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The impact of childhood glaucoma on psychosocial functioning and quality of life : a review of the literature
ID McLaughlin, Danielle E. (Author), ID Šemrov, Ana (Author)

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Abstract
We present a novel comprehensive literature review of studies of the psychosocial functioning (PF) and quality of life (QoL) of patients with childhood glaucoma and their caregivers. Our findings demonstrate variable study quality and approach, as well as inconsistent results relating to the association of glaucoma-specific factors and sociodemographic variables with measured PF and QoL. Future studies should focus on the development of culturally cognizant and standardized assessment tools, execution of multi-center longitudinal studies with global representation, evaluation of PF and QoL among siblings and childhood glaucoma providers, and implementation of interventions to improve patient and caregiver PF and QoL.

Language:English
Keywords:glaucoma, psychosocial functioning, quality of life, children, adolescents
Work type:Article
Typology:1.02 - Review Article
Organization:FF - Faculty of Arts
Publication status:Published
Publication version:Version of Record
Publication date:01.10.2023
Year:2023
Number of pages:Str. 3157–3173
Numbering:Vol. 37, no. 15
PID:20.500.12556/RUL-155108 This link opens in a new window
UDC:159.9:617.7-007.681
ISSN on article:0950-222X
DOI:10.1038/s41433-023-02492-1 This link opens in a new window
COBISS.SI-ID:189483011 This link opens in a new window
Publication date in RUL:20.03.2024
Views:651
Downloads:36
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Record is a part of a journal

Title:Eye
Shortened title:Eye
Publisher:Springer Nature
ISSN:0950-222X
COBISS.SI-ID:1981204 This link opens in a new window

Licences

License:CC BY 4.0, Creative Commons Attribution 4.0 International
Link:http://creativecommons.org/licenses/by/4.0/
Description:This is the standard Creative Commons license that gives others maximum freedom to do what they want with the work as long as they credit the author.

Secondary language

Language:Slovenian
Keywords:zelena mrena, psihosocialno delovanje, kakovost življenja, otroci, mladostniki

Projects

Funder:Other - Other funder or multiple funders
Funding programme:Fight for Sight
Project number:FS PhD
Name:Fight for Sight PhD Studentship

Funder:Other - Other funder or multiple funders
Funding programme:OREGON HEALTH & SCIENCE UNIVERSITY
Project number:Unrestricted departmental grant
Name:Casey Eye Institute from Research to Prevent Blindness
Acronym:CEI

Funder:Other - Other funder or multiple funders
Funding programme:Ulverscroft Foundation
Project number:UF
Name:Ulverscroft Foundation

Funder:Other - Other funder or multiple funders
Funding programme:National Institute for Health Research, Biomedical Research Centre
Project number:NIHR BRC
Name:National Institute for Health Research, Biomedical Research Centre

Funder:Other - Other funder or multiple funders
Funding programme:National Institute of Nursing Research
Project number:R01NR016838
Name:National Institute of Nursing Research
Acronym:NINR

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