The master's thesis focuses on the impact of dementia on family members of individuals with dementia. The first part of the thesis provides a theoretical overview of different forms of dementia and perspectives on them. Special attention is given to the changed dynamics within families with elderly individuals, communication with the elderly and individuals with dementia, and caregiving for them. The challenges faced by family caregivers of elderly people are highlighted. The final chapter of the theoretical part addresses the support network available to family members of people with dementia in Slovenia.
The empirical part of the thesis presents a qualitative research study conducted through interviews with family members of individuals with dementia. The research questions focused on the importance of knowledge about dementia, the impact of dementia on relationships with the affected individual and other family members, and collaboration with services they interacted with. Findings indicate that family members were mostly familiar with dementia before the diagnosis of a family member, and that this knowledge facilitated their understanding and acceptance of the changes brought about by the disease. Caregiving for individuals with dementia had a unifying effect on the family, although disagreements regarding caregiving practices arose. Most family members reported an increased sense of connection with the individual with dementia over the course of the disease, which relied less on verbal communication and more on other forms of communication and senses.
Family members collaborated with healthcare professionals, private services, and associations, but often expected more information and concrete assistance than they received. They obtained the most information from doctors, books, and social networks. The study revealed a need for a support service that would bring together family members and institutions, provide knowledge about dementia and practical caregiving support, and also encourage self-care among family members while caring for a person with dementia.
|
