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Celostna ocena potreb pacientov s hudimi in ponavljajočimi se duševnimi motnjami v dnevnobolnišnični obravnavi v Sloveniji
ID Torkar, Tanja (Author), ID Švab, Vesna (Mentor) More about this mentor... This link opens in a new window

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Abstract
Izhodišča in namen: Pregled literature o potrebah pacientov v okoljih psihiatričnih dnevnih bolnišnic odkriva pomanjkanje raziskav. Namen raziskave je celostna ocena potreb pacientov s hudimi in ponavljajočimi se duševnimi motnjami v dnevnobolnišnični obravnavi, analizirati stanje dnevnobolnišnične obravnave v Sloveniji, ki ima posebnosti glede organizacijskih in kulturnih značilnosti, ter ugotoviti, na katere potrebe pacientov lahko odgovorimo v tem okolju. Metode: Uporabila sem mešanje metod kvalitativnega in kvantitativnega raziskovalnega pristopa. Uporabila sem večfazni dizajn, ki združuje tako zaporedne kot sočasne sklope. V prevladujočo kvalitativno metodologijo sem umestila manjši kvantitativni del. Za zbiranje podatkov sem uporabila različne metode triangulacije, in sicer individualne intervjuje (n=15) in fokusne skupine (n=18) ter standardizirani vprašalnik. Pri kvalitativnem delu sem uporabila namenski vzorec, pri kvantitativnem pa sem nagovorila celotno opredeljeno populacijo v dnevno bolnišnico sprejetih pacientov v treh, v raziskavo vključenih psihiatričnih bolnišnicah. Skupno je v kvalitativnem delu sodelovalo 85 udeležencev - strokovnjakov, pacientov in svojcev iz zdravstvenih in socialnih služb. V kvantitativnem delu je bilo skupno vključenih 80 pacientov, vprašalnike jih je izpolnilo 75. Kvalitativne podatke sem analizirala po principih vsebinske in tematske analize, kvantitativne podatke z uporabo deskriptivne statistike z metodami ugotavljanja povezanosti. Rezultati: V 1. fazi raziskave sem identificirala področja potreb pacientov, ki obiskujejo program dnevne bolnišnice (19 kategorij, šest tem): optimalno vsakodnevno funkcioniranje, delovna in izobrazbena aktivnost, pripadnost v socialnem okolju, vzdrževalno zdravljenje, podpora in usmerjanje pri obravnavi ter kontinuirana obravnava. V drugi fazi raziskave sem opredelila načine naslavljanja teh identificiranih potreb v dnevnobolnišnični obravnavi (21 kategorij, šest tem): pomoč pri načrtovanju in izvajanju vsakodnevnih aktivnosti, pomoč pri zaposlovanju in osamosvajanju, pomoč pri vzpostavitvi in krepitvi varne socialne mreže, podpora pri sprejemanju ustreznega zdravljenja, vzpostavitev ustreznega odnosa pri obravnavi ter zagotavljanje dostopnosti ustreznih služb. V tretji fazi je več kot polovica vprašanih pacientov ocenila, da sta področji psihološka stiska in druženje zanje hud problem, sledijo telesno zdravje, spolnost, psihotični simptomi, dnevne aktivnosti in področje medosebnih odnosov, ki so identificirane kot nezadovoljene potrebe pri več kot 40 % vprašanih. V povprečju je bilo na vprašanega identificiranih pet nezadovoljenih potreb (st. odklon 3,158), ki predstavljajo pacientom hud problem. Ocena potreb se v večini ne razlikuje med pacienti, svojci in strokovnjaki, razen pri medikamentoznem zdravljenju ter sodelovanju svojcev. Ocena potreb s kvalitativnim instrumentom omogoča poglobljeno ocenjevanje potreb, saj taka ocena omogoča razumevanje ozadja potrebe, ovir in drugih okoliščin zadovoljevanja le-teh ter možnosti ugotavljanja, na kakšen način identificirane potrebe zadovoljevati. Zaključki: Gre za prvo tovrstno raziskavo v Sloveniji in eno redkih širše v evropskem in svetovnem prostoru, ki je z uporabo triangulacije ocenila potrebe pacientov s hudimi in ponavljajočimi se duševnimi motnjami, ki jih je smiselno naslavljati v dnevnobolnišničnih obravnavah. Zaradi kompleksnosti in sistematičnosti zbiranja in analize podatkov gre za pomemben prispevek znanosti. Raziskava prispeva k boljšemu razumevanju potreb pacientov s hudimi in ponavljajočimi se duševnimi motnjami, ki jih naslavljamo v dnevnobolnišnični obravnavi, ter boljši identifikaciji posameznih področij potreb. Poleg medicinskih je v dnevnih bolnišnicah treba naslavljati tudi psihosocialne potrebe in potrebo po kontinuirani obravnavi.

Language:Slovenian
Keywords:stališča uporabnikov, pacienti, svojci, strokovnjaki, psihiatrična obravnava, prehodna obravnava, mešanje metod, triangulacija
Work type:Doctoral dissertation
Organization:MF - Faculty of Medicine
Year:2023
PID:20.500.12556/RUL-146924 This link opens in a new window
Publication date in RUL:16.06.2023
Views:1247
Downloads:83
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Secondary language

Language:English
Title:Comprehensive need assessment of people with severe mental disorders in day hospital treatment in Slovenia
Abstract:
Introduction and aim: Severe mental illness (SMI) patients’ needs in psychiatric day hospitals have not received enough research attention. There is a lack of in-depth knowledge about the nature and context of their needs. This research aims to assess the needs of this population in Slovenian psychiatric day hospitals, to analyse their organizational and cultural characteristics, and to determine the range of needs that can be met in this setting. Methods: A mixed-methods approach was used with a multiphase design combining sequential and concurrent sets. A smaller quantitative part was placed in the dominant qualitative methodology. To collect data, triangulation was conducted, namely individual interviews (n=15) and focus groups (n=18), as well as a standardized questionnaire. A purposive sample was used in the qualitative part, while in the quantitative part, the entire population of patients attending the day hospital in the three psychiatric hospitals was researched. In total, 85 participants participated in the qualitative part - experts, patients and relatives from health and social services. In the quantitative part, 75 patients filled out the questionnaires. For the qualitative data, content and thematic analyses were carried out. The quantitative data were analysed by using descriptive statistics with methods of determining association. Standardized needs self-assessment supplemented the data set. Results: The qualitative analysis in the first phase reveals a diverse spectrum of needs patients in psychiatric with SMI in day hospitals. The analysis yielded six themes (19 categories): optimal daily functioning, work and educational activities, social network inclusion, continuous treatment, support and guidance, and long-term care. The second phase reveals paths how to address identified needs in the day hospital setting (21 categories, six themes): help in planning and performance of daily activities, help with employment and independence, help with creating and strengthening a safe social network, supporting accepting treatment, establishing an appropriate therapeutic relationship and providing the accessibility of other services. On average, five unmet needs (standard deviation 3.158) were identified per patient by standardized self-assessments, which represents a serious problem. More than 50% of patients revealed their needs to address psychological distress and lack of companionship, followed by physical health, sexual needs, needs to reduce psychotic symptoms, help with daytime activities and intimate relationships. The whole range of needs identified as unmet needs was more than 40%. The needs assessment mostly did not differ between patients, relatives and experts, except for medication treatment and the cooperation of relatives. A qualitative needs assessment enabled an in-depth assessment of needs. It enabled understanding of the background of the need, obstacles and other circumstances, as well as the possibility of determining about unmet needs satisfaction. Conclusion: This study is the first research in Slovenia and one of the few in Europe and globally that used triangulation to assess the needs of patients with severe mental illness. Due to the complexity and systematic nature of data collection and analysis, it represents an important contribution to science. The research contributes to a better understanding of the needs of patients with severe mental illness and provides an improved and in-depth description of their needs with insights into how to address them better. Besides the clinical treatment, needs regarding continuous treatment, psychological and social needs should be considered routinely in day hospitals settings.

Keywords:users' views, patients, carers, experts, psychiatric treatment, transitional treatment, mixed methods, triangulation

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