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Pregled izkušenj sorodnikov in bližnjih o oskrbi umirajočega bolnika : diplomsko delo
ID Čoha, Helena (Author), ID Mali, Jana (Mentor) More about this mentor... This link opens in a new window, ID Lopuh, Mateja (Comentor)

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Abstract
Neformalni oskrbovalci se ob oskrbi umirajočega bolnika soočajo z intenzivnimi čustvi in številnimi izzivi. Zaradi oskrbovanja so preobremenjeni, storitve in oblike pomoči pa niso prilagojene njihovim potrebam. Paliativna oskrba umirajočih bolnikov bi morala biti urejena na način, da bi vsak umirajoči bolnik in neformalni oskrbovalec lahko poleg pomoči s strani družine in prijateljev izbiral med raznolikimi oblikami storitev. Če bi imel umirajoči bolnik paliativno bolezen, bi potreboval paliativni tim strokovnjakov, med katerimi bi kot enakopravni član sodeloval tudi socialni delavec, ki bi s svojim znanjem, na primer z uporabo načel socialnega dela s starimi ljudmi, pomagal njemu in neformalnim oskrbovalcem. V diplomskem delu me zanimajo ugotovitve različnih avtorjev o izkušnjah o oskrbovanju sorodnikov in bližnjih, ki skrbijo za umirajočega bolnika, da bi se s poznavanjem izzivov in težav, ki jih doživljajo neformalni oskrbovalci, v socialnem delu in drugih disciplinah lahko ustrezno odzvali nanje. Diplomsko delo temelji na teoretski razpravi na podlagi literature, v kateri analiziram 15 znanstvenih in strokovnih člankov tako, da primerjam podobnosti in ugotavljam razlike v ugotovitvah različnih avtorjev. Rezultati kažejo, da so avtorji člankov enotni v ugotovitvah: neformalni oskrbovalci so fizično, čustveno in psihično obremenjeni zaradi oskrbovanja in imajo večinoma negativne izkušnje o oskrbovanju, med njimi in umirajočimi bolniki, družinskimi člani ter strokovnimi delavci pa poteka pomanjkljiva oziroma neučinkovita komunikacija. Za omogočanje prilagojene pomoči umirajočim bolnikom in neformalnim oskrbovalcem je nujna ocena njihovih potreb. V primeru neozdravljive bolezni je potrebno, da pri oskrbi umirajočih bolnikov in zagotavljanju pomoči neformalnim oskrbovalcem sodeluje tudi interdisciplinarni paliativni tim. Socialni delavec kot član tima s svojim znanjem in strokovnimi kompetencami lahko pomembno prispeva k pomoči umirajočim bolnikom in neformalnim oskrbovalcem, zato je socialno delo treba še bolj vključiti v razvijanje inovativnih oblik oskrbe umirajočih bolnikov.

Language:Slovenian
Keywords:izkušnje o oskrbovanju, neformalni oskrbovalci, oskrba umirajočih bolnikov, socialno delo, paliativna oskrba
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:FSD - Faculty of Social Work
Place of publishing:Ljubljana
Publisher:[H. Čoha]
Year:2022
Number of pages:83 str.
PID:20.500.12556/RUL-143891 This link opens in a new window
UDC:364-783.44-056.246
COBISS.SI-ID:145405955 This link opens in a new window
Publication date in RUL:18.01.2023
Views:959
Downloads:133
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Secondary language

Language:English
Title:A Review of Experiences of Relatives and Close Family Members when Caring for a Dying Patient
Abstract:
When providing care for a dying patient, informal carers are faced with intense emotions and a number of challenges. Informal carers often feel overwhelmed by their caring role, but care services are not tailored to meet their needs. Palliative care for the dying patients ought to be organised in such manner that every dying patient and informal carer could choose from a variety of services in addition to receiving support from their family and friends. If the dying patient had a palliative disease, he should have a palliative care team of professionals at hand, including a social worker as an equal member, who could use his skills (for example by applying the principles of social work with the elderly) to help the dying patients and their informal carers. In my thesis, I present the findings of different authors on the experiences of close family members and relatives when caring for a dying patient. I explore how we could provide an appropriate response in social work and other disciplines to the challenges and difficulties experienced by informal carers. The thesis is based on a theoretical discussion of literature – I have analysed fifteen scientific and professional articles to compare the similarities and identify the differences in the findings of different authors. The results of the analysis show that the aforementioned authors are unanimous in their findings that informal caregivers are physically, emotionally and psychologically stressed by their caregiving. What is more, they have mostly negative experiences of caregiving, since there is a lack of, or ineffective, communication between the informal caregivers and the dying patients, their family members and professionals. To provide personalised support for the dying patients and informal carers, it is essential to assess their needs and offer them a wide range of services. Furthermore, it is necessary to have an interdisciplinary palliative care team involved in the care of the dying patients and in supporting informal carers, in the case of palliative disease of the dying patient. As a member of the team, a social worker can make an important contribution to the care of the dying patients and provide support to informal carers by bringing their knowledge and expertise to the process. In conclusion, social work needs to become more involved in the development of innovative forms of care for the dying patients.

Keywords:caregiving experiences, informal carers, care of the dying patients, social work, palliative care

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