20.500.12556/RUL-187621 V družino usmerjena skrb v neonatalnih in pediatričnih enotah intenzivne nege diplomsko delo Family-centered care in neonatal and pediatric intensive care units diploma work Uvod: Starši otrok, hospitaliziranih v neonatalnih in pediatričnih enotah intenzivne nege, se pogosto soočajo z izrazitim stresom, negotovostjo in komunikacijskimi izzivi, kar lahko otežuje sodelovanje pri oskrbi. V družino usmerjena skrb predstavlja temeljni pristop, ki starše prepoznava kot ključne partnerje v zdravstveni oskrbi otroka in poudarja humanizirano, celostno ter partnersko obravnavo. Namen: Raziskati pomen v družino usmerjene skrbi v neonatalnih in pediatričnih enotah intenzivne nege ter preučiti vpliv aktivnega vključevanja družin na zadovoljstvo staršev, kakovost zdravstvene nege in klinične izide zdravljenja. Metode dela: Uporabili smo deskriptivno metodo dela s pregledom znanstvene in strokovne literature. Literatura je bila iskana v bibliografskih bazah CINAHL Ultimate, PubMed in DiKUL v obdobju od aprila do decembra 2025. Skupno smo identificirali 6.540 zapisov; po odstranitvi dvojnikov, uporabi filtrov in pregledu naslovov, povzetkov ter celotnih besedil smo v končno analizo vključili 17 znanstvenih člankov. Rezultati: Ugotovitve potrjujejo, da v družino usmerjena skrb temelji na štirih ključnih konceptih: spoštovanju in dostojanstvu, izmenjavi informacij, sodelovanju družine pri zdravstveni obravnavi in odločanju ter partnerskem sodelovanju z zdravstvenim osebjem. Aktivno vključevanje staršev je povezano z večjim občutkom kompetentnosti in varnosti ter nižjim stresom; v neonatalnih enotah intenzivne nege so bili opisani tudi ugodni klinični izidi, kot so izboljšanje dojenja, hitrejše pridobivanje telesne mase in krajša hospitalizacija. V pediatričnih enotah intenzivne nege se kot posebej pomemben dejavnik kakovosti v družino usmerjene skrbi izpostavlja jasna, stalna in vključujoča komunikacija; nižja zaznana raven tovrstne skrbi je povezana z večjim tveganjem za poznejše stresne in travmatske posledice pri starših. Medicinska sestra se v literaturi dosledno izpostavlja kot osrednji nosilec tovrstnega pristopa, vendar so pri izvajanju pogoste ovire, kot so pomanjkanje časa, kadrovska podhranjenost, neustrezna infrastruktura, nekonsistentnost osebja in formalna ter neformalna pravila oddelkov. Razprava in zaključek: Pregled literature kaže, da v družino usmerjena skrb pomembno prispeva h kakovostnejši oskrbi otrok in boljšim izkušnjam družin, vendar je izvajanje v praksi pogosto nedosledno in močno odvisno od organizacijskih pogojev, kulture oddelka in razpoložljivih virov. Za učinkovito izvajanje so ključni sistemska podpora, ustrezna infrastruktura, jasno opredeljene politike vključevanja družine in kontinuirano izobraževanje zdravstvenih delavcev, zlasti na področju komunikacije ter podpore staršem. Introduction: Parents of children hospitalized in neonatal and pediatric intensive care units frequently experience high levels of stress, uncertainty, and communication challenges, which may hinder effective participation in their child's care. Family-centered care is an important approach that recognises parents and families as essential partners in the child's healthcare and promotes humane, holistic, and collaborative care. Purpose: The purpose of this thesis was to examine the importance of family-centered care in neonatal and pediatric intensive care settings and to explore how active family involvement influences parental satisfaction, the quality of nursing care, and clinical outcomes. Methods: A descriptive research method based on a review of scientific and professional literature was used. The literature search was conducted in the bibliographic databases CINAHL Ultimate, PubMed, and DiKUL between April and December 2025. A total of 6,540 records were identified; after removing duplicates, applying filters, and screening titles, abstracts, and full texts, 17 scientific articles were included in the final analysis. Results: The findings confirm that family-centered care is based on four key concepts: respect and dignity, information sharing, family participation in care and decision-making, and partnership with healthcare professionals. Active parental involvement is associated with a greater sense of competence and security as well as lower stress levels; in neonatal intensive care units, favourable clinical outcomes have also been described, such as improved breastfeeding, faster weight gain, and shorter length of hospital stay. In pediatric intensive care units, clear, consistent, and inclusive communication is highlighted as a particularly important determinant of the quality of family-centered care; lower perceived levels of this type of care are associated with a higher risk of later stress-related and traumatic outcomes in parents. In the literature, nurses are consistently identified as central to this approach; however, common barriers to implementation include lack of time, understaffing, inadequate infrastructure, inconsistency among staff, and formal and informal unit rules. Discussion and conclusion: The literature review indicates that family-centered care contributes to higher-quality care and improved family experiences; however, its implementation in practice is often inconsistent and strongly dependent on organisational conditions, unit culture, and available resources. Effective implementation requires systemic support, adequate infrastructure, clearly defined policies regarding family involvement, and continuous education of healthcare professionals, particularly in communication and parental support. diplomska dela zdravstvena nega v družino usmerjena skrb neonatalna enota intenzivne nege pediatrična enota intenzivne nege medicinske sestre vključevanje družine komunikacija diploma theses nursing care family-centered care neonatal intensive care unit pediatric intensive care unit nurses family involvement communication true false false [L. Podmiljšak] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2026-09-12 07:45:38 2026-09-12 07:45:49 2026-09-14 13:01:08 0000-00-00 00:00:00 2026 0 Ljubljana 0 Ljubljana VIII, 28 str. 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616-083 164452 291019267 63962.pdf 63962.pdf 1 6FF2BE32666AE412174130DC3FA96E52 68ddfef8a2739b3731af3ab8b97f409d162772962652a6780e65e269d598cfd4 2f557b92-ae6d-11f1-8bc5-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=247313 Zdravstvena fakulteta 0 0 0