Psihološki vidiki življenja s posameznikom z demenco

Eder, Petra (author), Kobal Grum, Darja (mentor)

Demenca je zaradi večanja števila prebivalstva in vse večjega deleža starejših ljudi nad 65 let, po svetu vse bolj prisotna. Ker pa za veliko oseb z demenco skrbijo njihovi svojci, smo v magistrski nalogi raziskali, kakšnega pomena je demenca svojca za ostale družinske člane, še posebej za njihovo blagostanje in čustveno doživljanje. V uvodu pojasnimo oba osnovna koncepta, v nadaljevanju pa predstavimo raziskavo in njene rezultate. Zanimalo nas je, kako se spremeni življenje družine, ko svojec zboli z demenco, kakšne prilagoditve sprejemajo in, ali se spremenijo vloge v družini. Oblikovali smo polstrukturiran intervju s pomočjo katerega smo to preverjali. V raziskavo smo vključili deset svojcev oseb z demenco, s katerimi smo izvedli intervjuje. Isti udeleženci pa so nato izpolnili še samoocenjevalno lestvico pozitivnega in negativnega afekta PANAS. Pridobljene podatke iz intervjuja smo s pomočjo računalniškega programa za analizo kvalitativnih podatkov QDA Miner Lite kodirali glede na njihove skupne lastnosti. Tako oblikovane kategorije smo opisno analizirali in navedli v poglavju rezultati, kjer so dodani tudi dobesedni navedki svojcev. Ugotovili smo, da je veliko opisanih svojcev z demenco sicer že pozabljivih in kažejo še nekatere druge vedenjske ali psihične simptome, vendar večina od njih še ne potrebuje veliko pomoči pri vsakdanjih opravilih. Vsi, razen ene osebe z demenco, živijo skupaj z drugimi družinskimi člani, le ena je v domu starejših občanov. Za tiste, ki živijo doma, so ostali družinski člani že sprejeli nekatere spremembe. Nekateri so morali prilagoditi fizično ureditev doma, drugi organizirati skrb za svojca, tretji pa so prevzeli nekatere obveznosti svojca in so se tako njihove vloge nekoliko spremenile. Pomen magistrske raziskave vidimo predvsem v boljšem razumevanju življenja z demenco in možnosti širitve zavedanja problematike povezane z njo ter zmanjševanju stigme, ki je prisotna v družbi.

• Language: Slovenian
• Keywords: Demenca, družinski člani, blagostanje, afekt, kvalitativna raziskava
• Work type: Master's thesis/paper
• Organization: FF - Faculty of Arts
• Year: 2019
• PID: 20.500.12556/RUL-111458
• Publication date in RUL: 02.10.2019

Secondary language

• Language: English
• Title: Psychological aspects of living with a person with dementia

Abstract

Dementia is worldwide present, and the number of people living with dementia is estimated to increase, due to the increasing population and global aging population of people older than 65 years. Since many people with dementia are cared for by their family members, in this research we explored the meaning of dementia of the relative for other family members. Our focus is on their well-being and emotional experience. In the introduction are explained both of the basic concepts, then the research and results are presented. Main research topics are, how family life changes when dementia starts in their family member, what kind of adjustments family makes, and whether family roles change. We conducted a semi-structured interview and interviewd ten family members of people with dementia. The same participants also completed The positive affect and negative affect schedule, PANAS. The data from the interview was coded based on their common characteristics, using a QDA Miner Lite qualitative data analysis software. The formed categories have been descriptively analyzed and reported in the results section with added citations of the relatives. The study founds that many of the described people with dementia have memory loss and other behavioral or psychologic symptoms of dementia, most of them do not need extensive help from others with their daily routine. Described people with dementia are living with their family members, only one in the nursing home. For those living at home the family already accepted some changes. Some had to adjust their home, others had to organize care for a relative, or took over some of the relative's responsibilities and their family roles slightly changed. The importance of the master's research is mainly seen in a better understanding of living with dementia and the possibility of spreading awareness and reducing the stigma present in the society.

• Keywords: Dementia, family members, well-being, affect, qualitative research