Izvedba okupacij otrok in mladostnikov z izkušnjo onkološkega obolenja : diplomsko delo

Medved, Vanesa (author), Sicherl, Zorana (mentor), Bratun, Urša (reviewer)

Uvod: Z diagnozo rak se srečuje vse več ljudi po vsem svetu, med njimi so tudi otroci in mladostniki. Običajno so ti hospitalizirani daljše časovno obdobje, kar lahko privede do okupacijske deprivacije. Zaradi posledic zdravljenja in same narave bolezni se mnogi ne morejo vključevati v okupacije. Namen: Namen raziskovalnega dela je bil proučiti izkušnje otrok in mladostnikov, ki imajo izkušnjo rakavega obolenja. Metode dela: Uporabljena je bila kvalitativna metoda raziskovanja. Izvedeni so bili polstrukturirani globinski intervjuji s šestimi posamezniki, starimi med 10 in 18 let, v času zdravljenja diagnoze rak. Dobljeni podatki so bili analizirani s pomočjo kvalitativne vsebinske analize. Rezultati: Iz kvalitativne vsebinske analize so izšle tri kategorije, in sicer doživljanje diagnoze, vključevanje v okupacije ter omejitve pri izvedbi okupacij. Prav tako je izšlo 11 podkategorij: informiranost o bolezni, soočanje in spoprijemanje z diagnozo, čustva in misli, vključevanje v okupacije v bolnišničnem okolju, vključevanje v okupacije v domačem okolju, opustitev okupacij, previdnostni ukrepi za izvajanje okupacij, skrb zase, produktivnost in prosti čas ter podpora pri izvedbi okupacij. Pri udeležencih so v času diagnoze rak prevladovala negativna čustva. Iz analize podatkov je bilo ugotovljeno, da so se težave pri udeležencih v času zdravljenja raka pojavljale na vseh področjih človekovega delovanja: področju skrbi zase, produktivnosti in prostega časa. Težave, ki so se pojavljale v času zdravljenja, so posamezniki skušali odpraviti z lastnimi strategijami ali s pomočjo strategij medicinskega osebja. Delovno terapevtske obravnave na edinem oddelku v Sloveniji za zdravljenje otrok in mladostnikov z rakom do 18. leta starosti ni bil deležen noben udeleženec v raziskavi. Le ena udeleženka je bila napotena v program rehabilitacije v URI Soča, kjer je imela delovno terapevtsko obravnavo. Razprava in zaključek: Vse omejitve, s katerimi se otroci in mladostniki z rakom v naši raziskavi srečujejo na posameznih področjih človekovega delovanja, lahko vplivajo na vključenost v okupacije.

• Language: Slovenian
• Keywords: diplomska dela, delovna terapija, kvalitativna raziskava, mladostniki, okupacija, onkologija, otroci
• Work type: Bachelor thesis/paper
• Typology: 2.11 - Undergraduate Thesis
• Organization: ZF - Faculty of Health Sciences
• Place of publishing: Ljubljana
• Publisher: [V. Medved]
• Year: 2021
• Number of pages: 44 str., [8] str. pril.
• PID: 20.500.12556/RUL-131788
• UDC: 615.851
• COBISS.SI-ID: 79739907
• Publication date in RUL: 03.10.2021

Secondary language

• Language: English
• Title: Occupational performance of children and adolescents with experience of oncological disease : diploma work

Abstract

More and more people around the world are being diagnosed with cancer, including children and adolescents. Usually, these are hospitalized for an extended period of time, which can lead to occupational deprivation. Due to the consequences of treatment and the very nature of the disease, many are unable to engage in occupations. Purpose: The purpose of the research work was to examine the experiences of children and adolescents who have experienced cancer. Methods: A qualitative method was used in the research. Semi-structured in-depth interviews were conducted with six individuals aged 10 to 18 years at the time of treatment for cancer diagnosis. The obtained data was analyzed with the help of qualitative content analysis. Results: Three categories emerged from the qualitative content analysis, mainly experience of diagnosis, involvement in occupations and limitations in the implementation of the occupations. There were also 11 subcategories: information of the disease, confrontation and coping with the diagnosis, emotions and thoughts, involvement in occupations in the hospital environment, involvement in occupations in the home environment, omission of occupations, precautionary measure for the implementation of occupations, self-care, productivity, leisure and support at implementation of occupations. At the time of diagnosis, cancer was dominated by negative feelings. From the analysis of the data, it was found that problems in the participants during the treatment of cancer occurred in all areas of human function: the area of self-care, productivity and leisure. Problems that arose during treatment were sought by individuals with their own strategies or with the help of medical staff strategies. No study participants received occupational therapy treatment in at the only department in Slovenia for the treatment of children and adolescents with cancer up to the age of 18. Only one participant was referred to the rehabilitation program at URI Soča, where she had occupational therapy treatment. Discussion and conclusion: All the limitations encountered in individual areas of human function can affect the involvement of occupations.

• Keywords: diploma theses, occupational therapy, qualitative research, adolescents, occupation, oncology, children