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Doživljanje strahu pred ponovitvijo raka pri mladostnikih in mladih odraslih : magistrsko delo
ID Fifer, Teja (Author), ID Pate, Tanja (Mentor) More about this mentor... This link opens in a new window

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Abstract
Kljub napredkom medicine na področju onkologije v družbi še vedno prevladuje prepričanje, da diagnoza rak pomeni konec življenja. Rak pomeni izgubo zdravja in bolezen, ki predstavlja pomembno prelomnico, ter povzroči spremembe na številnih področjih posameznikovega življenja. Začetni šok, jeza, nemoč in žalost so ob nenadni diagnozi ter izgubi zdravja povsem normalni odzivi. Le-te smo preučevali v magistrskem delu. Cilj naše raziskave je pridobiti globlji vpogled v doživljanje kronične bolezni raka in doživljanje čustev pri starostni skupini mladostnikov ter mladih odraslih. Zanje menimo, da bi bilo zaradi pomembnih življenjskih odločitev, ki jih onkološki bolniki na pediatriji ter v zrelem starostnem obdobju nimajo tako izrazitih, in dodatnih težav ter stresa pri soočanju z diagnozo, ki poruši prvotne načrte, potrebno posvetiti več pozornosti na čustveni ravni. V sled izpostavljamo psihosocialno pomoč, ki so jo tekom pogovorov v intervjujih izpostavljale udeleženke. Le-te menijo, da je pomoč nujna že takoj ob postavljeni diagnozi in tudi po zdravljenju, ko se soočajo z izzivi pri vstopu nazaj v »staro« življenje pred boleznijo. Osredotočeni smo bili na strah, ki je najstarejše in najmočnejše čustvo ter ima pomembno vlogo pri soočanju z boleznijo. Potrebno ga je uravnavati in se ga naučiti nadzorovati. Izkazalo se je, da je strah pri bolezni rak neizogibno čustvo, ki se lahko v določenih trenutkih pojavi izrazitejše. Respondentke naše raziskave govorijo o strahu pred ponovitvijo raka, medtem ko ena udeleženka doživlja strah pred ponovitvijo raka po rojstvu otroka. Na podlagi odgovorov ugotovimo, da je pri uspešnem soočanju s strahom pred ponovitvijo bolezni pomembno redefiniranje pojmov o ranljivosti in minljivosti ter rekonstruirati prioritete. Po bolezni vse udeleženke na prvo mesto postavijo skrb zase.

Language:Slovenian
Keywords:rak, doživljanje, soočanje, strah, ponovitev, mladostniki in mladi odrasli, psihoonkologija
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:TEOF - Theological Faculty
Place of publishing:Ljubljana ; Maribor
Publisher:[T. Fifer]
Year:2023
Number of pages:VI, 78, V str.
PID:20.500.12556/RUL-149658 This link opens in a new window
UDC:159.91:616-006(043.2)
COBISS.SI-ID:165837315 This link opens in a new window
Publication date in RUL:08.09.2023
Views:1172
Downloads:115
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Secondary language

Language:English
Title:Experiencing fear of cancer reccurence in adolescent and young adult
Abstract:
Despite medical advances in oncology, society still believes that a cancer diagnosis means the end of life. Cancer is a loss of health and a life-changing disease, which represents a major turning point and changes many areas of a person's life. Initial shock, anger, helplessness and sadness are normal reactions to a sudden diagnosis and loss of health. These were studied in the Master's thesis. The aim of our research is to gain deeper insights into the experience of chronic cancer and the experience of emotions in adolescents and young adults. For them, we believe that more attention should be paid to their emotional state, due to the important life choices that are not so pronounced among paediatric and mature age oncology patients. Furthermore, adolescents and young adults experience additional difficulties and stress in dealing with a diagnosis that upsets their initial life plans. We highlight the psychosocial support that the participants mentioned as important in the course of the interviews. They feel that help is needed both immediately after diagnosis and after treatment, when they face the challenges of returning to their "old" life before the disease. We focused on fear, which is the oldest and strongest emotion and plays an important role in coping with illness. It needs to be regulated and learned to be controlled. It turns out that fear is an unavoidable emotion in cancer, which can become more pronounced at certain times. Respondents to our survey talk about fear of cancer recurrence, while one participant experiences fear of cancer recurrence after childbirth. Based on the responses, we conclude that redefining notions of vulnerability and transience and reconstructing priorities are important in successfully coping with the fear of relapse. After such illness, all participants put taking care of themselves first.

Keywords:cancer, experience, coping, fear, recurrence, adolescents and young adults, psych oncology

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