health and Well-being among Adolescent Young Carers in Europe
• Akronim: ME-WE