Zakon o osebni asistenci in vloga družinskih članov kot osebnih asistentov

Otoničar, Andreja (author), Lipovec Čebron, Uršula (mentor), Valič, Urša (co-mentor)

V magistrskem delu avtorica raziskuje, kako osebna asistenca vpliva na življenje oseb s hendikepom. V središče zanimanja je postavljeno življenje oseb s hendikepom pred in po uveljavitvi Zakona o osebni asistenci (2019). V raziskavi se sprašuje, zakaj nekateri uporabniki osebne asistence za osebne asistente izberejo starše. Raziskava temelji na intervjujih z uporabniki osebne asistence, ki kažejo, da so starši lahko dobra izbira, saj najbolje poznajo potrebe uporabnikov, prav tako so bolj časovno razpoložljivi. Eden od razlogov izbire starša kot osebnega asistenta je tudi želja po recipročnosti uporabnikov, saj je zaposlitev osebnega asistenta finančno ugodnejša od instituta družinskega pomočnika. Neodvisno življenje osebe s hendikepom pogojujejo različni dejavniki – zaposlitev družinskega člana kot osebnega asistenta ga ne izključuje nujno.

• Language: Slovenian
• Keywords: osebna asistenca, študije hendikepa, družinski člani, osebni asistent, etnografija
• Work type: Master's thesis/paper
• Organization: FF - Faculty of Arts
• Year: 2023
• PID: 20.500.12556/RUL-144632
• Publication date in RUL: 04.03.2023

Secondary language

• Language: English
• Title: The Personal Assistance Act and role of Family Members as Personal Assistants

Abstract

In the master's thesis, the author researches how personal assistance affects the life of disabled people. The focus of the thesis is on the lives of disabled people before and after the implementation of the Personal Assistance Act (2019). The research asks why some personal assistance users choose their parents as personal assistants. The author carried out the research based on the interviews with users of personal assistance. The results have shown that parents can be a good choice, as they well-acquianted with the needs of the users, and they are also more available in terms of time. One of the reasons for choosing a parent as a personal assistant is also related to the desire for reciprocity on the part of users, since the employment of a personal assistant is financially more favorable than the institution of a family assistant. The independent life of a person with a disability is conditioned by various factors, and it is not necessarily excluded by the employment of a family member as a personal assistant.

• Keywords: personal assistance, disability studies, family members, personal assistant, ethnography