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How can advance care planning support hope in patients with advanced cancer and their families : a qualitative study as part of the international ACTION trial
ID Kodba Čeh, Hana (Avtor), et al.

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Izvleček
Objective: Clinicians' fears of taking away patients' hope is one of the barriers to advance care planning (ACP). Research on how ACP supports hope is scarce. We have taken up the challenge to specify ways in which ACP conversations may potentially support hope. Methods: In an international qualitative study, we explored ACP experiences of patients with advanced cancer and their personal representatives (PRs) within the cluster-randomised control ACTION trial. Using deductive analysis of data obtained in interviews following the ACP conversations, this substudy reports on a theme of hope. A latent thematic analysis was performed on segments of text relevant to answer the research question. Results: Twenty patients with advanced cancer and 17 PRs from Italy, the Netherlands, Slovenia, and the United Kingdom were participating in post-ACP interviews. Three themes reflecting elements that provide grounds for hope were constructed. ACP potentially supports hope by being (I) a meaningful activity that embraces uncertainties and difficulties; (II) an action towards an aware and empowered position; (III) an act of mutual care anchored in commitments. Conclusion: Our findings on various potentially hope supporting elements of ACP conversations provide a constructive way of thinking about hope in relation to ACP that could inform practice.

Jezik:Angleški jezik
Ključne besede:ACTION study, cancer, end of life, dying persons, advance care planning, hope, international study, qualitative research, psycho-oncology, medical oncology
Vrsta gradiva:Članek v reviji
Tipologija:1.01 - Izvirni znanstveni članek
Organizacija:FF - Filozofska fakulteta
Status publikacije:Objavljeno
Različica publikacije:Objavljena publikacija
Leto izida:2022
Št. strani:8 str.
Številčenje:Vol. 31, iss. 6, art. e13719
PID:20.500.12556/RUL-144339 Povezava se odpre v novem oknu
UDK:159.96
ISSN pri članku:1365-2354
DOI:10.1111/ecc.13719 Povezava se odpre v novem oknu
COBISS.SI-ID:124962563 Povezava se odpre v novem oknu
Datum objave v RUL:15.02.2023
Število ogledov:1582
Število prenosov:77
Metapodatki:XML DC-XML DC-RDF
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Gradivo je del revije

Naslov:European journal of cancer care
Skrajšan naslov:Eur. j. cancer care
Založnik:Wiley
ISSN:1365-2354
COBISS.SI-ID:512665625 Povezava se odpre v novem oknu

Licence

Licenca:CC BY-NC-ND 4.0, Creative Commons Priznanje avtorstva-Nekomercialno-Brez predelav 4.0 Mednarodna
Povezava:http://creativecommons.org/licenses/by-nc-nd/4.0/deed.sl
Opis:Najbolj omejujoča licenca Creative Commons. Uporabniki lahko prenesejo in delijo delo v nekomercialne namene in ga ne smejo uporabiti za nobene druge namene.

Sekundarni jezik

Jezik:Slovenski jezik
Ključne besede:raziskava ACTION, rak, zadnji dnevi življenja, umirajoči, vnaprejšnje načrtovanje oskrbe, psihoonkologija, medicinska onkologija

Projekti

Financer:EC - European Commission
Program financ.:FP7
Številka projekta:602541
Naslov:Advance Care Planning; an Innovative Palliative Care Intervention to Improve Quality of Life in Cancer Patients - a Multi-Centre Cluster Randomized Clinical Trial
Akronim:ACTION

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