Psihološki vidiki oseb po amputaciji uda: kvalitativna raziskava : kvalitativna raziskava

Kastelic, Nuša (author), Žvelc, Gregor (mentor)

Amputacija uda ima dolgoročne učinke na življenje posameznikov. Psihološki izzivi, s katerimi se osebe po amputaciji uda srečujejo, so soočanje z amputacijo in njeno sprejemanje, doživljanje sebe in svojega telesa ter spremenjena kakovost življenja. Na vzorcu desetih oseb, ki so imeli amputacijo spodnjega ali zgornjega uda pred vsaj tremi leti, smo s pomočjo kvalitativne analize raziskovali, kako se ti trije vidiki kažejo kot dolgoročna posledica amputacije uda. Z udeleženci smo izvedli polstrukturirani intervju. Ugotavljamo, da se osebe z amputacijo uda soočajo v treh fazah – faza pred amputacijo, faza takoj po amputaciji in pa dolgoročno po amputaciji uda. Čeprav je obdobje po amputacijo uda težko zaradi privajanja na nov način življenja in doživljanja intenzivnih čustev, večina oseb amputacijo več let po posegu sprejema. Za soočanje z amputacijo so pomembne razvite učinkovite strategije spoprijemanja in pa zaznavanje virov moči. Amputacija uda vpliva na kakovost življenja posameznikov tudi več let po amputaciji uda. Večini oseb se zaradi spremenjenih telesnih zmožnosti, telesnega izgleda in drugačnega načina življenja po amputaciji uda, spremeni doživljanje sebe in vedenje v družbi. Čeprav večina oseb amputacijo danes sprejema, se še vedno soočajo z negativnimi občutji, nekateri doživljajo simptomatiko značilno za depresivnost. Ugotavljamo povezave med soočanjem z amputacijo, njenim sprejemanjem, doživljanjem lastnega telesa in vplivom amputacije na posameznikovo življenje ter stopnjo zaznane bolečine v krnu oz. fantomskem udu in utelešenjem proteze. Osebe, ki doživljajo hujše bolečine v krnu ali fantomskem udu in ne sprejemajo proteze, amputacije več let po posegu ne sprejemajo, svoje telo vrednotijo bolj čustveno in zaznavajo več negativnih vplivov amputacije uda na njihovo življenje od oseb, ki nimajo hudih bolečin in sprejemajo protezo. Ta raziskava služi začetnemu pregledu področja. V nadaljevanju predlagamo poglobljeno raziskovanje in podkrepitev ugotovitev s kvantitativnim pristopom. Na podlagi tega bi lahko ugotavljali konkretne potrebe in želje glede zdravstvene in socialne opore več let po amputaciji uda, kasneje pa oblikovali primeren predlog za obravnavo teh oseb.

• Language: Slovenian
• Keywords: amputacija uda, spoprijemanje z amputacijo uda, vplivi amputacije uda, doživljanje sebe, kakovost življenja
• Work type: Master's thesis/paper
• Typology: 2.09 - Master's Thesis
• Organization: FF - Faculty of Arts
• Place of publishing: Ljubljana
• Publisher: [N. Kastelic]
• Year: 2022
• Number of pages: 66 str.
• PID: 20.500.12556/RUL-134633
• UDC: 159.9:616-089.87(043.2)
• COBISS.SI-ID: 96477955
• Publication date in RUL: 22.01.2022

Secondary language

• Language: English
• Title: Psychological aspects of limb amputation: a qualitative study : magistrsko delo

Abstract

Limb amputation has long-term effects on the lives of individuals. The psychological challenges that people face after limb amputation are coping with and accepting the amputation, experiencing themselves and their bodies, and an altered quality of life. Using a qualitative analysis of a sample of ten people with lower or upper limb amputation, we investigated how these three aspects manifest themselves as a long-term consequence of limb amputation. We conducted a semi-structured interview with the participants. We find that people face with limb amputation in three phases – phase before the amputation, right after the amputation and long-term. Even though the phase after the amputation in hard because of the new lifestyle and experiencing intense emotions connected to that, most people successfully deal with the amputation and accept it today, several years later. Functional coping strategies and percieved sources of help are important in dealing with amputation. Limb amputation changes the quality of individuals life. People after amputation experience a change to their identity, they are also disturbed by the aesthetic aspect of the body after amputation. Besides most people accept limb amputation, they still experience intense negative feelings, some report of symptoms that might be classified as depression. Experiencing phantom limb pain and prothesis embodiment is connected to coping with amputation and experiencing themself and their bodies. People that has strong phantom limb pain and do not accept prothesis report of not accepting the amputation, put negative conotation to their bodies and experience more negative aspects of amputation to their lives. This research serves as an initial overview of the field. In the future, we propose in-depth research and support of findings with a quantitative approach. On this basis, concrete needs and wishes for health and social support could be identified several years after limb amputation, and a suitable proposal for the treatment of these persons could be made at a later stage.

• Keywords: limb amputation, coping with limb amputation, effects of limb amputation, self-experience, quality of life