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Izkušnja dolgega covida z vidika svojcev : vpliv na vsakdanje življenje in odnose
ID Kirn, Nika (Author), ID Babnik, Katarina (Author)

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Abstract
Dosedanje raziskave dolgega covida manj pozornosti namenjajo perspektivi svojcev oz. pomembnih drugih, ki so ključen del vsakodnevnega soočanja z boleznijo. To vrzel smo skušali zapolniti z raziskavo, katere namen je bil opisati, kako pomembni drugi zaznavajo simptome, funkcionalne spremembe ter vpliv bolezni na vsakdanje življenje in odnose svojcev z dolgim covidom. Na podlagi polstrukturiranih intervjujev s sedmimi udeleženkami smo identificirali pet ključnih tem: zaznavanje sprememb pri obolelih (telesnih, kognitivnih in čustvenih), vpliv na vsakodnevno in delovno funkcioniranje, vlogo svojcev kot nosilcev skrbi, procese prilagajanja ter vrzeli v strokovni in širši socialni opori. Svojci so dolgi covid doživljali kot kompleksno, dolgotrajno in nepredvidljivo stanje, zaznamovano z utrujenostjo, kognitivnimi motnjami in zmanjšano zmožnostjo delovanja. Pogosto so prevzemali dodatne odgovornosti, kar je povečalo njihovo obremenitev. Rezultati kažejo, da bolezen pomembno preoblikuje odnose, ki se lahko poglobijo v skrbi za svojca, predstavljajo pa tudi dodatno fizično in psihološko obremenitev. Raziskava tudi opozarja na pomanjkljivo sistemsko oporo svojcem, ki poleg obolelih prav tako potrebujejo informacije in psihološko pomoč. Za učinkovito obravnavo dolgega covida je nujen celosten, interdisciplinaren pristop, ki vključuje tudi družinske člane ter izboljšuje dostop do informacij, opore in prilagoditev v delovnem okolju.

Language:Slovenian
Keywords:dolgi covid, pomembni drugi/svojci, vsakdanje funkcioniranje, breme skrbi, kvalitativna raziskava
Typology:1.16 - Independent Scientific Component Part or a Chapter in a Monograph
Organization:FF - Faculty of Arts
Publication status:Published
Publication version:Version of Record
Place of publishing:Ljubljana
Publisher:Založba Univerze v Ljubljani
Year:2026
Number of pages:Str. 269-296
PID:20.500.12556/RUL-189518 This link opens in a new window
UDC:159.9:616-036.21
COBISS.SI-ID:294227459 This link opens in a new window
Publication date in RUL:08.10.2026
Views:113
Downloads:19
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Record is a part of a monograph

Title:Dolgi covid : onkraj telesnih simptomov
Editors:Anja Podlesek, Gaja Zager Kocjan
Place of publishing:Ljubljana
Publisher:Založba Univerze
Year:2026
ISBN:978-961-297-892-1
COBISS.SI-ID:291448323 This link opens in a new window

Licences

License:CC BY-SA 4.0, Creative Commons Attribution-ShareAlike 4.0 International
Link:http://creativecommons.org/licenses/by-sa/4.0/
Description:This Creative Commons license is very similar to the regular Attribution license, but requires the release of all derivative works under this same license.

Secondary language

Language:English
Abstract:
Previous research on long COVID (PASC) has paid less attention to the perspective of family members or significant others, who play an important role in the everyday coping process with the illness. This gap was addressed in the present study, which aimed to describe how significant others perceive symptoms, functional changes, and the impact of the illness on daily life and relationships of individuals with PASC. Based on semi-structured interviews with seven participants, five key themes were identified: perceptions of changes in the affected individuals (physical, cognitive, and emotional), impacts on daily and work functioning, the role of family members as caregivers, processes of adaptation, and gaps in professional and broader social support. Significant others experienced PASC as a complex, prolonged, and unpredictable condition, characterized by fatigue, cognitive impairments, and reduced functional capacity. They often assumed additional responsibilities, which increased their burden. The results indicate that the illness significantly reshapes relationships, which may deepen through caregiving but also represent an additional physical and psychological strain. The study also highlights insufficient systemic support for significant others, who, alongside patients, require information and psychological assistance. Effective management of PASC therefore requires a comprehensive, interdisciplinary approach that includes family members and improves access to information, support, and workplace accommodations.

Keywords:long COVID (PASC), significant others/family members, daily functioning, caregiver burden, qualitative study

Projects

Funder:ARIS - Slovenian Research and Innovation Agency
Project number:J5-4591
Name:Dolgotrajni covid kot zapuščina pandemije: psihološki simptomi, psihosocialni dejavniki in posledice

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