Demenca in z njo povezan pogled sorodnikov na minljivost življenja

Snoj Kumlanc, Nataša (avtor)

V teoretičnem delu pišem o starem človeku, današnji družbi, demenci in sorodnikih kot družinskih oskrbovalcih ter o njihovem sprejemanju in informiranosti o demenci po postavljeni diagnozi. Število ljudi z demenco narašča, z napredovanjem demence pa narašča tudi potreba po pomoči pri zadovoljevanju osnovnih življenjskih potreb ljudi z demenco, zato se njihovi družinski člani vse pogosteje znajdejo v vlogi oskrbovalcev. Na podlagi delno strukturiranih intervjujev sem pridobila relevantne podatke, ki sem jih kvalitativno analizirala v raziskovalnem delu. V njem sem se osredotočila na prepoznavanje znakov in sprejemanje demence z vidika sorodnikov, nadalje pa tudi na njihovo informiranost, spremembe v življenju po postavljeni diagnozi, doživljanje ob odhodu človeka z demenco v dom za stare ljudi in z demenco povezan pogled sorodnikov na minljivost življenja. Rezultati raziskave so pokazali, da je bolezen pri vsakem posamezniku specifična, saj se kaže na različne načine in jo sorodniki različno sprejemajo. Ob tem običajno doživljajo negativne občutke, saj na demenco niso pripravljeni in jo pripisujejo starosti. Pomoč poiščejo pri osebnem zdravniku, psihiatru, prijateljih, nekateri se o bolezni informirajo, drugi pa ne iščejo informacij. Za ljudi z demenco skrbijo znotraj družine. Nekaterim sorodnikom se zaradi oskrbe človeka z demenco vsakdanje življenje spremeni, medtem ko se drugim ne, se pa večina sooča s preobremenjenostjo. Veliko spremembo za sorodnike predstavlja odhod človeka z demenco v dom za stare ljudi; nekaterim predstavlja občutek zadovoljstva in olajšanje, drugim žalost, negotovost in občutke krivde. Družina je tista, ki zagotovi človeku z demenco občutek varnosti in sprejetosti. Sorodniki razumejo minljivost kot življenjski krog od rojstva do smrti in ne razmišljajo o njej.

• Jezik: Slovenski jezik
• Ključne besede: sorodniki, človek z demenco, sprejemanje demence, socialno delo, minljivost
• Vrsta gradiva: Magistrsko delo/naloga
• Organizacija: FSD - Fakulteta za socialno delo
• Leto izida: 2020
• PID: 20.500.12556/RUL-116063
• Datum objave v RUL: 12.05.2020

Sekundarni jezik

• Jezik: Angleški jezik
• Naslov: Dementia – How it Changes the Way Relatives See the Transience of Life

Izvleček

In the theoretical part of my thesis, the focus is on older people in today's society and on dementia, as well as on relatives as the caregivers and on their awareness and acceptance of dementia when it is diagnosed. The number of people with dementia is growing, and with the advancement of the disease so is the need for assistance in order to be able to satisfy one’s basic needs, so the family members very often find themselves in the role of caregivers. To obtain relevant data about the needs and views of caregivers, I used partially structured interviews, which I then qualitatively analysed in the empirical part. In my research, I focused on how relatives recognized and accepted dementia. I wanted to find out how well they were informed about this brain disease and how their lives changed with the diagnosis. Moreover, I was interested in how they felt when the person with dementia was sent to a home for the older people and how they saw the transience of life in connection with dementia. The results of the analysis showed that the development of the disease was unique for each person – it was demonstrated in different ways, therefore the relatives accepted it differently. However, they usually experienced negative feelings, because they were not prepared for such a diagnosis and they often attributed it to old age. They turned to their general practitioner, a psychiatrist or friends for help. Some of them wanted to find out more about dementia, others did not. The everyday lives of some relatives changed because they had to take care of a person with dementia, while some relatives experienced no change in their everyday lives. Nonetheless, most of them felt overburdened. What often presented a big change for the relatives was sending a person with dementia to a home for the older people. Some relatives felt relief and happiness, while others experienced sadness, insecurity and feelings of guilt. Nevertheless, family is what gives a person with dementia a feeling of safety and acceptance. Relatives see transience as a circle of life from birth to death and do not think about it.

• Ključne besede: relatives, person with dementia, accepting dementia, social work, transience