Vloga medicinske sestre pri ohranjanju kakovosti življenja oseb z motnjo v duševnem razvoju : diplomsko delo

Puljić, Borut (author), Pajnič, Manca (mentor)

Motnja v duševnem razvoju (MDR) je motnja, za katero je značilno prilagojeno in intelektualno zmanjšano vedenje. Za MDR trpi 1–3 % svetovne populacije. Vzroki, ki privedejo do MDR, so lahko zunanji ali pa so genetsko pogojeni. Motnje se praviloma pojavijo pred 18. letom starosti, za določanje stopnje motnje pa se uporablja inteligenčni količnik.Namen diplomskega dela je predstaviti vlogo medicinske sestre pri ohranjanju kakovosti življenja oseb z MDR. Metode dela: V diplomskem delu smo uporabili deskriptivno metodo dela s pregledom obstoječe znanstvene in strokovne literature različnih raziskav v slovenskem in angleškem jeziku. Iskanje, pregled in zbiranje literature je potekalo od julija 2018 do aprila 2019 prek podatkovnih baz: Medline, CHINAL with full text in COBIS.SI. Tudi pri osebah z MDR opažamo trend podaljševanja življenjske dobe glede na preteklost, s tem pa njihovo število narašča. Osebe z MDR so pri težjih oblikah v posebnih socialno-varstvenih zavodih, zato se zdravstveni delavci soočajo s težavo, saj je treba načrte zdravstvene nege in drugih obravnav prilagoditi posebnostim teh oseb glede na njihovo motno, hkrati pa upoštevati tudi starostno pogojena patofiziološka dogajanja. Osebe z MDR potrebujejo individualni načrt zdravstvene nege, ki je prilagojen vsakemu posamezniku posebej. Skrb stroke in družbe mora biti usmerjena na dvig kakovosti življenja teh oseb.

• Language: Slovenian
• Keywords: osebe z motnjo v duševnem razvoju, kakovost življenja, življenje v ustanovi, zdravstvena nega
• Work type: Bachelor thesis/paper
• Organization: ZF - Faculty of Health Sciences
• Year: 2019
• PID: 20.500.12556/RUL-107566
• COBISS.SI-ID: 5612651
• Publication date in RUL: 26.04.2019

PULJIĆ, Borut, 2019, Vloga medicinske sestre pri ohranjanju kakovosti življenja oseb z motnjo v duševnem razvoju : diplomsko delo [online]. Bachelor’s thesis. [Accessed 24 March 2025]. Retrieved from: https://repozitorij.uni-lj.si/IzpisGradiva.php?lang=eng&id=107566

Secondary language

• Language: English
• Title: The roll of a nurse in sustaining quality of life of people with intellectual disability : diploma work

Abstract

Intellectual disability is characterized by significantly impaired intellectual and adaptive functioning. Intellectual disability affects about 1-3 % of the world's population. Causes that lead to intellectual disabilities can be influenced by factors of internal (genetic) determinants and/or external (environmental) ones. The disorder usually occurs before the age of 18 years; an intelligence quotient test is used to determine the degree of disorder. The purpose of this thesis is to present the role of nurses in preserving the life quality of people with intellectual disabilities. Methods: In this thesis, we used a descriptive method of work from a variety of sources of Slovenian and English written scientific literature. The research, reviews and collections of the literature took place from July 2018 to April 2019 through these databases: Medline, CHINAL with full text, and COBIS.SI. We see an increasing trend of extending the life expectancy of people with intellectual disability, which means that their numbers are increasing. People in the higher ranges of intellectual disability live in professional care facility centers, and staffers run into various problems especially in logistics of treatment since there is a wide variety of care needed depending on the disability of the person treated, while at the same time keeping in mind the oncoming pathologies that arise due to age related factors. People with intellectual disability need a detailed individual care plan that is tailored to each individual with his own set of disabilities. The care of families and professionals should be focused on increasing the quality of lives of these people.

• Keywords: people with intellectual disabilities, quality of life, life in the institution, nursing care