Pomen dolgotrajne oskrbe za ljudi z demenco

Sarjaš, Tamara (author), Mali, Jana (mentor)

V sodobnem času se pogosteje srečujemo s pojmom dolgotrajne oskrbe v naših življenjih. Prepoznavamo vedno večjo potrebo po dolgotrajni oskrbi, ki omogoča starim ljudem in ljudem z demenco možnost, da ostajajo v svojem domačem okolju, dokler so zmožni živeti sami ali s pomočjo sorodnikov. Da imajo ljudje z demenco možnost živeti v svojem domačem okolju, je potrebno raziskovati njihove potrebe, zmožnosti in sposobnosti. Potrebno je podpreti socialno mrežo posameznika ter izčrpati vse možnosti oskrbe na domu, ki mu pripadajo.. Pomembno vlogo pri pomoči ljudem z demenco in tudi njihovim sorodnikom imajo socialni delavci, ki pripomorejo, da vsi udeleženi v procesu pomoči prejmejo informacije, napotke o tem, kakšne so njihove pravice, na koga se lahko obrnejo za dodatno pomoč. Socialni delavci so v procesu pomoči aktivni in pripomorejo, da se v ospredje res postavi človeka z demenco. Da bi ljudem z demenco omogočili čim daljše življenje v domačem okolju, je potrebno sestaviti zemljevid dolgotrajne oskrbe ljudi z demenco, ki prikaže, katere organizacije lahko pomagajo, koordinirajo in spremljajo človeka z demenco v njegovem okolju. Le tako je v ospredje postavljena individualizacija dolgotrajne oskrbe. Namen raziskave je bil ugotoviti, kakšne so potrebe starih ljudi in ljudi z demenco v občinah Slovenj Gradec, Maribor ter Žalec, kakšni so trendi pomoči za ljudi z demenco ter kakšna je vizija pomoči za stare ljudi in ljudi z demenco v omenjenih občinah. Ugotovila sem, da imajo ljudje z demenco potrebo po več oblikah pomoči, ki bi jim omogočila čim dlje ostati v svojem domačem okolju. Zaradi pomanjkanja oblik pomoči je stiska sorodnikov velika. Sorodniki in zaposleni potrebujejo informacije o demenci, kako prepoznavati demenco, kako skrbeti za človeka z demenco. Pojavlja se tudi potreba po jasnem in razumljivem zakonu, ki bi v ospredje postavil človeka z demenco. Prepoznala sem potrebo po povezovanju in koordinaciji organizacij pri izvajanju storitev, kar bi omogočilo, da bi ljudje z demenco prejeli potrebno storitev in pomoč. Pojavila se je potreba po novih oblikah storitev, ki bi bile prilagojene potrebam ljudi z demenco in njihovim sorodnikom.

• Language: Slovenian
• Keywords: dolgotrajna oskrba, ljudje z demenco, potrebe ljudi z demenco, obstoječe oblike pomoči
• Work type: Master's thesis/paper
• Organization: FSD - Faculty of Social Work
• Year: 2024
• PID: 20.500.12556/RUL-164719
• Publication date in RUL: 08.11.2024

Secondary language

• Language: English
• Title: The importance of long-term care for people with dementia

Abstract

In contemporary society, the term long-term care has become very important. We acknowledge the need for a long-term care that enables the older people and the people with dementia to stay in their domestic environment as long as they can take care of themselves or are helped by relatives. In order for the people with dementia to stay in their domestic environment, it is necessary to recognize their needs and capabilities. It important to support the person’s social network and to use all the possibilities of home care, that they are entitled to. Social workers have an important role helping people with dementia and their loved ones. They make sure that all the involved in the process of offering help get all the information about their rights and where to turn for help. Furthermore, they are active and help make the person with dementia the most important in the process. In order to enable people with dementia to stay in their domestic environment as long as possible, a map of long-term care for people with dementia has to be established, which shows which organizations can help, coordinate and monitor a person with dementia in their domestic environment. Only this way, the individualization of long-term care is put in the foreground. The purpose of the master thesis was to determine the needs of older people and the people with dementia in the municipalities Slovenj Gradec, Maribor and Žalec, find out what the current trends of helping people with dementia are, and what vision of helping the older people and the people with dementia these municipalities pursuit. The study shows, that people with dementia have a high need for help that enables them to stay longer in their domestic environment. Because of the lack of this kind of help the distress of relatives is very big. The relatives and the employees need information about dementia, how to recognize dementia and how to take care of a person with dementia. There is also a need for a clear and comprehensive law, that puts people with the dementia in the foreground. I saw the need for connecting and coordinating organizations at carrying out services, which would enable the people with dementia to receive the needed services and help. There is a need for new forms of services which should be adapted to the needs of people with dementia and their relatives.

• Keywords: long-term care, people with dementia, needs of people with dementia, existing forms of help