Vloga medicinskih sester pri zagotavljanju kakovosti življenja mladostnikov s Tourettovim sindromom : diplomsko delo

Garčević, Azira (author), Milavec Kapun, Marija (mentor), Kamenšek, Tina (comentor), Bizjak, Martina (reviewer)

Uvod: Tourettov sindrom je nevrorazvojna motnja z raznoliko etiologijo, za katero so značilni kronični vokalni in motorni tiki, ki trajajo vsaj eno leto. Bolezen lahko mladostnikom predstavlja težavno, zmedeno in stigmatizirano stanje. Namen: Namen diplomskega dela je raziskati vpliv tourettovega sindroma na kakovost življenja mladostnikov. Zanimalo nas je tudi, s kakšnimi občutki, težavami se soočajo v socialnem, akademskem in ekonomskem okolju ter s katerimi intervencijami medicinska sestra pripomore k boljšemu spopadanju s težavami in boljšemu počutju. Metode dela: V diplomskem delu je bila uporabljena deskriptivna metoda, in sicer pregled domače in tuje literature. Iskanje znanstvenih in strokovnih člankov je potekalo po tujih elektronskih brskalnikih (ScienceDirect, PubMed) ter podatkovni bazi CINAHL. V analizo smo vključili 18 člankov. Rezultati: Ugotovili smo, da tourettov sindrom vpliva na življenje mladostnikov, saj so velikokrat izobčeni iz družbe, ne znajo sklepati prijateljstev, imajo nizko samopodobo, so depresivni in anksiozni. K premagovanju izzivov in težav, s katerimi se spopadajo, veliko pripomore podporno okolje, ustrezna in usmerjena čustvena, vedenjska ter učna podpora. Razprava in zaključek: Rezultati kažejo, da imajo mladostniki psihosocialne posledice zaradi tourettovega sindroma. Bolezen tudi vpliva na bližnje ljudi, največkrat so to starši, ki sčasoma postanejo preveč obremenjeni, zato so posledično okrnjeni družinski odnosi. Vloga medicinske sestre je pomembna pri ozaveščanju okolice, nudenju podpore pacientom in bližnjim ljudem, temeljitem spremljanju pacientov, prav tako pa je pomembno neprestano izobraževanje na tem področju.

• Language: Slovenian
• Keywords: diplomska dela, zdravstvena nega, tiki, stigmatizacija, diskriminacija, intervencije
• Work type: Bachelor thesis/paper
• Typology: 2.11 - Undergraduate Thesis
• Organization: ZF - Faculty of Health Sciences
• Place of publishing: Ljubljana
• Publisher: [A. Garčević]
• Year: 2021
• Number of pages: 28 str.
• PID: 20.500.12556/RUL-128482
• UDC: 616-083
• COBISS.SI-ID: 78452227
• Publication date in RUL: 15.07.2021

GARČEVIĆ, Azira, 2021, Vloga medicinskih sester pri zagotavljanju kakovosti življenja mladostnikov s Tourettovim sindromom : diplomsko delo [online]. Bachelor’s thesis. Ljubljana : A. Garčević. [Accessed 21 March 2025]. Retrieved from: https://repozitorij.uni-lj.si/IzpisGradiva.php?lang=eng&id=128482

Secondary language

• Language: English
• Title: The role of nurses in ensuring quality of life of adolescents with Tourette syndrome : diploma work

Abstract

Introduction: Tourette's syndrome is a neurodevelopment disorder with a diverse etiology characterized by chronic vocal and motor tics which last at least one year. In many cases Tourette syndrome can represesent a difficult, confusing and stigmatic condition for patients. Purpose: The purpose of work is to investigate the impact of Tourette's on the quality of life of adolescents. We were also interested in problems and emotions they face in social, economic and educational environment, due to the disorders. We also wanted to investigate which nurse interventions can help to better coping with the problems. Methods: In thesis, the descriptive research method was used  review of Slovene and foreign literature was conducted The search of articles was carried out using electronic browers (ScienceDirect, PubMed) and database CINAHL. We included 18 articles. Results: We found that Tourette's syndrome affects the lives of adolescents, as they are often excluded from society, have problems with making new friends, low self esteem, are depressed and anxious. Supportive environmennt which include emotional, appropriate, educational and focused help can overcome challenges and problems faced by patients. Discussion and conclusion: The results show that adolescents have psychosocial consequences. The disease also affects close people, which are most often parents, who eventually become burdened and as a result, family relationships are ruined. The role of nurse is important in raising awareness of the environment, providing support to patient and their close ones, through consistent observance of patients and continuous education in this field.

• Keywords: diploma theses, nursing care, tics, stigmatization, discrimination, interventions