Prosti čas družine otroka z Aspergerjevim sindromom : magistrsko delo

Polanc, Danijela (avtor), Poštrak, Milko (mentor)

V magistrskem delu se navezujem na otroke z Aspergerjevim sindromom (AS), njihove starše in sorojence. Veliko pozornosti sem namenila prilagajanju družinskih članov, njihovim odnosom, organiziranosti njihovega vsakdana in kakovosti prostega časa. V teoretičnem uvodu sem opisala motnje avtističnega spektra, obremenjenost družine in obvladovanje stresa v družini, prosti čas v družini otrok z AS ter smernice za socialne delavce o pomoči tem družinam. V empiričnem delu je predstavljena kvalitativna raziskava, kjer sem s pomočjo intervjujev raziskala vpliv otroka z AS na družino, na dinamiko njenega prostega časa, kakšne prilagoditve, usklajevanja in odrekanja so potrebna, da taka družina funkcionalno zmore preživeti v sodobni družbi. Rezultati so pokazali, da se družine, katerih otroci prejemajo strokovno pomoč ustreznih institucij, kljub začetnemu šoku, stiski in občutku osamljenosti ob diagnozi počutijo bolj varne zaradi nudene podpore. Za ta občutek varnosti je bila družina otroka, ki nikoli ni dobil uradne diagnoze, prikrajšana. Prosti čas je za družine z AS zelo težko dosegljiv, saj vse intervjuvane družine navajajo, da imajo največji vpliv na prosti čas šolske obveznosti. Opaženo je bilo, da so določeni nasveti in priporočila strokovnih delavcev v šoli koristili staršem tudi pri delu z otrokom v njegovem prostem času ter imeli pozitiven vpliv pri osebnem razvoju otroka z AS, razreševanju njegovih notranjih konfliktov in pomirjanju v stresnih situacijah. Ključne prilagoditve se nanašajo na možnost pomoči družinam otrok z AS tudi v prostem času. Pomoč bi se jim lahko nudila ob diagnozi vzporedno z urami dodatne strokovne pomoči, zakonodajna vključitev socialnih delavcev, da bi opravljali dodatno strokovno pomoč, ne le svetovalnega dela in izboljšanje nudene brezplačne pomoči staršem s strani ustreznih institucij.

• Jezik: Slovenski jezik
• Ključne besede: Aspergerjev sindrom, avtizem, partnerski odnos, družina, prosti čas
• Vrsta gradiva: Magistrsko delo/naloga
• Tipologija: 2.09 - Magistrsko delo
• Organizacija: FSD - Fakulteta za socialno delo
• Kraj izida: Ljubljana
• Založnik: [D. Polanc]
• Leto izida: 2023
• Št. strani: 104 str.
• PID: 20.500.12556/RUL-146462
• UDK: 364.4-053.2/.6:616-036
• COBISS.SI-ID: 164026115
• Datum objave v RUL: 02.06.2023

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: Leisure time of the familiy of a child with Asperger's syndrome

Izvleček

Master's thesis relates to children with Asperger’s syndrome (AS), their parents and siblings. I focused on the adaptation of family members, their relations, the organization of their everyday life and the quality of leisure time, as much as they could even have it with a child diagnosed with AS. In the theoretical introduction, I described autism spectrum disorders, family burden and stress management in the family, leisure time in the family of children with AS and guidelines on how a social worker can help these families. In the empirical part, qualitative research is presented, where, with the help of interviews, I investigated the impact of a child with AS on the family, on the dynamics of their leisure time, what adjustments, coordination and sacrifices are necessary for such a family to be able to functionally survive in modern society. The results showed that families whose children receive professional help from relevant institutions, despite the initial shock, distress and feeling of isolation upon diagnosis, feel safer due to the support offered. The family of the child who never received an official diagnosis was deprived of this sense of security. Leisure time is very hard to come by for families with AS, as all interviewed families state that school obligations have the greatest influence on leisure time. It was observed that certain advice and recommendations from professionals at the school, were useful to parents when working with the child in his leisure time and had a positive impact on the personal development of the child with AS, resolving his internal conflicts and calming him down in stressful situations. The key adjustments relate to the possibility of helping the families of children with AS even in their leisure time, which could be offered to them upon diagnosis in parallel with the hours of additional professional help, the legislative inclusion of social workers to provide additional professional help, not just advisory work, and the improvement of the offered free assistance to parents by relevant institutions.

• Ključne besede: Asperger's syndrome, autism, partnership, family, leisure time