Duševno zdravje svojcev oseb s Parkinsonovo boleznijo, družinsko delovanje in načini spoprijemanja : magistrsko delo

Bergant, Jerca (author), Masten, Robert (mentor)

Število starejših ljudi se z leti vztrajno povečuje, vse večja pa je tudi pojavnost s starostjo povezanih kroničnih bolezni. Parkinsonova bolezen je vedno vpeta v širše družinsko, partnersko, poklicno in družabno življenje, kar dokazuje tudi vse bolj opazen trend naraščanja stopnje družinske (neformalne) oskrbe. Skrb za družinskega člana v življenje oskrbovalcev vnaša smisel, upanje in hvaležnost, hkrati pa lahko svojci zaradi visoke čustvene vpletenosti in fizične izčrpanosti doživljajo tudi anksioznost, depresivnost ali izgorelost. Pri slednjem obstajajo tudi velike medosebne razlike, ki jih lahko pripišemo razlikam v lastnostih bolezni, oskrbovane osebe ali oskrbovalcev. Dosedanje raziskave ugotavljajo, da so za ustrezno prilagajanje na bolezen pomembni predhodni odnosi med družinskimi člani, hkrati pa se le-ti po nastopu bolezni močno spreminjajo sočasno z razvojem bolezni. Namen magistrske naloge je bil preveriti, kako se kohezivnost, konflikt in izraznost povezujejo z anksioznostjo in depresivnostjo družinskih oskrbovalcev oseb s Parkinsonovo boleznijo ter kako se slednji dve meri duševnega zdravja povezujeta z različni načini spoprijemanja s stresom. Raziskala sem tudi razlike med oskrbovalci v merah družinskih odnosov ter anksioznosti in depresivnosti. Vzorec je zajemal 44 družinskih oskrbovalcev, ki so izpolnili Indeks družinskih odnosov (FRI), Vprašalnik spoprijemanja s stresom (CRI) in Lestvico hospitalne anksioznosti in depresivnosti (HADS). Rezultati so pokazali negativno povezavo med izraznostjo in anksioznostjo. Pri spoprijemanju s stresom se je anksioznost značilno pozitivno povezovala s kognitivnim izogibanjem, resignacijo in čustvenim olajšanjem, depresivnost pa se je pozitivno povezovala s pozitivno ponovno oceno. Ugotovitve dajejo dobro izhodišče za nadaljnje raziskave in idejo za razvoj programov pomoči preko učenja učinkovitega izražanja čustev ali spoprijemanja s stresom. Rezultati so pokazali tudi statistično značilne medosebne razlike v družinskih odnosih, anksioznosti in depresivnosti glede na prejemanje dodatne pomoči pri oskrbovanju, odnos z oskrbovano osebo in pogostost oskrbovanja. Magistrska naloga tako opozarja tudi na določene skupine družinskih oskrbovalcev, ki potrebujejo še dodatno pozornost.

• Language: Slovenian
• Keywords: Parkinsonova bolezen, družinski oskrbovalci, anksioznost, depresivnost, stres
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: FF - Faculty of Arts
• Place of publishing: Ljubljana
• Publisher: [J. Bergant]
• Year: 2023
• Number of pages: 54 str.
• PID: 20.500.12556/RUL-145760
• UDC: 159.97:616.858(043.2)
• COBISS.SI-ID: 155070211
• Publication date in RUL: 12.05.2023

Secondary language

• Language: English
• Title: Mental health, family functioning and coping strategies of family members of people with Parkinson's disease

Abstract

The number of elderly people and age-related chronic diseases keeps rising. Parkinson's disease usually merges with family, work and social life which is also evident from the growing trend of family (informal) caregiving. Caring for a family member enriches caregivers' life by giving them meaning and hope, but is also accompanied by physical strain and high emotional involvement, which on the downside contributes to caregivers' anxiety, depression and burnout. The level of mental health problems varies between individuals due to differences in characteristics of the disease, care recievers and caregivers. Research has shown pre-established family relationships to be an important factor contributing to family adjustment to a member's illness but also that relationships change during changes and development of the disease. The aim of this master's thesis was to explore the connections between anxiety and depression and cohesion, conflict and expressiveness on a sample of family caregivers of people with Parkinson's disease, and to explore how anxiety and depression relate to coping strategies. The thesis also deals with cohesion, conflict, expressiveness, anxiety and depresssion differences among caregivers. In this study, 44 participants completed Family relationship index (FRI), Coping responses inventory (CRI) and Hospital anxiety and depression scale (HADS). Results showed a negative correlation between expressiveness and anxiety. Among coping responses, anxiety was positively correlated with cognitive avoidance, resignation and emotional discharge. Depression was positively correlated with positive reappraisal. These findings prompt further research and initiate the development of programs focusing on emotion expression and effective coping for caregivers. Results also showed individual differences among caregivers in beforementioned mental health problems and family relationships measures due to differences in recieving additional help, relation to care reciever and the frequency of caregiving. Thus the master's thesis also sheds light on groups of family caregivers in need of additional attention.

• Keywords: Parkinson's disease, family caregivers, anxiety, depression, stress