Psihološki vidiki življenja z življenjskim partnerjem s parkinsonovo boleznijo : magistrsko delo

Bakan, Miša (author), Masten, Robert (mentor), Lauri Korajlija, Anita (comentor)

Raziskava je bila izvedena z namenom zaznavanja potreb življenjskih partnerjev v vlogi skrbnikov bolnikov s parkinsonovo boleznijo in priprave smernic za podporo partnerjev. V raziskavi se ukvarjamo z vprašanjem soočanja s partnerjevo boleznijo, parkinsonovo boleznijo. Zanimalo nas je, kako se partnerji spoprijemajo s spremenjenimi vlogami. Z devetimi udeleženci smo izvedli pol-strukturirane intervjuje, kjer smo se dotaknili treh področij - kontekst, bolnik in partner. Dva intervjuja sta bila narejena s ključnimi deležniki, ki so omogočili umestitev informacij v širši kontekst. Uporabljena je metodologija interpretativne fenomenološke analize (Smith, 1996), s pomočjo katere smo analizirali intervjuje. Izpostavili smo šest večji tem, ki so se v intervjujih ponavljajo: partnerski odnos, soočanje z boleznijo partnerja, sprememba življenjskega sloga, psihološke spremembe bolnika in informiranost o bolezni. Predhodna študija kaže, da je kakovostna partnerska zveza varovalni dejavnik zadovoljstva z življenjem in z nevrodegenerativno boleznijo partnerja (O'Connor in McCabe, 2011), kar se je potrdilo tudi znotraj naše študije. Na vprašanje, ki ga omenjena avtorja zastavljata in nista našla odgovora - kaj se dogaja s partnerskim odnosom, ko postaja bolnik vse bolj bolan - smo v naši raziskavi ugotovili, da partner v vseh primerih postaja vse bolj obremenjen in ima vse manj časa za lastne aktivnosti, vendar kaže, da je predhodna kakovostna partnerska zveza še zmeraj varovalni dejavnik zadovoljstva z življenjem in prinaša v odnos smisel vztrajanja v težjih razmerah. Partnerji potrebujejo vsaj eden ali več dobrih odnos, v najboljšem primeru je to odnos s svojim partnerjem, v kolikor pa odnos ne velja za kakovostnega je lahko varovalni dejavnik zadovoljstva z življenjem drug pomemben kakovostni odnos. Življenjskim partnerjem v vlogi skrbnikov je potrebno zagotoviti kontinuirani psihosocialni program, kjer bi se srečevali partnerji skrbniki, izmenjali izkušnje in se posvetili vsebinam s področja psihoedukacije in parkinsonove bolezni.

• Language: Slovenian
• Keywords: parkinsonova bolezen, skrb za bolnika, partnerski odnosi, kakovost partnerskega odnosa, kvalitativno raziskovanje, prirejen Vprašalnik o parkinsonovi bolezni PDQ-39, magistrska dela, kvalitativna študija
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: FF - Faculty of Arts
• Place of publishing: Ljubljana
• Publisher: [M. Bakan]
• Year: 2016
• Number of pages: 97 str.
• PID: 20.500.12556/RUL-138421
• UDC: 616.89-058.83(043.2)
• COBISS.SI-ID: 63245922
• Publication date in RUL: 20.07.2022

Secondary language

• Language: English
• Title: Psychological perspectives of intimate partner of Parkinson's disease patients

Abstract

The research was made with the aim to detect the needs of the spouse, caregivers for patients with parkinson's disease and to prepare the psychosocial support program. In the research we revealed the issue of coping with the spouse's disease, parkinson's disease. We are interested in how the spouse is dealing with changing roles in partnership and in family life. We conducted semi-structured interviews with nine participants, who were life partners of patients who had PB. We put focus on three areas - the context of life, patient and the partner. Additional two interviews were made with key stakeholders, which facilitated the installation of previously obtained information in a broader context. We expose six major themes that have been highlighted in interviews: a partnership dealing with partner's illness, lifestyle changes, patient's psychological aspects and changes and provision of information about disease. We used interpretive phenomenological analysis for analysing interviews (Smith, 1996). The conclusions of the study (O'Connor and McCabe, 2011) were confirmed well with our study - a high-quality partner life works as a protective factor of satisfaction for the healthy partner of PB partner. We tried to answer the questions raised by the mentioned authors - what is going on when the patient becomes increasingly sick? - spouses become more troubled and have less time for their own activities, but it shows that a high-quality partner life still works as a protective factor of satisfaction with life and brings to the relationship the meaning to stay together and support each other in dire moments. Spouses are in need of at least one or more high-quality relationships and it is a win-win situation if the relationship is a partnership. It is necessary to ensure the continuity of psychosocial programs designed for spouses where they meet for psychosocial support matters and can foremostly be educated about Parkinson's disease and occupy themselves with topics of psychoeducation.

• Keywords: Parkinson's disease, caring behaviors, marital relations, relationship quality, qualitative research, masters theses, patient care, partnership relations