Življenje z demenco v oskrbovanih stanovanjih : magistrsko delo

Bojić, Dragana (author), Mali, Jana (mentor)

V magistrski nalogi predstavim življenje ljudi z demenco v oskrbovanih stanovanjih. Za človeka z demenco, ki živi izven institucionalnega varstva, primarno skrbijo sorodniki. Skrb za človeka z demenco predstavlja fizično in psihično obremenitev, zato sorodniki sčasoma ne zmorejo več sami skrbeti za človeka z demenco kar pripelje do tega, da je človek z demenco prisiljen oditi v dom za stare, kjer se mora podrediti institucionalnim pravilom, ki pa v večini niso prilagojena posameznikom oziroma njegovim željam ter potrebam. Ena izmed možnih alternativ, ki se ponuja za podaljševanje bivanja človeka z demenco v domačem okolju so oskrbovana stanovanja. Osrednja tema moje naloge je raziskovanje kakovosti življenja človeka z demenco v oskrbovanem stanovanju. Oskrbovana stanovanja so namenjena ljudem, ki potrebujejo pomoč pri vsakdanjem življenju. Po drugi strani pa pripomorejo k ohranjanju samostojnosti ljudi z demenco, prav tako pa človeku pustijo dostojanstvo in intimo, kar pa je v domovih za stare ljudem to velikokrat odvzeto. Raziskava je kvalitativna, sestavljena iz različnih tem, na podlagi katerih sem predstavila rezultate o kakovosti življenja človeka z demenco v oskrbovanem stanovanju. Človek z demenco zaradi narave bolezni, potrebuje pomoč druge osebe. Obseg pomoči pa je odvisna od stopnje demence. Veliko vlogo pri kakovostnem življenju človeka z demenco imajo tudi sorodniki, ki se aktivno vključujejo v oskrbo človeka z demenco. Z raziskavo sem ugotovila prednosti in slabosti življenja z demenco v oskrbovanem stanovanju. Ljudje z demenco ne čutijo velike potrebe po pomoči druge osebe, medtem, ko sorodniki kot največjo slabost navajajo pomankanje zdravstvene oskrbe in nadzora, kot ga imajo ljudje z demenco v domovih za stare. Ugotovila sem, da so bili sorodniki primarni pobudniki odhoda v oskrbovano stanovanje zaradi arhitektonske prilagojenosti le teh. Ljudem z demenco bi morali omogočiti izbiro optimalne oblike bivanja glede na njihove individualne lastnosti, potrebe ter želje.

• Language: Slovenian
• Keywords: stari ljudje, oskrbovana stanovanja, demenca, pomoč na domu, skupnostna oskrba
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: FSD - Faculty of Social Work
• Place of publishing: Ljubljana
• Publisher: [D. Bojić]
• Year: 2023
• Number of pages: 111 str.
• PID: 20.500.12556/RUL-152294
• UDC: 364.4:616.892.3
• COBISS.SI-ID: 182703107
• Publication date in RUL: 17.11.2023

Secondary language

• Language: English
• Title: Living with dementia in sheltered housing

Abstract

In my master's thesis, I analyse the lives of people with dementia who live in sheltered housing. A person with dementia who lives outside of institutional care is primarily cared for by relatives. Caring for a person with dementia is a physical and psychological burden, so relatives are eventually no longer able to take care of a person with dementia on their own, which results to the fact, that that the person with dementia is forced to go to a home for older people, where he has to obey institutional rules, which in most of them are not adapted to individuals or their wishes and needs. One of the possible alternatives offered for prolonging the stay of a person with dementia in the home environment is sheltered housing. The focus of my thesis is to investigate the quality of life of people with dementia in sheltered housing. Sheltered housing is for people who need help with their daily lives. On the other hand, they help to maintain the independence of people with dementia, and they also leave them with dignity and intimacy, which is often denied to people in homes for older people. The research is qualitative, consisting of different themes, from which I present the results on the quality of life of people with dementia in shelter housing. Due to the nature of the disease, a person with dementia needs help from another person. The amount of help depends on the level of dementia. Relatives who are actively involved in the care of someone with dementia also play a major role in the quality of life of the person with dementia. My research has helped me to identify the advantages and disadvantages of living with dementia in sheltered housing. People with dementia do not feel a great need for help from another person, while relatives cite the lack of health care and supervision, as people with dementia have in homes for older people, as a major disadvantage. I found that the relatives were the primary instigators of the move to the sheltered housing because of its architectural adaptations. People with dementia should be able to choose the optimal form of living for their individual characteristics, needs and preferences.

• Keywords: older people, assisted living, dementia, home help, community care