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Spremembe in stiske, s katerimi se soočajo oskrbniki svojcev z demenco doma : magistrsko delo
ID Matić, Maja (Author), ID Gril, Alenka (Mentor) More about this mentor... This link opens in a new window

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Abstract
V magistrski nalogi sem raziskovala spremembe in stiske oskrbovalcev, ki so se odločili, da bodo svoje bližnje, ki so oboleli za demenco oskrbovali doma. V teoretičnem delu sem se osredotočila na demenco, kakšni so prvi znaki demence, kakšne vrste demence poznamo, na koga se lahko obrnemo za pomoč in diagnozo demence. Nato sem opisala spremembe, ki jih doživljajo osebe z demenco in spremembe, ki jih doživljajo njihovi svojci, ki jih oskrbujejo doma. Predstavila sem nekaj formalnih oblik pomoči, ki jih lahko osebe z demenco in njihovi svojci koristijo v SV delu Slovenije. V kvalitativni raziskovalni nalogi, v kateri sem izvedla šest intervjujev z oskrbovalci svojcev z demenco, sem se osredotočila na spremembe in stiske, ki jih pri tem doživljajo. Kako so se svojci soočili z diagnozo demence pri svojcu? Kako je oskrba svojca z demenco spremenila vsakdanje življenje oskrbnikov? Kakšne osebne stiske doživljajo oskrbniki svojca z demenco in kako se z njimi soočajo? Rezultati so pokazali, da so se vsi oskrbovalci soočili s spremembami v dinamiki dneva in so svoj način življenja prilagodili osebi z demenco. Navedli so, da so jih ob diagnozi prevevali različni občutki od šoka do žalosti in strahu. Pri oskrbi čutijo predvsem psihično obremenitev. Samo eden od šestih intervjuvancev koristi storitve formalne podpore. Navajajo, da je v lokalnem okolju premalo informacij o formalni podpori in da do njih težko pridejo. Pomembno se mi zdi, da o demenci več ozaveščamo in govorimo, da poudarjamo, da je zgodnje odkrivanje demence ključno za bolj kvalitetno življenje osebe z demenco in njihovih svojcev. Potrebno bi bilo ponuditi formalno podporo in pomoč že pri prvem obisku zdravnika in jo nuditi tudi oskrbnikom oseb z demenco na domu.

Language:Slovenian
Keywords:demenca, svojci, oskrba na domu, stiske, spremembe
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:FSD - Faculty of Social Work
Place of publishing:Ljubljana
Publisher:[M. Žnidarič]
Year:2021
Number of pages:80 str.
PID:20.500.12556/RUL-134084 This link opens in a new window
UDC:364-783.44:616.892.3
COBISS.SI-ID:98460675 This link opens in a new window
Publication date in RUL:23.12.2021
Views:534
Downloads:84
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Secondary language

Language:English
Title:Changes and adversities faced by the caretakers of relatives with dementia at home
Abstract:
In my master’s thesis I researched the changes and adversities of caretakers, who decided to care for their loved ones with dementia in the comfort of their own home. In my theoretical part I focused on dementia itself. What are most likely to be the first signs of dementia, what types of dementia are we familiar with and where do we seek help to be diagnosed for dementia. I described changes, experienced by persons with dementia and adversities faced by the caretakers. I introduced a few formal dementia cares for the caretakers and the persons with dementia in northeast Slovenia. With my research I interviewed six caretakers of their relatives at home, I focused on changes they are facing and on adversities they are experiencing, how to face with diagnosis of dementia on their relatives, how dementia changed caretakers every day, what kind of personal adversities are facing the caretakers and how are they facing them. The result showed that all caretakers are faced with changes in dynamics of everyday life. They specified that they were facing all kind of emotions, from shock to fear and sadness, when they found out the diagnosis. At caretaking, they felt mostly psychological burden. Only one of six caretakers that I interviewed is using formal care. They state that there is not enough information on formal care in local environment and that it is very difficult to get the information for formal care. I think it is very important that we all talk about dementia, and it is very important for early diagnosis of dementia for a more quality life for persons with dementia and their caretakers. It is necessary to offer formal support and care to persons with dementia and their caretakers at home at their first contact with doctors.

Keywords:dementia, relatives, homecare, adversity, changes

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