Potrebe ljudi z demenco in njihovih sorodnikov v občini Žalec : magistrsko delo

Privošnik, Nina (avtor), Mali, Jana (mentor)

Demenca je hitro naraščajoč izziv v današnjem času in glavni razlog odvisnosti od pomoči drugega med starejšo populacijo. Socialno delo ima pomembno vlogo pri raziskovanju in razumevanju potreb ljudi z demenco in njihovih bližnjih. V magistrskem delu sem raziskala tri glavna raziskovalna vprašanja, in sicer potrebe ljudi z demenco, potrebe sorodnikov ljudi z demenco in sporazumevanje z ljudmi z demenco v občini Žalec. Sama sem del te skupnosti, zato me zanima, kako je oskrba ljudi z demenco v občini Žalec razvita. V teoretičnem delu je demenca opredeljena, predstavljene so vrste demence, razvoj dolgotrajne oskrbe in potrebe ljudi v dolgotrajni oskrbi, prispevek socialnega dela k pomoči ljudem z demenco in njihovim sorodnikom ter naloge socialnega delavca pri delu z ljudmi z demenco in njihovimi sorodniki. V zadnjem delu pa so opisane potrebe ljudi z demenco in njihovih sorodnikov ter sporazumevanje z ljudmi z demenco. V kvalitativni raziskavi sem uporabila metodo spraševanja ter metodo fokusnih skupin. V fokusni skupini je sodelovalo 16 ljudi iz desetih organizacij, ki delujejo na področju dolgotrajne oskrbe ljudi z demenco v občini Žalec. Teme fokusnih skupin, na katere sem se osredotočala, so specifične potrebe ljudi z demenco ter sporazumevanje z ljudmi z demenco. Poleg fokusne skupine sem opravila devet delno strukturiranih intervjujev. Štirje intervjuji so opravljeni z zaposlenimi s področja oskrbe ljudi z demenco, tri intervjuje sem opravila s sorodniki ljudi z demenco, ker pa je v socialnem delu ključnega pomena tudi uporabniška perspektiva, sem opravila intervjuja z dvema osebama z demenco. Teme intervjujev so se navezovale na potrebe ljudi z demenco, potrebe sorodnikov ljudi z demenco ter na komunikacijo z ljudmi z demenco. Ugotovila sem, da imajo ljudje z demenco in njihovi sorodniki veliko potreb. Največkrat omenjena je potreba po dodatnih storitvah v domačem okolju in po povečanju obsega storitev. Večina ljudi z demenco potrebuje 24-urno pomoč, ki vključuje potrebo po domačem vzdušju, druženju, razumevanju, bližini, zavetju, samostojnosti in varnosti. Sorodniki potrebujejo usmerjanje in informiranje o demenci, o iskanju ustrezne pomoči za človeka z demenco, sami pa so velikokrat preobremenjeni, poleg skrbi za človeka imajo pogosto finančne težave zaradi plačevanja oskrbe. Ugotovila sem, da imajo ljudje z demenco izrazito željo po sporazumevanju. Pri tem moramo biti pozorni na besedno in nebesedno sporazumevanje. Vrline, ki so pri tem pomembne, pa so empatija, strpnost, prijaznost, umirjenost in sproščenost.

• Jezik: Slovenski jezik
• Ključne besede: demenca, potrebe, sorodniki, ljudje z demenco, sporazumevanje
• Vrsta gradiva: Magistrsko delo/naloga
• Tipologija: 2.09 - Magistrsko delo
• Organizacija: FSD - Fakulteta za socialno delo
• Kraj izida: Ljubljana
• Založnik: [N. Privošnik]
• Leto izida: 2023
• Št. strani: 82 str.
• PID: 20.500.12556/RUL-146701
• UDK: 364.4:616.892.3
• COBISS.SI-ID: 164121091
• Datum objave v RUL: 08.06.2023

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: The Needs of People with Dementia and their Relatives in the Municipality of Žalec

Izvleček

Dementia is a rapidly growing challenge in today's world and the main reason for dependence on the help of others among the older population. Social work plays an important role in researching and understanding the needs of people with dementia and their loved ones. In my master's thesis, I explored three main research questions: the needs of people with dementia, the needs of relatives of people with dementia, and communication with people with dementia in the municipality of Žalec. As a member of this community, I am interested in how care for people with dementia is developed in the Žalec municipality. The theoretical part of my thesis presents an overview of dementia, types of dementia, long-term care development, needs of people in long-term care, the contribution of social work to help people with dementia and their relatives, and the tasks of social workers when working with people with dementia and their relatives. In the final part, I described the needs of people with dementia and their relatives as well as communication with people with dementia. For qualitative research, I used the interviewing method and focus group method. Sixteen people from ten organizations working in the field of long-term care for people with dementia in the Žalec municipality participated in the focus group. The focus was on the specific needs of people with dementia and communication with people with dementia. In addition to the focus group, I conducted nine partially structured interviews. Four interviews were conducted with employees in the field of caring for people with dementia, three interviews were conducted with relatives of people with dementia, and two interviews were conducted with people with dementia. The interview topics focused on the needs of people with dementia, the needs of relatives of people with dementia, and communication with people with dementia. I found that people with dementia and their relatives have many needs. The most frequently mentioned need was for additional services in the home environment and an increase in the scope of services. Most people with dementia require 24-hour assistance, which includes the need for a home-like atmosphere, socializing, understanding, proximity, shelter, independence, and safety. Relatives need guidance and information about dementia itself and finding appropriate help for a person with dementia. They are often overwhelmed, and in addition to caring for the person, they often have financial difficulties due to the cost of care. I found that people with dementia have a strong desire to communicate. We must pay attention to verbal and nonverbal communication, and important virtues in this regard are empathy, tolerance, kindness, calmness, and relaxation.

• Ključne besede: dementia, needs, relatives, people with dementia, communication