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Starši med skrbjo za otroka z oviro in skrbjo zase : magistrsko delo
ID Tajnšek, Anja (Author), ID Videmšek, Petra (Mentor) More about this mentor... This link opens in a new window

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Abstract
V magistrskem delu posebno pozornost namenjam izkušnji starševstva otroka z oviro in konceptu skrbi zase. Teoretični del vključuje štiri sklope, ki so ključni za razumevanje teme. V nalogi najprej predstavim različna poimenovanja in opredelitve otrok z oviro, dinamiko družine z otrokom z oviro, nadaljujem z izzivi, ki jih doživlja takšna družina in psihofizičnim zdravjem staršev. Pišem o družbenih konstrukcijah, skrbi za otroka z oviro, odnosih, potrebah, procesu soočanja, odpornosti, prostem času, starševskem stresu in izgorevanju. Osredotočim se na (starševsko) skrb zase, ki je osrednja tema moje raziskave. V empiričnem delu se sprašujem, kako uspešni so starši pri doseganju ravnotežja med zahtevami, ki jih prinaša bolezen oziroma ovira otroka in lastnimi potrebami ter kakšne so njihove strategije pri skrbi zase. Natančneje me je zanimalo, s kakšnimi starševskimi izzivi in spremembami se soočajo starši otroka z oviro: koliko časa zase ostane staršem ob skrbi za otroka z oviro, kateri so najpogostejši razlogi za (pre)obremenjenost staršev, kako obvladujejo psihološke napore, kako starši otroka z oviro skrbijo zase ter kateri so njihovi viri moči, ki jim dajejo občutek lastne vrednosti. Namen raziskave je dati glas staršem, da spregovorijo o doživljanju starševske vloge in o lastnem počutju. Raziskava je kvalitativna in temelji na podlagi osmih intervjujev, ki sem jih opravila s starši otrok z ovirami. Ugotavljam, da skrb za otroka z oviro zahteva različne oblike skrbi, pogosto nenehen nadzor in podporo odrasle osebe. Starši doživljajo psihološki napor, ki ni nujno povezan le s skrbstvenim delom, ampak je rezultat kombinacije z drugimi zunanjimi dejavniki. Skrb starša zase je v pogostih primerih zanemarjena, kljub temu da se starši zavedajo pomembnosti le-te. Oblikovala sem možne predloge, ki so usmerjeni predvsem v razbremenitev staršev otrok z oviro.

Language:Slovenian
Keywords:družine z otrokom z oviro, starševstvo, izzivi, psihološki napor, čas zase, socialno delo z družinami
Work type:Master's thesis/paper
Typology:2.09 - Master's Thesis
Organization:FSD - Faculty of Social Work
Place of publishing:Ljubljana
Publisher:[A. Tajnšek]
Year:2020
PID:20.500.12556/RUL-119783 This link opens in a new window
COBISS.SI-ID:37969667 This link opens in a new window
Publication date in RUL:11.09.2020
Views:1318
Downloads:144
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Secondary language

Language:English
Title:Parental Self-Care with a Child of a Disability
Abstract:
This thesis places significant emphasis on the experience of parenting a child with a disability and the concept of self-care. The theoretical part includes 4 sections that are important for understanding the topic and represent different denominations and definitions of children with disabilities, dynamics of a family with a child with a disability, challenges experienced by such a family and psychophysical health of parents. I write about social constructions, care for a child with a disability, relationships, needs, process of coping, resistance, leisure, parental stress and burnout. Special attention has been dedicated to (parental) self-care, which is the central theme of research. In the empirical part I wonder how successful the parents are in achieving a balance between the demands of the disease or child's disability and their own needs. Of interests in the study were: nature of challenges and changes parents of children with disabilities face, the amount of time parents have left for themselves while caring for a child with a disability, the most common reasons for parents (over)burdening in the parental role, ways of managing psychological strains and ways of self-care. Finally yet importantly, I was interested in their sources of power that give them a sense of self-worth. The purpose of the research is to give parents a voice to talk about experiencing parenting and their own wellbeing. Qualitative research is based on eight interviews with parents of children with disabilities. The findings demonstrate that caring for a child with a disability requires various forms of care, often constant supervision and support from an adult. Parents experience a psychological strain that is not necessarily related only to care work, but is the result of a combination with other external factors. Parental self-care is often neglected, despite the fact that parents are aware of its importance. Possible proposals, formulated on the basis of results, are aimed primarily at relieving parents of the strain that caring for a child with a disability entails.

Keywords:families with children with disabilities, parenting, challenges, psychological strain, time for yourself, social work with families

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