Preverjanje merskih lastnosti slovenske priredbe Quality of Communication Life Scale za populacijo oseb z nevrogenimi motnjami komunikacije : magistrsko delo

Ratković, Ajda (author), Jerman, Janez (mentor), Ravnikar, Špela (comentor)

Nevrogene motnje komunikacije lahko v večji ali manjši meri vplivajo na posameznikovo vsakodnevno funkcioniranje in kakovost življenja. V tujini se za namen prepoznavanja vpliva bolezni oz. okvare na posameznikovo funkcioniranje v procesu diagnostike pogosto uporablja Mednarodno klasifikacijo funkcioniranja, zmanjšane zmožnosti in zdravja, ki omogoča pridobiti celosten vpogled v osebo. Le-ta ima možnost sodelovati pri postavljanju zanjo pomembnih ciljev v rehabilitaciji, s tem pa je obravnava usmerjena v doseganje čim boljše kakovosti njenega življenja. V slovenski logopedski stroki primanjkuje diagnostičnih instrumentov, ki bi bili namenjeni ocenjevanju s komunikacijo povezane kakovosti življenja. Namen raziskave je bil prevesti in prirediti lestvico Quality of Communication Life Scale Ameriškega združenja za govor, jezik in sluh (ASHA QCL) ter preveriti merske karakteristike slovenske priredbe QCL-SI. Testiranje, ki je potekalo od maja do novembra 2023, je bilo izvedeno na vzorcu 51-ih oseb obeh spolov, starejših od 18 let, s komunikacijskimi motnjami, natančneje z a-/disfazijo (n = 33), ana-/dizartrijo (n = 16), kognitivno-komunikacijsko motnjo (n = 1) ter a-/disfonijo (n = 1). Raziskava je obsegala bolnike URI Soča in člane društev oseb s cerebrovaskularno boleznijo, Parkinsonovo boleznijo ter pridobljeno možgansko poškodbo. Vsebinsko veljavnost QCL-SI je potrdil tim strokovnjakov, analiza konstruktne veljavnosti pa je pokazala, da se vse postavke (razen P5, na katero je odgovorilo le pet udeležencev) uvrščajo zgolj v en faktor. Slovenska priredba ima s 17 postavkami (brez P5) visoko notranjo konsistentnost (α = 0,894; n = 48), visoka pa je tudi zanesljivost znotraj ocenjevalca (ICC = 0,966, p < 0,05). Diskriminativnost instrumenta s koeficientom variacije 19,7 % je ustrezna, prav tako so indeksi diskriminativnosti posamezne postavke visoki (r > 0,400), razen pri P4, P15 in P16 so nižji, vendar še vedno sprejemljivi (r > 0,200). Med povprečnim rezultatom na postavkah od P1 do vključno P17, ki naslavljajo specifično s komunikacijo povezano kakovost življenja, ter postavko P18, ki se nanaša na splošno kakovost življenja, smo odkrili zmerno pozitivno povezavo (rS = 0,698, p = 0,000). Ta rezultat dokazuje, da je QCL-SI res namenjen oceni določenega aspekta kakovosti življenja – komunikacije – in ne kakovosti življenja na splošno. V povprečnem rezultatu na lestvici ni statistično pomembnih razlik, niti glede na spol, starost, stopnjo izobrazbe niti glede na vrsto komunikacijske motnje. S QCL-SI je slovenska logopedska stroka pridobila ocenjevalni pripomoček za pridobivanje vpogleda v posameznikovo lastno doživljanje komunikacijske motnje ter ocenjevanje napredka v terapiji, kar predstavlja pomemben korak k celostni obravnavi oseb, s poudarkom na izboljševanju njihove kakovosti življenja.

• Language: Slovenian
• Keywords: Nevrologija, Motnje v sporazumevanju, nevrogene motnje komunikacije, vprašalnik ASHA QCL, merske lastnosti slovenske priredbe, kakovost življenja
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: PEF - Faculty of Education
• Place of publishing: Ljubljana
• Publisher: A. Ratković
• Year: 2024
• Number of pages: VIII, 108 str.
• PID: 20.500.12556/RUL-160742-d54c9aa4-baca-858d-1308-96ac02e7cb04
• UDC: 616.8(043.2)
• COBISS.SI-ID: 206484227
• Publication date in RUL: 04.09.2024

Secondary language

• Language: English
• Title: Validation of the measurement properties of the Slovenian adaptation of the communication quality of life scale for a population of people with neurogenic communication disorders

Abstract

Neurogenic communication disorders can have a significant impact on the daily functioning and quality of life of those affected. Worldwide, the International Classification of Functioning, Disability, and Health (ICF) is often used in the diagnostic process to recognize the impact of disease or impairment on a person's functioning, allowing for a comprehensive understanding of the individual. This approach enables the person to participate in setting rehabilitation goals that are important to them, thereby directing treatment towards achieving the highest possible quality of life for them. Slovenian speech and language pathologists lack diagnostic tools for evaluating communication-related quality of life. The aim of the study was to translate and adapt The American Speech-Language-Hearing Association Quality of Communication Life Scale (ASHA-QCL) and to investigate the measurement properties of the Slovenian adaptation (QCL-SI). Patients of URI Soča and members of associations related to cerebrovascular disease, Parkinson's disease and acquired brain injury were invited to participate in the study. The data collection, conducted from May to November 2023, involved a sample of 51 adults of both genders aged 18 and above with a-/dysphasia (n = 33), ana-/dysarthria (n = 16), cognitive-communication disorder (n = 1) and a-/dysphonia (n = 1). The content validity of the QCL-SI was assessed by a panel of experts. Construct validity analysis revealed that all items (excluding I5, answered by only five participants) only loaded under one factor. The QCL-SI with 17 items (excluding I5) showed a high internal consistency (α = 0.894; n = 48) and high intra-rater reliability (ICC = 0.966, p < 0.05). The discriminatory power is adequate with a coefficient of variation of 19.7%, and item discrimination indices are high (r > 0.400), except for I4, I15, and I16, which are lower but still acceptable (r > 0.200). A moderate positive correlation was found between the average score of items I1 to I17, which relate specifically to communication-related quality of life, and item I18, which relates to overall quality of life (rS = 0.698, p = 0.000). This result indicates that QCL-SI is indeed intended for assessing a specific aspect of quality of life – communication – and not quality of life in general. There were no statistically significant differences in the scale results based on gender, age, education level, or type of communication disorder. With the QCL-SI, Slovenian speech and language pathologists have gained an assessment tool with which they can gain insight into the subjective experience of a communication disorder and evaluate the progress of therapy, which is an important step towards holistic care with a focus on improving quality of life.

• Keywords: Neurogenic communication disorders, ASHA QCL, measurement properties of the Slovenian adaptation, quality of life