Kakovost življenja otroka in mladostnika z epilepsijo : pregled literature

Korenčan, Ana (author), Vettorazzi, Renata (mentor)

Uvod: Epilepsija je pogosta kronična nevrološka motnja pri otrocih in mladostnikih, ki vpliva na kakovost življenja. Vsak posameznik si pojem z zdravjem povezana kakovost življenja drugače razlaga. Obsega namreč različna področja življenja, katerim vsak posameznik pripisuje različen vpliv na kakovost življenja. Poleg fizičnega vpliva epilepsije moramo biti pri otrocih in mladostnikih pozorni tudi na psihosocialno determinanto, saj potekajo procesi socializacije in razvoja neodvisnosti in avtonomije. Pomemben vpliv na zagotavljanje kakovosti življenja imajo tudi antiepileptična zdravila ter njihovi stranski učinki, ki otrokom pogosto predstavljajo težave. Namen Namen diplomskega dela je raziskati, kaj predstavlja pojem kakovost življenja, ugotoviti, ali epilepsija vpliva na psihosocialno in fizično determinanto kakovosti življenja ter proučiti, ali epilepsija in antiepileptičnih zdravil vplivajo na kognitivne sposobnosti otrok in mladostnikov z epilepsijo. Metode dela: Uporabljena je bila opisna ali deskriptivna metoda dela. Do literature smo dostopali preko podatkovnih baz MEDLINE, CINAHL in ScienceDirect. Ob upoštevanju vključitvenih in izključitvenih kriterijev smo izbrali 43 člankov, ki smo jih podrobneje pregledali. Rezultati: Rezultati so pokazali multidimenzionalnost pojma z zdravjem povezana kakovost življenja ter vpliv epilepsije na psihosocialno in fizično determinanto zagotavljanja kakovosti življenja. Rezultati tudi potrjujejo vpliv epilepsije in antiepileptičnih zdravil na kognitivne sposobnosti otrok in mladostnikov z epilepsijo. Razprava in sklep: S pregledom literature smo ugotovili, da pojem z zdravjem povezana kakovost življenja obsega več področij, na katerih se odraža kakovost življenja in da otroci in mladostniki psihosocialnemu vplivu epilepsije na kakovost življenja pripisujejo večji pomen kot fizičnemu vplivu. Otroci in mladostniki se nahajajo v življenjskem obdobju, kjer so odnosi z vrstniki in osamosvajanje še posebej pomembni za izgradnjo njihove osebnosti in zdrave samopodobe. Pomembno je prepoznavati dejavnike, ki negativno vplivajo na kakovost življenja in izvajati ustrezne intervencije, da zmanjšamo njihov vpliv ter tako otrokom in mladostnikom zagotovimo čim višjo kakovost življenja.

• Language: Slovenian
• Keywords: epilepsija, kakovost življenja, otrok, mladostnik, kognitivna funkcija
• Work type: Bachelor thesis/paper
• Organization: ZF - Faculty of Health Sciences
• Year: 2017
• PID: 20.500.12556/RUL-94504
• COBISS.SI-ID: 5299819
• Publication date in RUL: 01.09.2017

Secondary language

• Language: English
• Title: Quality of life in child and adolescent with epilepsy : literature review

Abstract

Introduction: Epilepsy is a common chronic neurological disorder in children and adolescents, which affects on quality of life. Perception of the term health related quality of life is diffrent from person to person. That term is comprising different areas of life, which impact on quality of life is determined individually by person. In children and adolescents with epilepsy we have to pay attention not only on the physical domain, but also the psychosocial domain, because of the underway of the processes of socialization and independence and autonomy development. Antiepileptic drugs and their side effects also have an important impact on quality of life, because they causes many problems which chidlren and adolescents have. Purpose: The purpose of diploma paper is to explore, what the term quality of life means and to figure out if epilepsy have an impact on psychosocial and physical determinat of quality of life. We also wanted to consider if epilepsy and antiepileptic drugs have an impact on cognitive functions of children and adolescents with epilepsy. Methods: We used the decriptive method. We accesed to the literature by MEDLINE, CINAHL and ScienceDirect databases. With taking into account of the including and excluding criteria we choosed 43 articles, which was closely owerwieved. Results: The results showed tne multidimesionality of the term quality of life and the impact of epilepsy on psichosocial and physical determinant of providing quality of life. The results also confirmed the impact of epilepsy and antiepileptic drugs on cognitive functions of children and adolescents with epilepsy. Discussion and conclusion: With the literature rewiew we found out, that the term health related quality of life comprise many areas, which reflects the quality of life and that the children and adolescents reffer bigger impact of the psychosocial domain to the quality of life than the physical domain. Children and adolescents are in specific lifetime, when peer relations and independence development are especialy important for construction of their personality and healthy self-esteem. We have to recognize the negative effects of epilepsy on quality of life and use appropiate interventions to reduce their impact and provide children and adolescents as hihg quality of life as we can.

• Keywords: epilepsy, quality of life, child, adolescent, cognitive function