Vpliv občutka koherentnosti na kakovost življenja in subjektivno oceno zdravja pri bolnikih z multiplo sklerozo

Štern, Biljana (author), Zaletel Kragelj, Lijana (mentor), Hojs Fabjan, Tanja (comentor)

Uvod: Ta študija raziskuje odnos med občutkom skladnosti (angl. Sense of Coherence – SOC), kot jo določajo teorija salutogeneze in rezultati samoocene zdravja, ki so jih podali pacienti z multiplo sklerozo (MS). Metode: V prvi fazi študije smo validirali slovenske različice lestvice SOC, in sicer 13-stopenjski vprašalnik Orientation to Life Questionnaire (angl. 13-item Orientation to Life Questionnaire – OLQ-13) in vprašalnik za oceno kakovosti življenja v zvezi z zdravjem (angl. Health Related Quality of Life – HRQOL) oz. vprašalnik o kakovosti življenja pri multipli sklerozi (Multiple Sclerosis Quality of Life-54 Instrument – MSQOL-54). Postavili smo hipotezo, da slovenske različice omenjenih instrumentov izpolnjujejo standardne psihometrične kriterije in da se boljši občutek skladnosti povezuje z boljšimi specifičnimi in splošnimi ocenami zdravja, ki jih podajo pacienti z MS. Anketiranih je bilo skupno 134 pacientov. Izhodiščno smo zbirali demografske in bolezenske podatke, rezultate vprašalnikov SOC in HRQOL. Eno leto kasneje smo ponovno zbirali podatke s pomočjo vprašalnika SOC. Rezultati: Slovenske različice instrumentov so uspešno opravili psihometrično vrednotenje. V skladu s pričakovanji se je SOC – potem ko smo upoštevali sočasen vpliv socio-demografskih značilnosti bolnikov in značilnosti njihove bolezni – potrdil kot pomemben in neodvisen napovedni dejavnik subjektivnih ocen zdravja. Najvidnejši učinek je bilo zaznati na področjih duševnega zdravja. Zaključki: Gre za prvo študijo, ki je raziskovala vpliv občutka skladnosti (SOC) na subjektivnega zdravja pri pacientih z MS, ki so za ocenjevanje uporabili specifični vprašalnik za oceno kakovosti življenja v zvezi z zdravjem, in predstavlja temelje za nadaljnje raziskovanje občutka skladnosti in multiple skleroze.

• Language: Slovenian
• Keywords: občutek skladnosti, kakovost življenja, samoocena splošnega zdravja, multipla skleroza, validacija
• Work type: Doctoral dissertation
• Organization: MF - Faculty of Medicine
• Year: 2019
• PID: 20.500.12556/RUL-113145
• COBISS.SI-ID: 303441664
• Publication date in RUL: 07.12.2019

Secondary language

• Language: English
• Title: Impact of Sense of Coherence on Quality of Life nad Self Rated Health in Patients with Multiple Sclerosis

Abstract

Aim: This study examines the relation between Sense of Coherence (SOC) as defined in the theory of Salutogenesis and patient reported health outcomes in Multiple Sclerosis (MS) patients. Methods: The first phase of the study was the validation of the Slovenian versions of the measure of SOC called the Sense of Coherence (13-item Orientation to Life) Questionnaire and the measure of HRQOL, a specific Health Related Quality of Life (HRQOL) questionnaire, called the Multiple Sclerosis Quality of Life-54 Instrument (MSQOL-54). It was hypothesized that the Slovenian versions of the instruments would fulfill the standard psychometric criteria, and that a stronger SOC would be associated with better MS specific and general patient reported health status. A total of 134 patients were surveyed, though the measures of demographics, illness, SOC and HRQOL at baseline, and the measure of SOC one year later. Results: The Slovenian instruments successfully passed the psychometric evaluation. As expected, after controlling for demographic and illness variables, SOC emerged as a significant and independent, predictor of patient reported health in MS patients, the effect was most visible in the mental domains. Conclusion: This was the first study to examine the impact of SOC on patient reported health, assessed by a MS specific HRQOL instrument, and it provides the basics for further investigation of SOC in MS.

• Keywords: sense of coherence, quality of life, self-rated health, multiple sclerosis, validation