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Psihosocialne značilnosti dolgotrajno bolnega otroka
ID Tomažič, Tjaša (Author), ID Rapuš Pavel, Jana (Mentor) More about this mentor... This link opens in a new window

URLURL - Presentation file, Visit http://pefprints.pef.uni-lj.si/4164/ This link opens in a new window

Abstract
Z diplomskim delom želim opozoriti na vpliv, ki ga imata dolgotrajna bolezen in dolgotrajna hospitalizacija na življenje obolelega otroka in tudi celotne njegove družine. Ta vpliv je namreč velikokrat spregledan in zato osebe niso deležne potrebne pomoči za soočanje z njim. V teoretičnem delu definiram pojem dolgotrajne bolezni in posvetim pozornost različnim strategijam soočanja z boleznijo, ki je zaznamovala družino. Nakažem znake, pri obolelem otroku in ostalih družinskih članih, ki kažejo na prisotnost posledic zaradi dolgotrajne bolezni ali dolgotrajnih hospitalizacij ter predstavim trenutno stanje dela z dolgotrajno bolnim otrokom in njegovo družino tako v bolnišnici kot tudi v šolskem prostoru. Poskusim tudi umestiti profil socialnega pedagoga v delo z dolgotrajno bolnimi otroci. V empiričnem delu preko pogovorov z osebami, ki so na tak ali drugačen način neposredno vključene v procese dela z dolgotrajno bolnimi otroci dobim informacije o njihovem soočanju z dolgotrajno boleznijo, trenutnem stanju v slovenskem prostoru ter njihovih predlogih za izboljšave v prihodnje. Rezultati analiz pogovorov so pokazali, da se stanje izboljšuje, več je zavedanja o vplivu, ki ga imata dolgotrajna bolezen in dolgotrajna hospitalizacija na življenje otroka in njegove družine, povečuje se psihološka pomoč, sodelovanje vseh vpletenih, tako zdravstvene stroke, šole in staršev, vendar stanje še zdaleč ni idealno. Za dosego tega so potrebna še številna izboljšanja in predvsem večje osveščanje o tej problematiki v širši javnosti.

Language:Slovenian
Keywords:dolgotrajna bolezen
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:PEF - Faculty of Education
Year:2016
PID:20.500.12556/RUL-87131 This link opens in a new window
COBISS.SI-ID:11338313 This link opens in a new window
Publication date in RUL:04.09.2017
Views:1673
Downloads:272
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Secondary language

Language:English
Title:Psychosocial characteristics of chronically ill child
Abstract:
In this thesis, I would like to draw attention to the impact of long-term illness and prolonged hospitalization on the life of the ill child and his family. The effects of the illness are often overlooked and people do not receive the assistance they need to deal with it. In the theoretical part of the thesis, I define the term »long-term« illness and I pay attention to different strategies to cope with it. I indicate signs that show the presence of consequences of the long-term illness and prolonged hospitalization and I introduce those signs into the school premises considering the education legislation. I present the current situation of working with long-term ill child and his family and try to accommodate the profile of social pedagogue in the work with long-term ill children. The empirical part of the thesis consists in getting first-hand information from people directly working with long-term ill children about coping with long-term illness, current situation in Slovenia and their suggestions for possible improvements. Analysis of the interviews shows that the situation is improving; there is more awareness on the impact of long-term illness and prolonged hospitalization on the life of a child and his family. The psychological support is increasing and so is the cooperation of everyone involved - health professionals, schools and parents. Nevertheless, the situation is still far from ideal. Many improvements are needed, especially a greater awareness of this issue among the public.

Keywords:long-term illness

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