Skrb sorodnikov za ljudi z demenco v domačem okolju : diplomsko delo

Drolc, Maja (author), Mali, Jana (mentor)

V diplomskem delu obravnavam skrb sorodnikov za ljudi z demenco v domačem okolju. V teoretičnem delu sem najprej predstavila demenco, njeno zgodovino, vrste ter stopnje napredovanja. Nadaljevala sem z opredelitvijo modelov razumevanja demence, kamor uvrščam biomedicinski, psihološki, sociološki ter socialnodelovni model. Nato sem opisovala oskrbo človeka z demenco ter predstavila tudi potrebe neformalnih oskrbovalcev. V zadnjem poglavju teoretičnega dela sem opredelila še socialno delo z ljudmi z demenco ter omenila pravice ljudi z demenco. Predstavim kvalitativno raziskavo, katere glavni cilj je bil raziskati, s kakšnimi težavami se soočajo neformalni oskrbovalci v domačem okolju, torej raziskati težave, ki se pojavljajo na različnih ravneh socialnodelovnega modela razumevanja demence, tako na ravni medsebojnih odnosov, ekonomski in etični kot tudi izvedbeni ravni. Raziskovala sem, kako demenca vpliva na življenjski potek celotne družine in potek skrbi na splošno, pozornost sem namenila tudi čustvom, ki so ob skrbi prisotna. Zanimalo me je, pri katerih opravilih družinski oskrbovalci pomagajo človeku z demenco ter kdo jim pomaga in jih oskrbi s potrebnimi informacijami. Preverila sem tudi morebitno povezavo med stopnjo izobrazbe in stopnjo ozaveščenosti oziroma informiranosti; pri slednjem sem se osredotočila predvsem na vlogo socialnih delavcev. Ugotovitve raziskave so, da demenca močno vpliva na vsakdanjik celotne družine, zlasti pa na potrebe neformalnih oskrbovalcev, saj se soočajo s številnimi izzivi in obremenitvami. Oskrba človeka z demenco predstavlja veliko fizično in psihično obremenitev. Družine se soočajo z veliko spremembami tako v medsebojnih odnosih kot tudi pri poteku njihovega vsakdanjika, vsakodnevnih opravilih ter aktivnostih. Oskrba sproža veliko čustev, med njimi prevladujejo negativna. Formalno oskrbo opredeljujejo kot težko dostopno oziroma nedostopno, pri čemer so eden glavnih vzrokov finance, drugi pa nedostopnost teh oblik pomoči ob koncu tedna in praznikih. Ugotovila sem, da vsi v Občini Kamnik poznajo vsaj dve obliki formalne pomoči, vendar je vseeno informiranost o ostalih možnostih šibka, ravno tako pa se pojavlja nezadovoljstvo z informiranostjo nasploh. Odkrila sem tudi nepoznavanje vlog socialnih delavcev, kar bi bilo potrebno spremeniti z raznimi delavnicami in večjo mero ozaveščanja s strani centrov za socialno delo.

• Language: Slovenian
• Keywords: Demenca, neformalni oskrbovalci, socialno delo, skupnostna oskrba
• Work type: Bachelor thesis/paper
• Typology: 2.11 - Undergraduate Thesis
• Organization: FSD - Faculty of Social Work
• Place of publishing: Kamnik
• Year: 2020
• PID: 20.500.12556/RUL-118876
• COBISS.SI-ID: 32491267
• Publication date in RUL: 01.09.2020

Secondary language

• Language: English
• Title: Relatives' care for people with dementia in their home environment

Abstract

Because of the fact that dementia is more and more common disease among the older people and because the awareness, that dementia affects life course of the whole family, needs to be risen, I have decided in my graduation thesis to discuss care for people with dementia in their home environment in my municipality. The theoretical part of my thesis consists of presentation of dementia, its history, types and stages, which are followed by description of models of understanding dementia, where biomedical, psychological, sociological and social work model have been placed. It is followed by the discussion about needs of caregivers and definition of social work with people with dementia, where are also mentioned rights of people with dementia. In the following chapter, methodology and my research are described, namely I have used qualitative research, which main aim was to explore the problems that caregivers face on different areas of social work model of understanding dementia, and furthermore I have also wanted to find out how dementia affects life course of whole family and the course of care in general. The attention has also been paid to the relationships between caregivers and people with dementia and to present emotions, besides the aim of my research has also been to get to know who provides caregivers with help and support, as well as who gives them necessary information. At the same time the aim of my research was to check on possible connection between education level and level of awareness, where I have focused mainly on role of social workers. The research showed that dementia strongly affects life of the whole family, furthermore it also presents several challenges and strains. Caregivers confront with loads of emotions, unfortunately usually prevail negative ones. The finding that formal care is considered as unavailable, mostly due to low income or occupancy is also significant. Informal caregivers are also often dissatisfied with amount of information that are available, in addition they are often not even familiar with social work roles when it comes to dementia, which should be changed with the help of different workshops and by rising awareness about our mission.

• Keywords: Dementia, informal caregivers, social work, community care