Pomoč in podpora osebi z demenco ter njenim svojcem : magistrsko delo

Žirovnik, Renata (author), Leskošek, Vesna (mentor)

Zahodna družba dosega vse daljšo življenjsko dobo in s tem starajočo se prebivalstvo. Starostnike pri tem spremljajo fizične in kognitivne spremembe. Ena izmed najpogostejših kognitivnih bolezni je demenca. Ta vpliva na življenje osebe, ki zboli za demenco, in na njene bližnje, saj spremeni njen pogled na svet, obenem pa vpliva tudi na njene medsebojne odnose z drugimi. Zato demenca ni le medicinski fenomen, ampak je predvsem socialni problem. Pri tem ima lahko pomembno vlogo tudi socialno delo. Z ustrezno pomočjo in podporo osebi z demenco in njenim ključnim oskrbovalcem lahko udeleženi živijo kakovostno in dostojno. V svojem magistrskem delu sem raziskovala življenjski svet svojcev oseb z demenco, preučevala sem njihove potrebe. Raziskovala sem organizirane in neformalne oblike pomoči, ki se jih poslužujejo, predvsem pa me je zanimalo, katere potrebe ostajajo nenaslovljene in kaj bi še potrebovali. Osredinjala sem se tudi na razumevanje, prepoznavanje in na naslavljanje njihovih potreb pri strokovnih delavcih. Zanimalo me je, kaj v tej smeri je (še) mogoče narediti. Opravljene poglobljene intervjuje s svojci oseb z demenco, strokovnima delavkama s centra za socialno delo in s strokovnima delavkama lokalnega doma starostnikov sem kvalitativno obdelala. Ugotovila sem, da so pri obstoječih oblikah pomoči sistemske pomanjkljivosti, ki naj bi se z Zakonom o dolgotrajni oskrbi začele razreševati. S tem naj bi se v prakso začel prenašati pristop dela, ki vključuje različne podporne elemente osebi z demenco in njenim svojcem ter drugim upravičencem dolgotrajne oskrbe. V okolici Zasavja svojci v skupnosti pogrešajo programe za samopomoč, boljše informiranje o ponujenih možnostih, pri čemer prepoznavam pomembno vlogo tudi pri nevladnih organizacijah v skupnosti ter v njihovem povezovanju s formalnimi institucijami. Odkrila sem, da bi se socialne službe med seboj morale povezovati in skupaj prepoznavati potrebe ljudi iz skupnosti in institucij. Obenem bi bilo treba oblikovati nove programe in storitve. Te bi morale temeljiti na ugotavljanju potreb z raziskovanjem na terenu, pri čemer bi bile vključene osebe z izkušnjami. Izkazala se je potreba po nudenju informacij na dostopnejši način.

• Language: Slovenian
• Keywords: demenca, družina, socialno delo z družino, potrebe svojcev in oseb z demenco, oblike pomoči
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: FSD - Faculty of Social Work
• Place of publishing: Ljubljana
• Publisher: [R. Žirovnik]
• Year: 2022
• Number of pages: 147 str.
• PID: 20.500.12556/RUL-138961
• UDC: 364.4:616.892.3
• COBISS.SI-ID: 139337475
• Publication date in RUL: 26.08.2022

Secondary language

• Language: English
• Title: Help and support to the person with dementia and her relatives

Abstract

Western society is achieving longer and longer life expectancy, the world’s population is ageing. Older people face physical and cognitive changes. One of the most common cognitive diseases is dementia. It affects the life of the person with dementia and his close relatives, changing their view of the world and affecting their relationships with others. Dementia is not only a medical phenomenon, but also a social problem. Social work can play an important role in this. With the right help and support for the person with dementia and his key carers, a person with dementia can live a quality and decent life. In my master thesis I explored the everyday life of relatives of people with dementia, what their needs are, the organised and informal forms of support they use. I was particularly interested in what needs remain unaddressed and what else they might need. I focused on how professional workers understand, identify and address their needs. I was interested in what else could be done. The results of the interviews conducted with relatives of people with dementia, professional workers from the Centre for Social Work and professional workers from the local home for the elderly were analysed using a qualitative method. I found that there are systemic deficiencies in the existing forms of support, which the Long-Term Care Act should be addressing. This is supposed to put a working approach into practice that includes various support elements for the person with dementia and his relatives, as well as for other beneficiaries of long-term care. In Zasavje, relatives in the community miss self-help programmes and better information about the possibilities offered. I see an important role for non-governmental organisations networking with other institutions. I found that social services should be networking with each other and identifying the needs of people in the community. At the same time, new programmes and services should be created. These should be based on identifying needs through research in the field, involving people with experience. There is a need to provide information in a more accessible way.

• Keywords: dementia, family, social work with family, needs of relatives and people with dementia, forms of support