Doživljanje odnosa in podpore s strani strokovnjakov ob soočanju staršev z otrokovimi posebnimi potrebami

Gržinić, Letizia (author), Poljšak Škraban, Olga (mentor)

Magistrska naloga obravnava izkušnje in doživljanje staršev otrok s posebnimi potrebami ob stiku s strokovnjaki v procesu spoprijemanja z drugačnostjo svojega otroka. Osredotoča se na doživljanje pomoči in podpore, ki so jo ob tem prejeli od strokovnjakov, ter na spremembe v družini, ki so ob spoprijemanju z drugačnostjo otroka, sledile. Teoretični del magistrskega dela najprej predstavi zgodovinski pogled na posebne potrebe in današnji položaj otrok s posebnimi potrebami skozi vzgojno-izobraževalni kontekst. Sledi opis soočanja staršev z otrokovo diagnozo in procesa žalovanja. V nadaljevanju so predstavljeni koncepti sodelovanja med starši in strokovnjaki ter smernice za bolj kakovostno delo s starši. Na koncu je poudarjen pomen vključevanja otroka v proces pomoči. Ker življenje z otrokom s posebnimi potrebami zahteva številne obravnave, saj so starši skozi odraščanje otroka primorani vstopati v kontakt z različnimi strokovnjaki ter z njimi sodelovati, je bil namen empiričnega dela predstaviti raznolike izkušnje staršev, izzive in ovire, ki so se pojavile med sodelovanjem s strokovnjaki. Cilj magistrskega dela je bil tudi raziskati, kaj za starše pomeni uspešen sodelovalni odnos in katere dejavnike vidijo kot pomembne za razvoj in obstoj partnerskega odnosa s strokovnjaki. Magistrsko delo se osredotoča tudi na otrokovo vlogo in položaj v procesu obravnave ter raziskuje v kolikšni meri odrasli otroka upoštevajo kot enakovrednega partnerja v obravnavi. Raziskava je zasnovana kvalitativno s pomočjo delno strukturiranega intervjuja, ki je izveden s štirimi pari staršev otrok s posebnimi potrebami. Vključeni so bili člani Združenja staršev otrok z razvojnimi težavami, ki deluje na področju hrvaške Istre. Rezultati raziskave so pokazali, da je doživljanje sodelovanja med starši in strokovnjaki odvisno od mnogih dejavnikov kot so: odnos strokovnjakov do staršev; stališča in pričakovanja obeh strani; načini sodelovanja; delovanje in povezanost strokovnih služb. Glavne ugotovitve kažejo, da starši večinoma negativno doživljajo sodelovanje s strokovnjaki, saj menijo, da jim manjka podpora in pomoč interdisciplinarnega tima, ki bi bil zadolžen za kontinuirano spremljanje njihovega otroka. To velja zlasti za obdobje mladostništva. Otrokova aktivna vključenost v obravnavo je odvisna od njegove starosti, zavzemanja zase ter od dinamike odnosa med starši in strokovnjaki.

• Language: Slovenian
• Keywords: starši
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: PEF - Faculty of Education
• Year: 2022
• PID: 20.500.12556/RUL-141533
• COBISS.SI-ID: 123617027
• Publication date in RUL: 04.10.2022

GRŽINIĆ, Letizia, 2022, Doživljanje odnosa in podpore s strani strokovnjakov ob soočanju staršev z otrokovimi posebnimi potrebami [online]. Master’s thesis. [Accessed 6 July 2025]. Retrieved from: https://repozitorij.uni-lj.si/IzpisGradiva.php?lang=eng&id=141533

Secondary language

• Language: English
• Title: Experiencing the experts' attitudes and support by the parents who cope with the child's special needs

Abstract

This master's thesis discusses the experiences of parents od children with special needs when participating with professionals, in the process of coping with the difference of their child. It focuses on experiencing the help and support parents received from professionals and on the changes in the family that occured when coping with the child's difference. The theoretical part of the master's thesis first presents a historical view of special needs and the current situation of children with special needs through the educational context. Then a description of parents' coping with their child's diagnosis and their grieving process is given. In the following, the concepts of cooperation between parents and professionals and guidelines for better quality work with parents are presented. In the end, the importance of including the child in the assistance process is emphasized. Since living with a child with special needs requires many considerations, which means that parents are forced to come into contact with and cooperate with various professionals throughout the child's upbringing, the purpose of the empirical work was to present the diverse experiences of parents, and the challenges and obstacles that appear in cooperation with professionals. In addition, the goal of the master's thesis was to find out what a successful cooperative relationship means for parents and which factors they consider important for the development and existence of a partnership with professionals. The master's thesis also focuses on the child's role and position in the treatment process, and investigates the extent to which adults consider the child as an equal partner in the treatment. The research was conducted with a qualitative research approach, with the help of a semi-structured interview, which included four pairs of parents of children with special needs, who are members of the Association of Parents of Children with Special Needs, which operates in the area of Croatian Istria. The results of the research showed that the experience of cooperation between parents and professionals depends on many factors, such as: the attitude of professionals towards parents; the views and expectations of both parties; ways of cooperation; operation and connection of professional services. The main findings show that parents mostly have a negative experience of cooperation with professionals, as they believe that they lack the support and help of an interdisciplinary team that would be in charge of continuously monitoring their child. This applies especially to the period of adolescence. The child's active involvement in treatment depends on his age, self-advocacy and the dynamics of the relationship between parents and professionals.

• Keywords: parents