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Psihosocialni izzivi odraslih oseb z atopijskim dermatitisom in oblike pomoči : diplomsko delo
ID Šlebir, Janja (Author), ID Urek, Mojca (Mentor) More about this mentor... This link opens in a new window, ID Rape Žiberna, Tamara (Co-mentor)

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Abstract
V diplomski nalogi raziskujem, s kakšnimi izzivi se srečujejo osebe z atopijskim dermatitisom in kašne oblike pomoči si želijo. Atopijski dermatitis je kronična dolgotrajna bolezen in ob pregledu literature je razvidno, da so stiske ljudi lahko velike. V teoretičnem delu predstavim razmišljanje o zdravju in bolezni čez čas in opišem značilnosti atopijskega dermatitisa. Osrednji del predstavlja razmišljanje o izzivih, s katerimi se srečujejo. Razdelim jih na psihosocialne izzive, finančne izzive in Sindrom rdeče kože. Nadaljujem z naborom oblik pomoči, ki že obstajajo v slovenskem prostoru in teoretični del zaključim z razmišljanjem o vlogi socialnega dela v zdravstveni dejavnosti. V empiričnem delu predstavim rezultate raziskave, ki sem jih dobila z analizo intervjujev, opravljenih s šestimi osebami, ki imajo atopijski dermatitis in je viden. Rezultati raziskave razkrivajo, da so se sogovorniki srečevali z izzivi na področju duševnega zdravja, socialnega življenja, financ, zdravljenja in vsakodnevnega življenja. Na področju duševnega zdravja jim je izziv predstavljalo grajenje boljše samopodobe in uspešno spoprijemanje z neprijetnimi občutki, depresijo in samomorilnimi mislimi. Na področju socialnega življenja jim je izziv predstavljalo vključevanje v družbo in spoprijemanje s stigmatizacijo. Ostali izzivi pa so bili še, kako najti primerne oblike zdravljenja, se soočati z dodatnimi stroški in se učiti živeti čim bolj normalno življenje. Kot najtežje obdobje jih je nekaj opisalo čas odvajanja od kortikosteroidnih krem, ki so ga poimenovali Sindrom rdeče kože. Večina vprašanih ni bilo zadovoljno z obiskom pri zdravniku in dermatologu, odnos so opisali kot neoseben, pregled pa rutinski. K boljšemu počutju so vprašanim pomagale različne stvari. Opisala sem jih kot varovalni dejavniki. Na individualni ravni je bilo to grajenje boljše samopodobe, podporna vedenja in spretnosti reševanja problemov in iskanja virov. Na odnosni ravni so omenili, da jim je bila najbolj v pomoč podpora in spodbuda bližnjih, podporne mreže in pogovor. Omenjeni zaščitni dejavniki na skupinski ravni so bili participacija v različnih podpornih skupinah in na družbeni ravni normaliziranje bolezni in informiranje ter ozaveščanje širše javnosti.

Language:Slovenian
Keywords:kronična bolezen, atopijski dermatitis, stigmatizacija, sindrom rdeče kože, socialno delo, oblike pomoči
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:FSD - Faculty of Social Work
Place of publishing:Ljubljana
Publisher:[J. Šlebir]
Year:2022
Number of pages:112 str.
PID:20.500.12556/RUL-139661 This link opens in a new window
UDC:364.4-056.24
COBISS.SI-ID:143790339 This link opens in a new window
Publication date in RUL:06.09.2022
Views:376
Downloads:64
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Secondary language

Language:English
Title:Psychosocial challenges of people with atopic dermatitis and forms of assistance
Abstract:
In my graduation thesis I research what challenges people with atopic dermatitis face and what forms of help they want. Atopic dermatitis is a chronic long-term disease. A review of the literature shows that people's distress can be great. In the theoretical part, I present thoughts about health and disease over time and describe the characteristics of atopic dermatitis. The central part is devoted to thinking about the challenges people with atopic dermatitis are facing. I divide them into Psychosocial Challenges, Financial Challenges, and Red Skin Syndrome. I continue with a set of forms of help that are already being considered in Slovenia and conclude the theoretical part with the role of social work in health activities. In the empirical part, I present the results of the research I obtained by analyzing interviews conducted with six people who have visible atopic dermatitis. The results of the research revealed that the interlocutors faced challenges in the field of mental health, social life, finances, treatment, and daily life. In the field of mental health, the challenge is to build a better self-image and successfully cope with unpleasant feelings, depression, and suicidal thoughts. In the field of social life, their challenge is to integrate into society and deal with stigma. Other challenges, however, are how to find appropriate forms of treatment, face additional costs, and learn to live as normal a life as possible. In the most difficult period, some described the time of discharge of corticosteroid creams, which they called Red Skin Syndrome. Most respondents were dissatisfied with their visits to the doctor and dermatologist, the relationship was described as impersonal and the examination routine. Various things helped the respondents to feel better. I describe them as protective factors. At the individual level, this means building a better self-image, supportive problem-solving, and resource-seeking skills. At the relational level, they mention that the best help for them is the support and encouragement of loved ones, support networks, and conversation. The mentioned factors at the group level are participation in various support groups, and at the social level normalization of diseases and informing and raising awareness of the general public.

Keywords:chronic disease, atopic dermatitis, stigmatization, red skin syndrome, social work, forms of assistance

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