20.500.12556/RUL-184682 Doživljanje utrudljivosti pri osebah z multiplo sklerozo diplomsko delo Experiences of fatigability in people with multiple sclerosis diploma work Uvod: Utrudljivost je eden najpogostejših in najbolj obremenjujočih simptomov pri osebah z multiplo sklerozo. Vpliva na izvajanje vsakodnevnih aktivnosti, sodelovanje v družinskem in socialnem življenju ter občutek samostojnosti. Ker je pogosto težko razložljiva in slabo prepoznana v okolju, je pomembno razumeti, na kakšen način jo osebe opisujejo in kako se z njo spoprijemajo. Namen: Raziskati, kako osebe z multiplo sklerozo doživljajo utrudljivost v vsakodnevnem življenju, kako ta vpliva na njihovo vključevanje v aktivnosti, kateri dejavniki prispevajo k njenemu pojavu oziroma stopnjevanju ter katere strategije se uporabljajo za njeno obvladovanje. Metode dela: Izvedli smo kvalitativno raziskavo s fokusno skupino, v kateri je sodelovalo sedem oseb z multiplo sklerozo. Pridobljeni podatki so bili analizirani s pomočjo kvalitativne tematske analize, z uporabo računalniškega programa ATLAS.ti. Rezultati: Udeleženci so utrudljivost opisovali kot telesno in miselno izčrpanost, ki se pojavlja po aktivnostih ali že med njihovim izvajanjem. Povezovali so jo z občutkom težkih nog, zmanjšano vzdržljivostjo, težavami pri hoji, koncentraciji, iskanju besed in načrtovanju dneva. Utrudljivost je po njihovem poročanju vplivala na osebno nego, gospodinjska opravila, delo, prosti čas, vožnjo in socialne stike. Zaradi nje so morali aktivnosti pogosteje prilagajati, jih razporejati čez dan ali jih v nekaterih primerih tudi opustiti. Kot pomembne načine obvladovanja utrudljivosti so izpostavili počitek, razporejanje energije, uporabo pripomočkov, prilagoditve okolja, postavljanje meja ter pomoč svojcev. Ob tem so opisovali tudi potrebo po večji previdnosti pri izvajanju dnevnih aktivnosti, spremembo življenjskega ritma, nerazumevanje okolice ter stigmo ob razkritju diagnoze. Razprava: Ugotovitve kažejo, da utrudljivost ni le telesni simptom, temveč kompleksna izkušnja, ki posega v različna področja vsakodnevnega življenja. Njeno doživljanje je povezano z zmanjšano zmožnostjo izvajanja aktivnosti, spremembami vlog in prilagajanjem vsakodnevnih navad. Podpora bližnjih, razumevanje okolice in ustrezne prilagoditve lahko pomembno prispevajo k lažjemu obvladovanju utrudljivosti. Zaključek: Boljše razumevanje doživljanja utrudljivosti lahko prispeva k bolj usmerjeni delovnoterapevtski obravnavi, načrtovanju ustreznih prilagoditev in višji ravni podpore osebam z multiplo sklerozo pri ohranjanju dejavnega vsakdanjega življenja. Introduction: Fatigability is one of the most common and most burdensome symptoms in people with multiple sclerosis. It affects the performance of everyday activities, participation in family and social life, and the sense of independence. Because it is often difficult to explain and poorly recognized by the environment, it is important to understand how people describe it and how they cope with it. Aim: To explore how people with multiple sclerosis experience fatigability in everyday life, how it affects their engagement in activities, which factors contribute to its occurrence or worsening, and which strategies are used to manage it. Methods: We conducted a qualitative study with a focus group involving seven people with multiple sclerosis. The obtained data were analysed using qualitative thematic analysis with the support of the computer programme ATLAS.ti. Results: Participants described fatigability as physical and mental exhaustion that occurs after activities or already during their performance. They associated it with a feeling of heavy legs, reduced endurance, difficulties with walking, concentration, word finding and planning the day. According to their reports, fatigability affected personal care, household tasks, work, leisure time, driving and social contacts. Because of it, they had to adapt activities more often, distribute them throughout the day or, in some cases, give them up. They identified rest, energy management, use of assistive devices, environmental adaptations, setting boundaries and support from relatives as important ways of managing fatigability. At the same time, they also described the need for greater caution when performing daily activities, changes in daily rhythm, lack of understanding from others and stigma related to disclosing the diagnosis. Discussion: The findings show that fatigability is not only a physical symptom, but a complex experience that interferes with different areas of everyday life. The experience of fatigability is related to reduced ability to perform activities, changes in roles and adaptation of everyday habits. Support from close persons, understanding from the environment and appropriate adaptations can significantly contribute to easier management of fatigability. Conclusion: A better understanding of the experience of fatigability can contribute to more targeted occupational therapy intervention, planning of appropriate adaptations and a higher level of support for people with multiple sclerosis in maintaining an active everyday life. diplomska dela delovna terapija vsakodnevne aktivnosti fokusna skupina kvalitativna raziskava strategije spoprijemanja diploma theses occupational therapy activities of daily living focus group qualitative research coping strategies true false false [J. Košir] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2026-07-12 07:45:37 2026-07-12 07:45:49 2026-07-14 14:34:56 0000-00-00 00:00:00 2026 0 Ljubljana 0 Ljubljana VIII, 35 str., [7] str. pril. 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 615.851 160491 284768771 59495.pdf 59495.pdf 1 E4537F413A48C5DD1540BCB26BD11C13 1fbdfd13707cbff9f24eb7adabd5680e255f7fc4751ab652c5bf51835a286efc ca4d1f5e-7db4-11f1-9b0d-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=237629 Zdravstvena fakulteta 0 0 0