20.500.12556/RUL-188324 Življenje s Sjögrenovim sindromom – študija dveh primerov Living with Sjögren’s syndrome – two case study Uvod: Sjögrenov sindrom je sistemska revmatska bolezen, ki prizadene žleze z zunanjim izločanjem. Poleg značilne suhosti sluznic se lahko pojavijo bolečine in vnetja mišic ter sklepov, prizadetost živčevja in notranjih organov. Osebe pogosto poročajo o bolečini, utrujenosti in motnjah spanja. Zaradi manj opaznih težav so te osebe v družbi pogosto nerazumljene in spregledane. Uspešno obvladovanje simptomov ter razvijanje strategij za lažje izvajanje vsakodnevnih aktivnosti pomembno prispevata h kakovosti njihovega življenja. Namen: Namen diplomskega dela je opisati osebne in okoljske dejavnike pri dveh uporabnicah s Sjӧgrenovim sindromom ter raziskati, kako se ti dejavniki odražajo pri izvajanju njunih okupacij, na kakšen način se spoprijemata s težavami pri izvedbi ter kakšna je pri tem vloga delovne terapije. Metode dela: Narejena je bila študija dveh primerov. Za raziskovanje vloge delovne terapije je bil intervju izveden tudi z delovno terapevtko. Zbrani material smo analizirali s kvalitativno vsebinsko analizo, pri kateri je bil uporabljen tako induktivni kot deduktivni pristop. Rezultati: Z deduktivnim pristopom, ki je temeljil na PEOP modelu, so bile kode razdeljene v štiri kategorije: osebni dejavniki, okoljski dejavniki, okupacija in izvedba okupacij. Pri raziskovanju vloge delovne terapije so bile z induktivnim pristopom oblikovane naslednje kategorije: vrednotenje in načrtovanje obravnave, intervencije ter dejavniki, ki vplivajo na proces delovne terapije. Rezultati so pokazali, da se kljub enaki diagnozi osebni in okoljski dejavniki uporabnic razlikujejo, kar se odraža tudi v različnih izkušnjah pri izvajanju okupacij. Sčasoma in ob podpori delovne terapevtke sta razvili različne strategije spoprijemanja s težavami pri izvedbi okupacij. Razprava in zaključek: V skladu z obstoječo literaturo se tudi pri uporabnicah, vključenih v našo raziskavo, težave pojavljajo na vseh področjih okupacij. Pri izvedbi okupacij sta zaznana povečan fizični napor in zmanjšana učinkovitost, zaradi česar uporabnici izvedbo prilagajata z uporabo pripomočkov in s spremenjenimi načini izvajanja. Pri tem ima pomembno vlogo vključenost v delovno terapijo, pri kateri smo prepoznali pomankanje specifičnih delovnoterapevtskih ocenjevanj in intervencij za osebe s Sjӧgrenovim sindromom. Naši rezultati ponujajo iztočnico za nadaljnje raziskave in oblikovanje jasnih smernic v klinični praksi, kar bi prispevalo k višji kakovosti življenja oseb s Sjӧgrenovim sindromom. Introduction: Sjӧgren's syndrome is a systemic rheumatic disease that affects the exocrine glands. In addition to the characteristic dryness of the mucous membranes, it can cause pain and inflammation of the muscles and joints, as well as damage to the nervous system and internal organs. Individuals often experience pain, fatigue, and sleep disturbances. Due to the less visible nature of their symptoms, they are often misunderstood and overlooked by society. Effective symptom management and the development of strategies to support everyday functioning can significantly improve their quality of life. Purpose: The purpose of this thesis was to identify personal and environmental factors that affect two individuals with Sjӧgren's syndrome and analyse how these factors affect their performance of everyday occupations. Moreover, we aimed to explore how they cope with these challenges, and examine the role of occupational therapy in addressing them. Methods: A two-case study was conducted. To explore the role of occupational therapy, an interview was also conducted with an occupational therapist. The collected data were analysed using qualitative content analysis, combining both inductive and deductive approaches. Results: Using a deductive approach based on the PEOP model, the codes were classified into four categories: personal factors, environmental factors, occupation, and occupational performance. To explore the role of occupational therapy, the following categories were developed through an inductive approach: session evaluation and planning, interventions and factors influencing the process of occupational therapy. The findings showed that, despite the same diagnosis, the two individuals face different personal and environmental factors, which results in different experiences of occupational performance. Over time and with the support of an occupational therapist, they have developed different strategies to overcome these challenges. Discussion and conclusion: In accordance with the existing literature, the two individuals in our study face challenges in all areas of occupation. Physical strain and reduced effectiveness have been detected in occupational performance, compelling them to adapt their performance with assistive devices and modified ways of performing activities. This is where participation in occupational therapy plays a significant role. However, we have identified a lack of specific assessments and interventions in occupational therapy for individuals with Sjӧgren's syndrome. Our findings thereby provide a basis for further research and the development of coherent guidelines for clinical practice that could improve the quality of life of individuals with Sjӧgren's syndrome. delovna terapija revmatične bolezni model PEOP vsakodnevne aktivnosti occupational therapy rheumatic diseases PEOP model everyday activities true false false Slovenski jezik Angleški jezik Diplomsko delo/naloga 2026-09-20 07:46:16 2026-09-20 07:46:20 2026-09-21 04:28:21 0000-00-00 00:00:00 2026 0 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 1970-01-01 165524 63912.pdf 63912.pdf 1 76E1D8E0B3E71FB7F785834AC229A9C4 b0f42f36dcf3c5f86007a2b86f2c4acf43ded6e224fd81fb7c5db88bad5725e4 8c6d6f99-b4b6-11f1-8bc5-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=248357 Zdravstvena fakulteta 0 0 0