Kakovost življenja osebe z epilepsijo - psihosocialni vidik in vloga medicinske sestre : diplomsko delo

Čergarska, Ivona (author), Thaler, Darja (mentor)

Uvod: Epilepsija je nevrološka bolezen, ki privede do sprememb v življenju posameznika. Pri osebi z epileptičnimi napadi se pojavijo omejitve, ki močno vplivajo na kvaliteto življenja, kot so psihološke težave (strah, depresija, nižja samozavest) in socialni problemi (brezposelnost, izguba vozniškega privilegija, socialna izolacija). Namen: Namen diplomskega dela je predstaviti problematiko in psihosocialni vidik epilepsije kot tudi vlogo medicinske sestre pri poteku zdravljenja oseb z epilepsijo. Metode dela: V diplomskem delu je uporabljena deskriptivna metoda dela, s pregledom strokovne, pregledne in izvirne znanstvene literature. Izbrana literatura je iz slovenskega, angleškega in hrvaškega jezika. V analizi so uporabljeni članki, ki proučujejo epilepsijo, kakovost življenja z epilepsijo in vpliv zdravstvene nege na kakovosti življenja oseb z epilepsijo. Uporabljene so bile baze PubMed, CINAHL in ScienceDirect. Rezultati: Osebe z epilepsijo se ne spopadajo le z epileptičnimi napadi, ampak jim sama diagnoza predstavlja izziv tudi na psihološkem in socialnem področju. Kljub drastičnemu napredovanju v medicini in pozitivnim rezultatom pri zdravljenju epilepsije je večina oseb še vedno žrtev stigmatizacije in diskriminacije. Za to bolezen je značilno, da prinaša različne spremembe in omejitve v življenju, kar igra pomembno vlogo pri kakovosti življenja. Medicinska sestra lahko z nadgrajenim znanjem o epilepsiji bistveno prispeva k uspešnejšem poteku zdravljenja, boljšem poznavanju bolezni in zmanjšani stigmatizaciji oseb z epilepsijo. Razprava in zaključek: Epilepsija je ena izmed najbolj pogostih in tudi stigmatiziranih kroničnih bolezni. Uspešno prilagajanje osebe na diagnozo in na omejitve, ki jih bolezen prinaša, pozitivno vpliva na psihosocialni vidik življenja, kar je tesno povezano s kakovostjo življenja. Pri tem lahko bistveno pripomore tudi zdravstvena nega, v kateri medicinska sestra s specialnimi znanji o epilepsiji profesionalno svetuje, informira in usmerja paciente k pozitivnem zdravju in kvaliteti življenja.

• Language: Slovenian
• Keywords: epilepsija, kakovost življenja, zdravstvena nega, psihosocialne spremembe
• Work type: Bachelor thesis/paper
• Organization: ZF - Faculty of Health Sciences
• Year: 2019
• PID: 20.500.12556/RUL-112695
• COBISS.SI-ID: 5723499
• Publication date in RUL: 06.11.2019

Secondary language

• Language: English
• Title: Quality of life of people with epilepsy – psychosocial view and the role of a nurse : diploma work

Abstract

Introduction: Epilepsy is a neurological disease that leads to changes in an individual's life. A person with epileptic seizures faces limitations that greatly affect their quality of life, such as psychological problems (fear, depression, lower self-esteem) and social problems (unemployment, loss of driving privilege, social isolation). Purpose: The purpose of this diploma work is to present the problem and psychosocial aspect of epilepsy, as well as the role of the nurse in the course of treatment of patients with epilepsy. Methods: The diploma work uses a descriptive method, with a review of professional, transparent and original scientific literature. The selected literature is Slovenian, English and Croatian. In the analysis are used aticles which include studies of epilepsy, quality of life with epilepsy, and the impact of nursing on the quality of life of people with epilepsy. The bases used were PubMed, CINAHL and ScienceDirect. Results: Not only do people with epilepsy cope with seizures, but their diagnosis is also a challenge in the psychological and social fields. Despite the drastic advances in medicine and positive results in treatment of epilepsy, most are still victims of stigmatization and discrimination. This disease is characterized by the fact that it brings different changes and limitations in life, which are playing an important role in the quality of life. A nurse with advanced knowledge of epilepsy can significantly contribute to a more successful course of treatment, better knowledge of the disease, and reduced stigmatization of people with epilepsy. Discussion and conclusion: Epilepsy is one of the most common and also stigmatized chronic diseases. Persons' successful adapting to the diagnosis and the limitations of the disease have a positive effect on the psychosocial aspect of life, which is closely linked to the quality of life. In this area nursing can greatly contribute. With special knowledge of epilepsy a nurse can professionally advise, inform and guide patients towards positive health and quality life.

• Keywords: epilepsy, quality of life, nursing care, psychosocial changes