Izkušnje sorojencev v družinah z otroki z ovirami, ki so vključeni v društvo Meander

Ravšelj, Lara (author), Urek, Mojca (mentor), Krstulović, Gašper (comentor)

Diplomska naloga se osredotoča na izkušnje sorojencev, ki sobivajo v družini z otrokom z ovirami. Ovira ima v družini močan vpliv na spremenjeno družinsko dinamiko, kar intenzivno občutijo tudi sorojenci brez ovir. Zaradi podrtih pričakovanj in novih izzivov, ki jih družini tovrstna izkušnja prinaša, so sorojenci pogosto pozabljena kategorija. Naloga opisuje različne koncepte oviranosti v družini ter opozarja na t. i. vlogo mladih negovalcev, katera lahko na različne načine zaznamuje posamezna področja življenja sorojencev brez ovir. Prav tako opisuje možne oblike podporne mreže, ki so jim na voljo. Namen dela je jasnejše prikazati življenje sorojencev, ki se v primerjavi z življenji njihovih vrstnikov na določenih področjih precej razlikuje. V delo je vključena tudi kvalitativna raziskava, katere rezultati so pridobljeni z izvedbo osmih intervjujev. Sogovorniki so sorojenci otrok z ovirami, ki so vključeni v društvo Meander. Sinteza z raziskavo pridobljenih rezultatov je podrobneje prikazala tako pozitivne kot negativne izzive, s katerimi se otroci in mladostniki vsakodnevno srečujejo skozi izkušnjo sobivanja z osebo z ovirami.

• Language: Slovenian
• Keywords: sorojenci otrok z ovirami, družina, izkušnje, podpora
• Work type: Bachelor thesis/paper
• Organization: FSD - Faculty of Social Work
• Year: 2019
• PID: 20.500.12556/RUL-108258
• Publication date in RUL: 22.06.2019

Secondary language

• Language: English
• Title: Expiriences of siblings in families with children with disabilities in organization Meander.

Abstract

A thesis focuses on the experience of the siblings who coexist in a family with a special needs child. A disability influences the whole family dynamics which is also felt by the siblings. Due to the need to rebuild the future expectation and the new challenges the siblings are often the forgotten category of the family. In a thesis are described different concepts of disability, the support groups and the role of the young carers. The principal aim of the thesis is to have a clear overview above the different fields of the siblings' life who have an experience of living with a child with a disability. A qualitative survey is also included. The results were obtained through carrying out the eight interviews. The interlocutors were the siblings of the special needs children, who participate in the Meander organization. The synthesis of the results showed both positive and negative challenges that siblings confront with through the experience of living with a person with a disability on a daily basis.

• Keywords: the siblings of the children with disabilities, family, experience, support