20.500.12556/RUL-87131 Psihosocialne značilnosti dolgotrajno bolnega otroka Psychosocial characteristics of chronically ill child Z diplomskim delom želim opozoriti na vpliv, ki ga imata dolgotrajna bolezen in dolgotrajna hospitalizacija na življenje obolelega otroka in tudi celotne njegove družine. Ta vpliv je namreč velikokrat spregledan in zato osebe niso deležne potrebne pomoči za soočanje z njim. V teoretičnem delu definiram pojem dolgotrajne bolezni in posvetim pozornost različnim strategijam soočanja z boleznijo, ki je zaznamovala družino. Nakažem znake, pri obolelem otroku in ostalih družinskih članih, ki kažejo na prisotnost posledic zaradi dolgotrajne bolezni ali dolgotrajnih hospitalizacij ter predstavim trenutno stanje dela z dolgotrajno bolnim otrokom in njegovo družino tako v bolnišnici kot tudi v šolskem prostoru. Poskusim tudi umestiti profil socialnega pedagoga v delo z dolgotrajno bolnimi otroci. V empiričnem delu preko pogovorov z osebami, ki so na tak ali drugačen način neposredno vključene v procese dela z dolgotrajno bolnimi otroci dobim informacije o njihovem soočanju z dolgotrajno boleznijo, trenutnem stanju v slovenskem prostoru ter njihovih predlogih za izboljšave v prihodnje. Rezultati analiz pogovorov so pokazali, da se stanje izboljšuje, več je zavedanja o vplivu, ki ga imata dolgotrajna bolezen in dolgotrajna hospitalizacija na življenje otroka in njegove družine, povečuje se psihološka pomoč, sodelovanje vseh vpletenih, tako zdravstvene stroke, šole in staršev, vendar stanje še zdaleč ni idealno. Za dosego tega so potrebna še številna izboljšanja in predvsem večje osveščanje o tej problematiki v širši javnosti. In this thesis, I would like to draw attention to the impact of long-term illness and prolonged hospitalization on the life of the ill child and his family. The effects of the illness are often overlooked and people do not receive the assistance they need to deal with it. In the theoretical part of the thesis, I define the term »long-term« illness and I pay attention to different strategies to cope with it. I indicate signs that show the presence of consequences of the long-term illness and prolonged hospitalization and I introduce those signs into the school premises considering the education legislation. I present the current situation of working with long-term ill child and his family and try to accommodate the profile of social pedagogue in the work with long-term ill children. The empirical part of the thesis consists in getting first-hand information from people directly working with long-term ill children about coping with long-term illness, current situation in Slovenia and their suggestions for possible improvements. Analysis of the interviews shows that the situation is improving; there is more awareness on the impact of long-term illness and prolonged hospitalization on the life of a child and his family. The psychological support is increasing and so is the cooperation of everyone involved - health professionals, schools and parents. Nevertheless, the situation is still far from ideal. Many improvements are needed, especially a greater awareness of this issue among the public. dolgotrajna bolezen long-term illness true false false Slovenski jezik Angleški jezik Diplomsko delo/naloga 2016-11-25 02:20:28 2017-09-04 15:25:52 2025-04-17 04:52:44 0000-00-00 00:00:00 2016 0 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 11338313 tjasa-tomazic-psihosocialne-znacilnosti-dolgotrajno-bolnega-otroka.pdf tjasa-tomazic-psihosocialne-znacilnosti-dolgotrajno-bolnega-otroka.pdf 1 41DD6C683CBA384E5C9145B66577E3C8 c031ed04c02feb10eb8680b8dd032858173b85265f81f84643c31b19c73c9bf8 8d7a84ae-1aac-11f0-b232-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=205171 Pedagoška fakulteta 0 0 0