Nudenje podpore pacientom in svojcem v paliativni oskrbi : diplomsko delo

Božić Jakovljević, Sandra (author), Gogova, Tina (mentor), Thaler, Darja (reviewer)

Uvod: Umiranje in smrt sta neizogibna procesa v življenju, ki ju pogosto spremljajo močna čustva in občutek nemoči. Proces, ki ga mnogi doživljajo kot neuspeh, zahteva pozornost in strokovno podporo, da olajša trpljenje pacientov in njegovih bližnjih. Paliativna oskrba pomeni celostno skrb za umirajočega in njegovo družino s poudarkom na lajšanju trpljenja, zagotavljanju dostojanstva ter izpolnjevanju potreb pacienta in bližnjih ob koncu življenja. Namen: Namen diplomskega dela je obravnavati paliativno oskrbo in delo medicinske sestre ter raziskati, kako se pacienti in bližnji soočajo s slabo napovedjo, razjasniti vlogo medicinskih sester med sporočanjem ter poiskati načine za podporo pacientom in bližnjim. Metode dela: Pri pisanju diplomskega dela je bila uporabljena deskriptivna metoda dela z analizo strokovne in znanstvene literature od leta 2013 naprej. Iskanje je potekalo s pomočjo spletnega portala Digitalne knjižnice v Ljubljani v podatkovnih bazah Medline(Pubmed) ter prek iskalnika Google učenjak, in sicer v slovenskem in angleškem jeziku. Rezultati: Ugotovili smo, da je sporočanje slabih novic eden najtežjih trenutkov v paliativni oskrbi, pri čemer sta sočutna komunikacija in podpora pacientu ter bližnjim ključnega pomena. Medicinske sestre imajo v tem procesu bistven pomen; so tiste, ki pacienta in bližnje spremljajo od začetka do konca oskrbe ter skrbijo za njihove fizične in čustvene potrebe. S svojim izražanjem empatije, občutkom varnega odnosa ter strokovno pomočjo pomagajo pri soočanju z boleznijo ter prispevajo k izboljšanju kakovosti preostanka življenja. Razprava in zaključek: Ugotovili smo, da paliativna oskrba predstavlja pomemben del pri zagotavljanju kakovostnega in dostojanstvenega življenja pacientov z neozdravljivo boleznijo. Medicinske sestre imajo nepogrešljivo vlogo kot povezovalni člen med pacienti, njegovimi bližnjimi in njimi, pri čemer njihovo delo vključuje tako fizično kot čustveno podporo, komunikacijo in pomoč pri sprejemanju odločitev. Kakovostna komunikacija in empatičen pristop pomembno prispevata k izboljšanju podpore pacientom in bližnjim, kar vodi v boljše razumevanje ter višjo kakovost življenja v najtežjih trenutkih.

• Language: Slovenian
• Keywords: diplomska dela, zdravstvena nega, skrb za umirajočega, podpora pacientu in njegovim bližnjim
• Work type: Bachelor thesis/paper
• Typology: 2.11 - Undergraduate Thesis
• Organization: ZF - Faculty of Health Sciences
• Place of publishing: Ljubljana
• Publisher: [S. Božić Jakovljević]
• Year: 2025
• Number of pages: 35 str.
• PID: 20.500.12556/RUL-168347
• UDC: 616-083
• COBISS.SI-ID: 232073731
• Publication date in RUL: 10.04.2025

Secondary language

• Language: English
• Title: Providing support to patients and relatives in palliative care : diploma work

Abstract

Introduction: Dying and death are inevitable processes in life, often accompanied by strong emotions and feelings of helplessness. A process that many perceive as a failure requires attention and professionl support to alleviate the suffering of patients and their loved ones. Palliative care provides comprehensive support for the dying and their families, focusing on relieving suffering, ensuring dignity, and addressing the needs of both the patient and their loved ones at the end of life. Purpose: The aim of this thesis is to present palliative care and the role of nurses, explore how patients and their families cope with a poor prognosis, clarify the role of nurses in delivering bad news, and identify ways to support patients and their loved ones. Methods: A descriptive research method was used in this thesis, analyzing professional and scientific literature published since 2013. The literature search was conducted using the Digital Library of Ljubljana, the Medline (PubMed) database, and Google Scholar, in both Slovenian and English. Results: We found that delivering bad news is one of the most challenging moments in palliative care, where compassionate communication and support for the patient and their loved ones are of crucial importance. Nurses play a key role in this process, as they accompany patients and emotional needs. Through empathy, a sense of safety, and professional assistance, nurses help patients and their loved ones cope with illness and contribute to improving the quality of remaining life. Discussion and conclusion: Our findings indicate that palliative care is essential in ensuring a high-quality and dignified life for patients with incurable diseases. Nurses play an indispensable role as a bridge between patients, their loved ones, and healthcare professionals, providing physical and emotional support, communication and quidance in decision-making. High-quality communication and an empathetic approach significantly enhance support for patients and their families, leading to better understanding and an improved quality of life during the most difficult moments.

• Keywords: diploma theses, nursing care, end-of-life care, patients and family support