Doživljanje partnerskega odnosa ob soočanju z rojstvom otroka s posebnimi potrebami : magistrsko delo

Matjašič, Laura (avtor), Simonič, Barbara (mentor)

Ko par načrtuje rojstvo svojega otroka, ga ob tem spremljajo občutki sreče, pozitivne vznemirjenosti, radovednost in veselja. V svojih mislih par ustvari idealno podobo svojega sina ali hčerke. Ob takšnem veselem vznemirjenju ne pričakujejo, da bi lahko šlo kaj narobe, še posebej, če je med nosečnostjo vse v redu. Ko pa se rodi otrok s posebnimi potrebami, se »idealna« podoba otroka v trenutku poruši. Teorija in izkušnje strokovnjakov pri delu s pari otrok s posebnimi potrebami poročajo, da se pari kot starši v tistem trenutku srečajo z najbolj bolečimi občutji. Najprej se pojavi faza šoka, ki ji lahko sledijo različni neprijetni občutki žalosti, jeze, tesnobe. Osrednja tematika magistrskega dela je namenjena spoznanju, s kakšnimi občutki se spopadajo starši otrok s posebnimi potrebami, stresu v družini ob rojstvu otroka s posebnimi potrebami ter kako ob vsem tem funkcionira partnerski odnos. S pomočjo psihološke fenomenološke metode je avtorica s pomočjo pol strukturiranih intervjujev pridobila vpogled v doživljanje parov ob rojstvu otroka s posebnimi potrebami, kako je ta sprememba vplivala na partnerski odnos in kako sta se starša kot partnerja soočala s sprejetjem posebnih potreb svojega otroka ter kaj jima je ob tem najbolj pomagalo. Avtorica je odgovore na glavni vprašanji, kaj doživljajo pari, ko se jim poruši »podoba« idealnega otroka in kako to doživljanje vpliva na partnerski odnos, v raziskavi pridobila s pomočjo sedmih parov, ki so tudi starši otroka s posebnimi potrebami. Rezultati so pokazali, da se najprej pojavi stanje šoka. Pri nekaterih udeležencih so se pojavili še občutki jeze, žalosti, tesnobe, razočaranja, negotovosti, medtem ko so nekateri poročali, da so se čutili vržene v to situacijo in niso razmišljali o ničemer drugem. Vsem udeležencem je v tej težki situaciji veliko pomenila predvsem podpora partnerja, s čimer so se tudi lažje soočili s posebnimi potrebami svojega otroka. Kaj pomeni sprejeti posebne potrebe otroka, je težko opredeliti, so pa rezultati raziskave pokazali, da je za to potreben določen čas, ki je odvisen od vsakega posameznika posebej. Nekateri so posebne potrebe otroka sprejeli takoj, nekateri so za to potrebovali tudi do treh let, so pa poudarili, da posebnih potreb svojega otroka ni mogoče nikoli v celoti sprejeti. Razlogi, da so starši lažje sprejeli posebne potrebe otoka kot del vsakdana, pa so napredek otroka, rojstvo naslednjega otroka, sodelovanje v partnerskem odnosu in njegova trdnost ter da so enostavno sprejeli nalogo, ki jim je bila dodeljena

• Jezik: Slovenski jezik
• Ključne besede: posebne potrebe otrok, družina z otrokom s posebnimi potrebami, starševski stres, partnerstvo, fenomenološka raziskava.
• Vrsta gradiva: Magistrsko delo/naloga
• Tipologija: 2.09 - Magistrsko delo
• Organizacija: TEOF - Teološka fakulteta
• Kraj izida: Ljubljana
• Založnik: [L. Matjašič]
• Leto izida: 2019
• Št. strani: IV, 82, II str.
• PID: 20.500.12556/RUL-106811
• UDK: 159.922.2:316.36(043.2)
• COBISS.SI-ID: 10935811
• Datum objave v RUL: 18.03.2019

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: Partnership experiencing in dealing with the birth of a child with special needs

Izvleček

When expecting the birth of a child, a couple is consumed with happiness, positive excitement, curiosity and joy. In their minds, the couple makes an ideal image of their unborn child. They do not expect that something could go wrong, especially if the pregnancy is normal and without complications. When a child with special needs is born, the ideal image of a child no longer exists. In theory, and according to the experiences of workers dealing with couples who have children with special needs, the couples are confronted with the most painful feelings. At first, the shock appears, followed by various unpleasant feelings, like sadness, anger and anxiety. This Masters Thesis stresses the feelings with which the parents of a child with special needs are confronted with, the stress in the family, when the child with special needs is born, and focuses on how the parents’ relationship functions. By the help of phenomenological method, the author in the semi-structured interviews gains insight into what parents are going through when a child with special needs is born, how the change affects the relationship between parents, how the parents accepted the special needs of the child and what helped them the most. The author obtained answers to two main questions: “What do couples go through, when an image of an ideal child no longer exists?” and “How is this experience affecting their relationship?” with the help of seven couples, who are parents of a child with special needs. The results show that the phase of shock appears first. Some of the participants talk about anger, sadness, anxiety, disappointment and insecurity, while some of them reported that they were thrown into the situation and they did not have time to think of anything else. To all of them, the support of the partner meant a lot in this difficult situation. With a partner by their side, being confronted with the special needs of their child was easier. It is hard to define; what does the acceptance of special needs of a child mean, but the results of the research show that it takes time to accept the aforementioned, and it depends on each individual separately. Some of them accepted the special needs of a child instantly, some of them needed more time, even up to three years. However, all of them said that the special needs of your child can never be entirely accepted. As reasons why they accepted the special needs easier, the parents stated: progress of the child, the birth of the next child, cooperation, stability of the relationship and acceptance of the situation that they are in

• Ključne besede: children's special needs, family of a child with special needs, stress in the family with special needs, partnership, phenomenological research.