20.500.12556/RUL-171316 Doživljanje sebe in svojih potreb v zgodnji fazi demence diplomsko delo Perceiving Oneself and One's Needs in the Early Stage of Dementia Namen raziskave v diplomskem delu je razumeti, kako posamezniki z demenco, ki živijo v domačem okolju, doživljajo svojo bolezen in kako zaznavajo in razumejo začetne spremembe, kako se z njimi soočajo. V teoretičnem delu sem predstavila pojem demenca, kako jo razumemo skozi različne discipline, dotaknila sem se poimenovanja zgodnja faza demence in ga utemeljila skozi različne avtorje, opredelila in povzela spremembe v zgodnji fazi demence, potrebe posameznikov z demenco ter pomen in naloge socialnega delavca. Raziskava, s katero sem pridobila odgovore, je kvalitativna, empirična. V neslučajnostni priložnostni vzorec sem vključila šest ljudi z demenco in eno sorodnico, ki je skrbela za mamo, ki je imela demenco. Rezultati so pokazali, da ljudje z demenco večinoma spremembe doživljajo negativno. Prve spremembe, ki jih prepoznajo, so težave s spominom, težave z orientacijo v prostoru in času, težave s pozornostjo in spremembe v čustvovanju in vedenju. Za soočanje s spremembami razvijejo praktične strategije samopomoči in notranje strategije soočanja s spremembami, ki jim pomagajo preseči stiske. Za pomoč so hvaležni, vseeno pa si želijo ohranjati samostojnost in s tem nadzor nad lastnim življenjem. Pri oskrbi ob napredovanju bolezni si želijo, da bi bile njihove potrebe razumljene in zadovoljene. Potrebna je večja ozaveščenost in izobraževanje strokovnih delavcev ter širše javnosti o tematiki doživljanja demence, pri čemer je nujen celosten pristop, ki vključuje informiranje in izobraževanje, delavnice, skupine za samopomoč v lokalnih skupnostih ter psihosocialno podporo preko centrov za socialno delo za učinkovito podporo ljudem z demenco in njihovim sorodnikom. The aim of the research in the thesis is to understand how individuals with dementia living at home experience their illness and how they perceive and understand the initial changes, and how they cope with them. In the theoretical part, I presented the concept of dementia, how it is understood through various disciplines. It explores the term early stage of dementia justified by various authors and outlines the changes characteristic in the early stage of dementia, the needs of individuals with dementia, and the role and importance of social workers. The research that provided the answers is qualitative and empirical. I included six people with dementia and a relative who cared for her mother with dementia in the non-probability convenience sample. Results showed that people with dementia mostly experience changes negatively. The first changes they recognize are memory problems, difficulties with orientation in space and time, attention problems, and changes in emotions and behavior. To cope with these changes, they develop practical self-help strategies and internal coping mechanisms that help them manage distress. While they are grateful for the support they receive, they still wish to maintain independence and control over their lives. As the disease progresses, they express a desire for their needs to be understood and met. There is a need for greater awareness and education of professionals and the public about how people experience dementia. A holistic approach is essential, incorporating education, information-sharing, workshops, self-help groups in local communities, and psychosocial support through social work centers to effectively support people with dementia and their relatives. demenca doživljanje sprememb potrebe prejemanje pomoči socialno delo dementia perceiving changes needs receiving help social work true false false [E. Babnik] Slovenski jezik Angleški jezik Diplomsko delo/naloga 2025-08-22 09:00:30 2025-08-22 09:00:33 2025-11-13 11:51:12 0000-00-00 00:00:00 2025 0 Ljubljana 0 Ljubljana 65 str. 0000-00-00 NiDoloceno NiDoloceno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 364.4:616.892.3 51498 257061891 17963.pdf 17963.pdf 1 AD6B7EC869A34505C3B29EF7EE15976A 2a3ac323cac83a938ce4e8af0c5ca03e0bc30932f168e95e4d0a999c3e478f04 97846d1c-7f25-11f0-9328-0050569b8976 https://repozitorij.uni-lj.si/Dokument.php?lang=slv&id=214541 Fakulteta za socialno delo 0 0 0