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Perinatalna asfiksija in vpliv dolgoročnih posledic pri otroku na družino : diplomsko delo
ID Doberdrug, Barbara (Author), ID Globevnik Velikonja, Vislava (Mentor) More about this mentor... This link opens in a new window, ID Skubic, Metka (Reviewer)

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Abstract
Uvod: Perinatalna asfiksija je stanje, ko je placentarna ali pljučna izmenjava plinov v plod ali iz njega ogrožena ali celo preneha delovati ter pride do delnega ali popolnega pomanjkanja kisika v vitalnih organih. Posledice perinatalne asfiksije se lahko kažejo na možganskem, kardio-vaskularnem, kardio-respiratornem in mišično-skeletnem organskem sistemu. Obsežne študije o posledicah invalidnosti otrok na družine so bile narejene v sedemdesetih letih prejšnjega stoletja, ko je bilo »končno« priznano, da je družina, ki ima otroka s posebnimi potrebami, dejansko »družina s posebnimi potrebami«. Namen: Namen diplomskega dela je, da s pomočjo že obstoječe literature raziščemo perinatalno asfiksijo ter vpliv dolgoročnih posledic pri otroku na družino. S kvalitativno raziskavo, ki sledi, želimo ugotoviti, kako se družine soočajo z dolgoročnimi posledicami, kakšne prilagoditve so potrebne in kako to vpliva nanje. Metode dela: Za sistematični pregled že znane literature iz tega področja je uporabljena deskriptivna metoda dela. V nadaljevanju je uporabljena kvalitativna metoda zbiranja podatkov, in sicer intervju, pri katerem so bila vprašanja vnaprej razdeljena v sklope. Podatki so obdelani z metodo vsebinske analize. Raziskovalni vzorec predstavljajo tri prostovoljno javljene mame otrok, ki so doživeli perinatalno asfiksijo. Rezultati: Vse mame so se strinjale, da je bilo prvo soočenje z diagnozo in otrokovo prognozo šok. Vse tri intervjuvanke so se strinjale, da v družini otroka s posebnimi potrebami najbolje sprejme mama, ki tudi prevzame glavno skrb za otroka. Vse tri intervjuvanke so se strinjale, da otrok s posebnimi potrebami največkrat poslabša odnos med partnerjema. Vse so se strinjale, da otrok s težavami vpliva na število sorojencev. Vse intervjuvanke so povedale, da je največ negativnih komentarjev slišati s strani ljudi, ki otroka ne poznajo. Razprava in zaključek: Otroštvo veliko ljudi povezuje z obdobjem rasti in pridobivanja novih veščin, zato je invalidnost pri otroku še toliko težje sprejemljiva. Največ sprememb v življenju družine naj bi bilo po besedah intervjuvank na področju organizacije časa in socialnih stikov mame. Zavedati se moramo, da določeni strokovnjaki spremljamo te otroke in njihove družine en majhen del njihovega življenja. Za nas je bistveno, da staršem po najboljših močeh pomagamo sprejeti njihovega otroka takega, kot je.

Language:Slovenian
Keywords:diplomska dela, babištvo, porod, hipoksija, ishemija, encefalopatija, cerebralna paraliza, otroška invalidnost
Work type:Bachelor thesis/paper
Typology:2.11 - Undergraduate Thesis
Organization:ZF - Faculty of Health Sciences
Place of publishing:Ljubljana
Publisher:[B. Doberdrug]
Year:2020
Number of pages:57 str., [4] str. pril
PID:20.500.12556/RUL-120189 This link opens in a new window
UDC:618.2/.7
COBISS.SI-ID:28654083 This link opens in a new window
Publication date in RUL:17.09.2020
Views:2339
Downloads:216
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Secondary language

Language:English
Title:Perinatal asphyxia and impact of child´s long-term consequences on the family : diploma work
Abstract:
Introduction: Perinatal asphyxia is a condition in which the placental or pulmonary gas exchange to or from the fetus is compromised or even ceases altogether, resulting in partial or complete lack of oxygen in vital organs. The consequences of perinatal asphyxia can occur in the cerebral, cardiovascular, cardio-respiratory, and musculoskeletal organ systems. Extensive studies on the impact that a child with disability has on the family were made in the 1970s, when it was "finally" recognized that a family with a child with special needs, was in fact a "family with special needs". Purpose: The purpose of the diploma work is to use the existing literature to study the perinatal asphyxia and the impact that it has on a child and ultimately on the child’s family. With the qualitative research that follows, we want to find out how families face long-term consequences, what adjustments are needed and how this affects them. Work methods: A descriptive work method is used for a systematic review of already known literature in this field. This was followed by a qualitative method of data collection, an interview, where the questions were divided into sections in advance. Data was processed with content analysis. The research sample is a group of three volunteering mothers, whose children experienced perinatal asphyxia. Results: It was a great shock for all three mothers when they first found out the diagnosis and prognosis of their children. Everyone agreed that in a family, a mother is the one who accepts a child with special needs the best, and she is also the one that mainly takes care of him. All three mothers agreed that partnership can change for the worse because of the child with disabilities. Everyone agreed that having a child with disability affects on a decision to have more children. All interviewees said that negative comments are usually heard from people who don´t know the child. Discussion and conclusion: Many people have difficulty accepting a child with disabilities because of the idea that a childhood is a period when we grow and learn new skills. According to the interviewees, what changes the most in the family, is mothers time management and her social life. We need to keep in mind that certain professionals only spend short period of time with these children and their families, so it’s hard to get a full picture of their daily life. It is important to do our best to help parents accept their child for who he or she is.

Keywords:diploma theses, midwifery, childbirth, hypoxia, ischemia, encephalopathy, cerebral palsy, childhood disability

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