Osebna asistenca in razumevanje pomena neodvisnega življenja ter odvisnosti s strani njenih uporabnikov : diplomsko delo

Bratina, Zala (author), Sobočan, Ana Marija (mentor)

V svojem diplomskem delu sem želela raziskati kako si uporabniki osebne asistence razlagajo neodvisno življenje in kakšni so po njihovem mnenju temeljni pogoji za doseganje le-tega, v čem prepoznavajo lastno neodvisnost in na katerih življenjskih področjih se kaže njihova odvisnost od osebne asistence. Zanimalo me je tudi kje prepoznavajo dobre plati osebne asistence in njene pomanjkljivosti ter doprinos le-te k večanju zmožnosti za neodvisno življenje, kje prepoznavajo primere dobre prakse izvajanja osebne asistence v lastnem vsakdanjem življenju, kako se v medsebojnem odnosu z osebnimi asistenti kaže njihova avtonomija in kako prepoznavajo kakovost vzpostavljenega odnosa, kako v procesu izvajanja osebne asistence uveljavljajo lastne želje in potrebe in kako vrednotijo lastno zmožnost za samostojno odločanje, kako vrednotijo pomembnost vloge osebnega asistenta, kje v lastnem življenju prepoznavajo primere dobre prakse izvajanja osebne asistence, kje bi si na področju ureditve osebne asistence želeli sprememb ter kje opažajo razlike pri izvajanju osebne asistence s strani družinskega člana in zunanje osebe. Poleg tega pa me je zanimalo tudi kje prepoznavajo drugačno obravnavo oviranih oseb v družbi in v čem se po njihovem mnenju kaže razlika med osebno asistenco kot podporo in med skrbjo. Izvedla sem kvalitativno raziskavo, kjer sem preko opravljenih osmih intervjujev z uporabniki in uporabnicami osebne asistence prišla do podatkov, ki sem jih nato obdelala na kvalitativen način. Z raziskavo sem ugotovila, da uporabniki v osebni asistenci prepoznavajo velik doprinos k zmožnosti za neodvisno življenje, saj jim ta omogoča vključevanje v družbo, dostop do storitev, izvajanje aktivnosti in dejavnosti, življenje v skupnosti, socializacijo, aktivnost, preko nudenja pomoči in podpore zgolj tam, kjer jo potrebujejo, in le na način, ki ga določijo sami. Omogoča jim prevzem nadzora nad lastnim življenjem in pripomore k zmožnosti njihovega delovanja v družbi. Uporabniki in uporabnice pa prepoznavajo tudi določene pomanjkljivosti na področju zakonske ureditve osebne asistence in opozorijo na ovire v grajenem okolju, ki pogosto onemogočajo ali ovirajo njihovo dostopanje do storitev. Ob tem pa omenjajo ključno vlogo osebne asistence, s katero jim je omogočeno premagovanje takšnih ovir. Uporabniki in uporabnice osebno asistenco prepoznavajo kot podporo in dodatno pomoč, pri čemer jo ločijo od skrbi, ki jo povezujejo z življenjem v instituciji, bolniško pomočjo ter stanjem osebe, kjer je ta v podrejenem položaju, odvisna od druge osebe in za katero se stvari opravljajo namesto nje.

• Language: Slovenian
• Keywords: osebna asistenca, uporabniki osebne asistence, osebni asistenti, neodvisno življenje, avtonomija, samostojnost, (so)odvisnost, podpora, ljudje z ovirami, diskriminacija oviranih oseb
• Work type: Bachelor thesis/paper
• Typology: 2.11 - Undergraduate Thesis
• Organization: FSD - Faculty of Social Work
• Place of publishing: Ljubljana
• Publisher: [Z. Bratina]
• Year: 2023
• Number of pages: 304 str.
• PID: 20.500.12556/RUL-149294
• UDC: 364.694
• COBISS.SI-ID: 198904323
• Publication date in RUL: 06.09.2023

Secondary language

• Language: English
• Title: Personal assistance and understanding of the meaning of independent living and dependency by its users

Abstract

In my thesis I wanted to investigate how users of personal assistance interpret independent living and what they consider to be the basic conditions for achieving it, how they identify their own independence and in which areas of their lives their dependence on personal assistance manifests itself. I was also interested in where they identify the good aspects of personal assistance, its shortcomings and its contribution to increasing the ability to live independently, where they identify examples of good practice in the implementation of personal assistance in their own daily lives, how their autonomy is manifested in the relationship with personal assistants and how they recognise the quality of the relationship established, how they assert their own wishes and needs in the process of implementing personal assistance and how they evaluate their own ability for independent decision-making, how they evaluate the importance of the role of a personal assistant, where they identify examples of good practice in their own lives, where they would like to see changes in the regulation of personal assistance, and where they see differences in the way a family member and an outsider provide personal assistance. In addition, I was also interested in where they identify the different treatment of people with disabilities in society and where they recognise the difference between personal assistance as support and care. I carried out a qualitative research, where I conducted eight interviews with female and male users of personal assistance, which I then processed in a qualitative way. Through my research, I have found that users see personal assistance as a major contribution to their ability to live independently, as it enables them to integrate into society, access services, carry out activities, live in the community, socialise, be active, by providing help and support only where they need it, and only in the way they define it. It enables them to take control of their own lives and contributes to their ability to function in society. Users also identify certain shortcomings in the regulation of personal assistance and point to barriers in the built environment that often prevent or hinder their access to services. They also mention the crucial role of personal assistance in enabling them to overcome such barriers. Users see personal assistance as support and additional help, where they distinguish it from care, which they associate with institutionalisation, patient care and the situation of being in a subordinate position, dependent on another person and having things for yourself done by them.

• Keywords: personal assistance, personal assistance users, personal assistants, independent living, autonomy, independence, interdependence, support, people with disabilities, discrimination of people with disabilities