20.500.12556/RUL-186042 Podpora sorodnikom v paliativni oskrbi: primerjava pogledov sorodnikov in strokovnjakov Support for relatives in palliative care: comparing the views of relatives and experts Diplomsko delo obravnava podporo sorodnikom v paliativni oskrbi s perspektive tako sorodnikov kot strokovnih delavcev. Namen raziskave je bil poglobljeno razumeti izkušnje in potrebe sorodnikov ter strokovne poglede na podporo ob koncu življenja. Teoretični del opredeljuje paliativno oskrbo kot celosten pristop, ki poleg zdravstvene obravnave vključuje psihosocialno in duhovno podporo bolniku ter njegovi družini. Posebna pozornost je namenjena vlogi socialnega dela v paliativni oskrbi, pomenu neformalnih oskrbovalcev, potrebam sorodnikov, sistemskim izzivom ter eksistencialni dimenziji umiranja. Empirični del temelji na kvalitativni raziskavi s priložnostnim vzorcem, v kateri je bilo izvedenih deset polstrukturiranih intervjujev, pet s sorodniki ljudi, ki so bili v zadnjih šestih mesecih vključeni v paliativno oskrbo, in pet s strokovnimi delavci, ki so zaposleni na področju paliativne oskrbe. Podatki so bili obdelani po načelih kvalitativne analize z odprtim in osnim kodiranjem. Rezultati raziskave kažejo, da sorodniki podporo razumejo predvsem kot konkretno, praktično pomoč v vsakdanjih situacijah in čustveno bližino, strokovni delavci pa jo opisujejo širše, kot sistematično in dolgotrajno spremljanje celotne družine skozi ves potek bolezni. Kljub temu načelnemu ujemanju se v izkušnjah kaže razhajanje: sorodniki so se pogosto počutili spregledane in prepuščene same sebi, ne da bi vedeli, na koga ali kam se lahko zanesljivo obrnejo po pomoč. Med najpomembnejšimi oblikami koristne podpore so izstopali jasna komunikacija, konkretna navodila, dostopnost strokovnih delavcev in neformalna opora bližnjih. Sorodnike pa so najbolj obremenjevali neusklajena pomoč, administrativno breme ter dejstvo, da strokovni delavci sorodnikom redko sami ponudijo pomoč, ne da bi jih morali predhodno sami poiskati. Eksistencialna vprašanja, povezana s smrtjo, smislom in izgubo, so bila prisotna pri vseh sorodnikih, a pogosto neizrečena in tudi po bolnikovi smrti niso bila ustrezno predelana ob strokovni podpori. Socialno delo v izkušnjah sorodnikov pogosto sploh ni bilo prisotno ali pa je bilo omejeno na administrativne naloge, čeprav so sorodniki opisovali ravno tiste potrebe, ki so v jedru socialnega dela. The thesis deals with support for relatives in palliative care from the perspectives of both relatives and professionals. The aim of the research was to gain an in-depth understanding of the experiences and needs of relatives and professional views on support at the end of life. The theoretical part defines palliative care as a holistic approach that, in addition to medical treatment, includes psychosocial and spiritual support for the patient and their family. Special attention is paid to the role of social work in palliative care, the importance of informal caregivers, the needs of relatives, systemic challenges and the existential dimension of dying. The empirical part is based on a qualitative study with a random sample, in which ten semi-structured interviews were conducted, five with relatives of people who have been involved in palliative care in the last six months, and five with professionals employed in the field of palliative care. The data were processed according to the principles of qualitative analysis with open and axial coding. The results of the study show that relatives understand support primarily as concrete, practical help in everyday situations and emotional closeness, while professionals describe it more broadly as systematic and long-term monitoring of the entire family throughout the course of the illness. Despite this agreement in principle, there is a divergence in experiences: relatives often felt overlooked, left to their own devices and without a clear person or service to whom they could reliably turn. Among the most important forms of useful support, clear communication, concrete instructions, accessibility of professionals and informal support from loved ones stood out. However, uncoordinated help, administrative burden and the fact that professionals rarely offer help to relatives without the latter having to seek it out themselves were burdensome. Existential questions related to death, meaning and loss were present in all relatives, but often unspoken and, even after the patient's death, were not adequately processed with professional support. Social work was often not present at all in the experiences of relatives or was limited to administrative tasks, even though relatives described precisely those needs that are at the core of social work. paliativna oskrba sorodniki podpora ob koncu življenja socialno delo neformalni oskrbovalci žalovanje eksistencialna vprašanja palliative care relatives end-of-life support social work informal caregivers bereavement existential issues true false false Slovenski jezik Angleški jezik Diplomsko delo/naloga 2026-08-26 09:01:10 2026-08-26 09:01:15 2026-08-27 04:35:35 0000-00-00 00:00:00 2026 0 0 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 1970-01-01 57541 21062.pdf 21062.pdf 1 A6AA32D133BCB94B6F25C1268DB2E0A4 ce4b66b67557b037a37fca4180da0b5778eaf060e7633565cc4d9279459f87bc 84749f59-a11b-11f1-9b0d-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=245093 Fakulteta za socialno delo 0 0 0