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Delo strokovnih delavcev z otrokom s cistično fibrozo v vrtcu in osnovni šoli : magistrsko delo
Pencelj, Anja (Avtor), Žgur, Erna (Mentor) Več o mentorju... Povezava se odpre v novem oknu

URLURL - Predstavitvena datoteka, za dostop obiščite http://pefprints.pef.uni-lj.si/5078/ Povezava se odpre v novem oknu

Izvleček
Cistična fibroza je manj poznana redka genetska bolezen, v tuji in domači literaturi pa je večkrat predstavljena zlasti z medicinskega vidika. Zato se strokovni delavci pri delu z otroki s cistično fibrozo lahko soočajo s številnimi vprašanji in dilemami, ki so posledica nepoznavanja te bolezni ter njenega vpliva na vzgojo in izobraževanje otrok s cistično fibrozo. Cilj magistrskega dela je bil ugotoviti, kje strokovni delavci iz vrtcev in osnovnih šol pridobijo ustrezne smernice za delo z otroki s cistično fibrozo, kako jim prilagajajo delo ter kakšne informacije o delu z otroki s cistično fibrozo bi si še želeli pridobiti. V magistrskem delu smo želeli poudariti predvsem pomen sodelovanja med strokovnimi delavci, medicinskim osebjem in družinami ter ne nazadnje vlogo vrstnikov oz. sošolcev otroka s cistično fibrozo pri lažjem vključevanju v vzgojno-izobraževalni proces. Namreč vrstniki imajo lahko pomemben vpliv na samopodobo otrok, hkrati pa jim lahko s preprostimi stvarmi, kot sta denimo fotokopiranje zapiskov ali nošenje torbe, močno olajšajo šolanje. V empiričnem delu smo s pomočjo anketnega vprašalnika preverjali, kako 21 strokovnih delavcev iz treh vrtcev in treh osnovnih šol v Sloveniji načrtuje, izvaja, prilagaja in evalvira vzgojno-izobraževalno delo za otroke s cistično fibrozo ter kje dobijo napotke za delo z njimi. Raziskali smo tudi, kakšne informacije v zvezi z delom z otroki s cistično fibrozo bi si še želeli pridobiti in ali pri tem obstajajo razlike med strokovnimi delavci v vrtcu in osnovni šoli. Pri raziskavi smo uporabili opisno statistiko in Kullbackov 2Î preizkus. Rezultati raziskave so pokazali, da ne obstajajo statistično pomembne razlike med strokovnimi delavci v osnovnih šolah in vrtcih glede na to, s kom sodelujejo pri načrtovanju, izvajanju in evalvaciji vzgojno-izobraževalnega dela. Večina anketirancev pri svojem delu največ sodeluje s starši in učitelji oziroma vzgojitelji. Večina strokovnih delavcev informacije o cistični fibrozi pridobi na spletu, nihče od anketirancev pa se še ni udeležil izobraževanj na to temo. Rezultati so pokazali tudi, da večina strokovnih delavcev s starši otrok s cistično fibrozo sodeluje le po potrebi. Prilagoditvi, ki ju anketiranci največkrat uporabljajo pri delu z otroki s cistično fibrozo, sta zračenje igralnice oziroma učilnice ter pomoč pri jemanju encimov. Ugotovili smo, da med strokovnimi delavci v osnovni šoli in vrtcu glede na smer izobrazbe in leta izkušenj z otroki s cistično fibrozo ne obstajajo statistično pomembne razlike pri izbiri informacij, ki bi si jih želeli pridobiti o cistični fibrozi. Na podlagi dobljenih rezultatov v sklepnem delu magistrskega dela podajamo smernice za strokovne delavce, ki jim bodo v pomoč pri načrtovanju in izvajanju vzgojno-izobraževalnega dela z otroki s cistično fibrozo. Z magistrskim delom želimo prispevati k dvigu kakovosti vzgoje in izobraževanja otrok s to boleznijo v vrtcih in osnovnih šolah.

Jezik:Slovenski jezik
Ključne besede:cistična fibroza, vrtec, osnovna šola, strokovni delavci, smernice
Vrsta gradiva:Magistrsko delo/naloga (mb22)
Tipologija:2.09 - Magistrsko delo
Organizacija:PEF - Pedagoška fakulteta
Leto izida:2018
Založnik:[A. Pencelj]
Št. strani:60 str.
UDK:376:616-056.7(043.2)
COBISS.SI-ID:12003913 Povezava se odpre v novem oknu
Število ogledov:452
Število prenosov:123
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Sekundarni jezik

Jezik:Angleški jezik
Naslov:Working with the child with cystic fibrosis in kindergarten and primary school
Izvleček:
Cystic fibrosis is a less well-known rare genetic disease that is often presented in foreign and domestic literature in particular from a medical point of view. Therefore, professionals working with children with cystic fibrosis can face many questions and dilemmas that are due to the ignorance of this disease and its impact on the education and education of children with cystic fibrosis. The main goal of the master's thesis was to find out where professional staff from kindergartens and elementary schools obtain appropriate guidelines for working with children with cystic fibrosis, how they adapt their work, and what kind of information related to working with children with cystic fibrosis would still want to obtain. In the master's thesis, we especially wanted to emphasize the importance of cooperation between professional staff, medical staff and families, and not least the role of peers, classmates of a child with cystic fibrosis for easier integration into the educational process. They may have a significant influence on the self-image of children, but at the same time, they can use simple things such as photocopying notes, carrying a bag, etc. greatly ease schooling. In the empirical part, using the questionnaire, we examined how 21 professional workers from three kindergartens and three primary schools in Slovenia plan, implement, adapt and evaluate educational work for children with cystic fibrosis and where to get instructions for working with them. We also investigated what kind of information regarding work with children with cystic fibrosis they would like to acquire, and if there are differences between professional staff in kindergarten and elementary school. The study used descriptive statistics and Kullback 2Î test. The results of the research showed that there are no statistically significant differences between professional staff in elementary schools and kindergartens depending on who they are involved with in planning, implementing and evaluating educational work. Most of the respondents mostly work with their parents and teachers or educators. Most professionals gain information about cystic fibrosis online, and none of the respondents has attended training on this subject. The results also show that most professionals with parents of children with cystic fibrosis participate only when needed. The adaptation most frequently used by the respondents when working with children with cystic fibrosis is the ventilation of a casino or classroom and enzyme support. We have found that there are no statistically significant differences between professional staff in elementary school and kindergarten in the selection of information that they would like to obtain about cystic fibrosis, according to the name of education and years of experience with children with cystic fibrosis. On the basis of the obtained results in the final part of the master's thesis, we provide guidelines for professional workers who will assist in the planning and implementation of educational work with children with cystic fibrosis. With the master's thesis, we want to contribute to raising the quality of education and education of children with this disease in kindergartens and elementary schools.

Ključne besede:backward child, education, otrok s posebnimi potrebami, vzgoja in izobraževanje

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