20.500.12556/RUL-189518 Izkušnja dolgega covida z vidika svojcev vpliv na vsakdanje življenje in odnose Dosedanje raziskave dolgega covida manj pozornosti namenjajo perspektivi svojcev oz. pomembnih drugih, ki so ključen del vsakodnevnega soočanja z boleznijo. To vrzel smo skušali zapolniti z raziskavo, katere namen je bil opisati, kako pomembni drugi zaznavajo simptome, funkcionalne spremembe ter vpliv bolezni na vsakdanje življenje in odnose svojcev z dolgim covidom. Na podlagi polstrukturiranih intervjujev s sedmimi udeleženkami smo identificirali pet ključnih tem: zaznavanje sprememb pri obolelih (telesnih, kognitivnih in čustvenih), vpliv na vsakodnevno in delovno funkcioniranje, vlogo svojcev kot nosilcev skrbi, procese prilagajanja ter vrzeli v strokovni in širši socialni opori. Svojci so dolgi covid doživljali kot kompleksno, dolgotrajno in nepredvidljivo stanje, zaznamovano z utrujenostjo, kognitivnimi motnjami in zmanjšano zmožnostjo delovanja. Pogosto so prevzemali dodatne odgovornosti, kar je povečalo njihovo obremenitev. Rezultati kažejo, da bolezen pomembno preoblikuje odnose, ki se lahko poglobijo v skrbi za svojca, predstavljajo pa tudi dodatno fizično in psihološko obremenitev. Raziskava tudi opozarja na pomanjkljivo sistemsko oporo svojcem, ki poleg obolelih prav tako potrebujejo informacije in psihološko pomoč. Za učinkovito obravnavo dolgega covida je nujen celosten, interdisciplinaren pristop, ki vključuje tudi družinske člane ter izboljšuje dostop do informacij, opore in prilagoditev v delovnem okolju. Previous research on long COVID (PASC) has paid less attention to the perspective of family members or significant others, who play an important role in the everyday coping process with the illness. This gap was addressed in the present study, which aimed to describe how significant others perceive symptoms, functional changes, and the impact of the illness on daily life and relationships of individuals with PASC. Based on semi-structured interviews with seven participants, five key themes were identified: perceptions of changes in the affected individuals (physical, cognitive, and emotional), impacts on daily and work functioning, the role of family members as caregivers, processes of adaptation, and gaps in professional and broader social support. Significant others experienced PASC as a complex, prolonged, and unpredictable condition, characterized by fatigue, cognitive impairments, and reduced functional capacity. They often assumed additional responsibilities, which increased their burden. The results indicate that the illness significantly reshapes relationships, which may deepen through caregiving but also represent an additional physical and psychological strain. The study also highlights insufficient systemic support for significant others, who, alongside patients, require information and psychological assistance. Effective management of PASC therefore requires a comprehensive, interdisciplinary approach that includes family members and improves access to information, support, and workplace accommodations. dolgi covid pomembni drugi/svojci vsakdanje funkcioniranje breme skrbi kvalitativna raziskava long COVID (PASC) significant others/family members daily functioning caregiver burden qualitative study true false true Založba Univerze v Ljubljani Slovenski jezik Angleški jezik Neznano 2026-10-08 11:23:18 2026-10-08 11:23:25 2026-10-10 03:49:57 0000-00-00 00:00:00 2026 0 Ljubljana 0 Str. 269-296 0000-00-00 Zaloznikova Objavljeno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 159.9:616-036.21 294227459 291448323 12+Nika+Kirn+in+Katarina+Babnik.pdf 12+Nika+Kirn+in+Katarina+Babnik.pdf 1 A679A7FF1DCBC6B707AC92B3A43F2DD7 93d4496d772f1cdb980ffba741530665dac9fdcacb900399fc81cff7a076c02e e62a5185-c2f9-11f1-8bc5-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=250133 https://ebooks.uni-lj.si/ZalozbaUL/catalog/book/962/chapter/4949 1 c56cdf09-c2f9-11f1-8bc5-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=250131 Filozofska fakulteta 0 0 0