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Razlogi mladostnikov sorojencev otrok s posebnimi potrebami za ne/udeležbo v podpornih skupinah in mnenja sorojencev, staršev in strokovnih delavcev : magistrsko delo
ID Kadunc, Špela (Author), ID Erzar, Tomaž (Mentor) More about this mentor... This link opens in a new window

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Abstract
Bratje in sestre otrok s posebnimi potrebami pogosto ostanejo spregledani. Nekateri jih poimenujejo kot skriti ali neopazni člani družine, saj njihove potrebe po podpori včasih niso prepoznane ali izpolnjene. Situacija lahko sorojencem prinaša številne izzive, s katerimi se morajo spoprijeti, obenem pa priložnosti, kot so večja zrelost, strpnost in sočutnost. V namen podpore so pred več desetletji v tujini začeli izvajati programe za sorojence. Kljub temu da so v nekaterih državah takšni programi že precej uveljavljeni, se drugi organizatorji pogosto soočajo z majhnim številom udeležencev. V naši raziskavi se osredotočamo na sorojence, stare od 15 do 20 let. Mladostništvo je namreč obdobje velikih sprememb, oblikovanja identitete in želje po neodvisnosti. Je tudi obdobje, ko vrstniki igrajo pomembno vlogo. Namen magistrskega dela je bil raziskati razloge mladostnikov za njihovo ne/udeležbo v podpornih programih za sorojence otrok s posebnimi potrebami. V raziskavi je sodelovalo 18 udeležencev, ki smo jih glede na njihovo vlogo in izkušnje razdelili v pet skupin: mladostniki z izkušnjo udeležbe v programu, mladostniki brez te izkušnje, starejši sorojenci, mame in strokovne delavke. V večini se njihovi pogledi ujemajo, razlike pri primerjavi rezultatov smo opazili predvsem v poudarjanju posameznega razloga za ne/udeležbo. Večina intervjuvancev se strinja, da je potreba po podpori večja v mlajših letih. Mladostniki imajo namreč druge prioritete in obveznosti. Starejši sorojenci, mame in strokovne delavke opažajo tudi, da se pri teh letih mladostniki od družin pogosto oddaljijo. Večina mladostnikov ne prepoznava potrebe po podpori in programom ne pripisujejo vrednosti. Ovira je lahko tudi strah pred izpostavljenostjo in neznanim, ali pa so prisotni zadržki pred pogovorom o tej temi. Doživljanja sramu udeleženci v večini niso navajali. Velik pomen pripisujejo tudi vlogi staršev, in sicer glede prepoznavanja položaja sorojencev in omogočanja zgodnjih izkušenj tovrstne podpore. Glede vpliva starševskih spodbud za udeležbo se mnenja razlikujejo, kot eno izmed ovir pa udeleženci prepoznavajo tudi organizacijske dejavnike, kot so zasnova programa ter lokacija, čas, pogostost in način izvedbe srečanj. Rezultati raziskave nudijo vpogled v zadržke in ovire mladostnikov za ne/udeležbo programov, ter lahko služijo kot osnova za nadaljnje načrtovanje podpornih storitev za sorojence.

Language:Slovenian
Keywords:sorojenci otrok s posebnimi potrebami, podporne skupine, zadržki, ovire, mladostništvo
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:TEOF - Theological Faculty
Place of publishing:Ljubljana
Publisher:[Š. Kadunc]
Year:2024
Number of pages:VII, 110, XII str.
PID:20.500.12556/RUL-159294 This link opens in a new window
UDC:159.922.8(043.2)
COBISS.SI-ID:201397251 This link opens in a new window
Publication date in RUL:05.07.2024
Views:61
Downloads:5
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Secondary language

Language:English
Title:Reasons given by adolescents and siblings of children with special needs for non/participation in support groups and opinions of siblings, parents and professionals
Abstract:
Siblings of children with special needs are often overlooked. Some refer to them as the hidden or invisible members of the family, as their support needs are sometimes not recognised or met. The situation can result in many challenges with which siblings must engage, but also provides opportunities for developing greater maturity, tolerance and compassion. Several decades ago, for the purpose of support, programmes for siblings were started abroad. Although such programmes are already well established in some countries, other organisers are often faced with a small number of participants. In our research, we focus on siblings between the ages of 15 and 20. Adolescence is a period of great changes, identity formation and the desire for independence. It is also a period when peers play an important role. The purpose of the master's thesis was to investigate the reasons given by adolescents for their non/participation in support programmes for siblings of children with special needs. Taking part in the research were 18 participants divided into 5 groups in accordance with their role and experience: teenagers with experience of participating in the programme, teenagers lacking this experience, older siblings, mothers and professional workers. In the majority of cases, their views agree. In a comparison of the results, differences were noticed mainly in the emphasis placed on the individual reason for non/participation. Most of the interviewees agree that the need for support is greater at younger ages. Young people have other priorities and obligations. The participating older siblings, mothers and professional workers also notice that young people at this age often distance themselves from their families. Most young people do not recognise the need for support and do not value the programmes. Fear of exposure and the unknown can also be an obstacle, or there are reservations about talking about this topic. Most of the participants did not mention experiencing shame. They also attach great importance to the role of parents, specifically in terms of recognising the situation of siblings and enabling early experiences of this type of support. Opinions differ regarding the impact of parental incentives for participation, but participants also identify organisational factors, such as the design of the programme and the location, time, frequency and method of conducting the meetings, as obstacles. The results of the research provide insight into the reservations young people have and the obstacles they face that result in non/participation in programmes, and can serve as a basis for further planning of support services for siblings.

Keywords:siblings of children with special needs, support groups, inhibitions, obstacles, adolescence

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